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July 2024 | Monthly eNewsletter from ALS Network

July 5, 2024 Comments Off on July 2024 | Monthly eNewsletter from ALS Network

Our July eNewsletter is in your inbox now, or you can view it online! This month, we are inspired by the stories of many individuals in the ALS community, highlight many support options for families touched by ALS, and celebrate the 20th anniversary of our Napa Valley Ride, Walk & Roll to Cure ALS. Please…

An enduring inspiration in our fight to cure ALS

July 4, 2024 Comments Off on An enduring inspiration in our fight to cure ALS

Each Fourth of July marks the anniversary of New York Yankees legend Lou Gehrig’s official farewell to baseball and public disclosure of his ALS diagnosis. In honor of the 85th anniversary of that historic day, we are inspired to share more about his story, both before and after his journey with the neurodegenerative disease. Lou…

Meet Jim Obergefell, ALS Advocate

July 3, 2024 Comments Off on Meet Jim Obergefell, ALS Advocate

Before 2011, when his partner of 21 years, John Arthur, was diagnosed with the disease, Jim Obergefell knew very little about ALS. Living in Ohio, they connected with the Central & Southern Ohio Chapter of The ALS Association, and received critically-needed services and support. Jim and John were married in 2013, and their quest for…

Steve Gleason to Receive The Arthur Ashe Award for Courage

June 27, 2024 Comments Off on Steve Gleason to Receive The Arthur Ashe Award for Courage

During The 2024 ESPYS, hosted by Serena Williams, ESPN will honor athletes and sports leaders for their courage, perseverance and service with three special accolades. Steve Gleason will receive the Arthur Ashe Award for Courage, Dawn Staley will receive the Jimmy V Award for Perseverance, and Prince Harry, Duke of Sussex will receive the Pat…

Do People Who Exercise More Have a Lower Risk of ALS?

June 26, 2024 Comments Off on Do People Who Exercise More Have a Lower Risk of ALS?

MINNEAPOLIS – Moderate levels of physical activity and fitness may be linked to a reduced risk of amyotrophic lateral sclerosis (ALS) later in life, according to a new study published in the June 26, 2024, online issue of Neurology®, the medical journal of the American Academy of Neurology. The study only found an association between…

9th Anniversary of US Supreme Court Landmark on Marriage Equality

June 26, 2024 Comments Off on 9th Anniversary of US Supreme Court Landmark on Marriage Equality

Wednesday, June 26, 2024 marks the 9th anniversary of the US Supreme Court landmark decision on marriage equality. The civil rights case, “Obergefell v. Hodges,” centered around two individuals within our ALS community. It was on June 26, 2015, that the U.S. Supreme Court made a landmark decision on marriage equality when they ruled that…

UCSF ALS Clinic and Cottage Health Santa Barbara launch ALS clinic in Santa Barbara

June 22, 2024 Comments Off on UCSF ALS Clinic and Cottage Health Santa Barbara launch ALS clinic in Santa Barbara

On June 20-21, the UCSF Medical Center’s Health Clinic and Cottage Health Santa Barbara launched a new satellite clinic focused on providing specialized local care for people living with ALS in the greater Santa Barbara area. Nine ALS Network clients have already accessed the clinic since its opening, with the next one slated for September.…

When Jim Obergefell met John Arthur: The heartbreaking love story behind the historic Supreme Court case

June 20, 2024 Comments Off on When Jim Obergefell met John Arthur: The heartbreaking love story behind the historic Supreme Court case

The landmark case guaranteeing same-sex couples the right to get married was set in motion when Obergefell’s husband was diagnosed with a fatal disease. As many same-sex couples decide to celebrate their love by getting married during this Pride Month, they have the perseverance of Jim Obergefell to thank. While his name is part of…

Aaron Lazar Debut Album to Benefit ALS Network

June 14, 2024 Comments Off on Aaron Lazar Debut Album to Benefit ALS Network

Aaron Lazar’s Impossible Dream on Good Morning America.

Aaron Lazar Collaborates With Josh Groban, Kristin Chenoweth, Leslie Odom Jr., More on Impossible Dream Album to Benefit ALS Network

June 14, 2024 Comments Off on Aaron Lazar Collaborates With Josh Groban, Kristin Chenoweth, Leslie Odom Jr., More on Impossible Dream Album to Benefit ALS Network

Broadway actor Aaron Lazar will release a new album, Impossible Dream, August 16. The record follows Lazar’s announcement that he has amyotrophic lateral sclerosis (ALS). The collaborative record will raise funds for the ALS Network, which previously honored Lazar for his advocacy.  Developed by Emitha Studios and Studio 7 Media, the new album will feature…