Calendar of Activities and Events
There is always something going on at the ALS Network. Please check out our calendar to see what is happening this month and to save the date for future activities and events. From our monthly connection groups to our community outreach events, there are many opportunities for you and your family to connect with us. Select subscribe to have these be a part of your personal calendar as well!
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Calendar of Events
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1 event,
Loved Ones Group: Connect, Support, Chat
Loved Ones Group: Connect, Support, Chat
Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom!
1 event,
Adaptive Yoga/Assisted Movement and Guided Meditation
Adaptive Yoga/Assisted Movement and Guided Meditation
1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted…
0 events,
0 events,
0 events,
0 events,
2 events,
Webinar: NEALS ALS MyMatch – ACACIA: Trial of Oral Digoxin in ALS
Webinar: NEALS ALS MyMatch – ACACIA: Trial of Oral Digoxin in ALS
Join the Northeast ALS (NEALS) Consortium on Monday, June 9th, 8:00am PDT / 5:00am HST for a webinar introducing the first Healey ALS MyMatchclinical trial - the ACACIA trial of…
Turlock/Central Valley: Connect, Support, Chat
Turlock/Central Valley: Connect, Support, Chat
Turlock/Central Valley: Connect, Support, Chat Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843…
2 events,
Community: Connect, Support, Chat
Community: Connect, Support, Chat
Community: Connect, Support, Chat Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsnetwork.org
San Fernando Valley: Connect, Support, Chat
San Fernando Valley: Connect, Support, Chat
San Fernando Valley: Connect, Support, Chat Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsnetwork.org
1 event,
NorCal Loved Ones: Connect, Support, Chat
NorCal Loved Ones: Connect, Support, Chat
NorCal Loved Ones: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
3 events,
Trach and Vent: Connect, Support, Chat
Trach and Vent: Connect, Support, Chat
Trach and Vent: Connect, Support, Chat Contact Facilitator: Robin Eller, RCP: 661-364-1913 or reller@alsnetwork.org for more information about how to participate via Zoom.
Webinar: Breaking Down Barriers: Understanding Access & Insurance Coverage for ALS Treatments
Webinar: Breaking Down Barriers: Understanding Access & Insurance Coverage for ALS Treatments
Thursday, June 12 at 1:00pm PDT / 10:00am HST - Hosted by our partner, Mitsubishi Tanabe Pharma America, this webinar will feature firsthand perspectives from members of the ALS community…
Ventura County Caregiver: Connect, Support, Chat
Ventura County Caregiver: Connect, Support, Chat
Ventura County Caregiver: Connect, Support, Chat Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsnetwork.org
0 events,
0 events,
0 events,
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4 events,
Bereavement (am): Connect, Support, Chat
Bereavement (am): Connect, Support, Chat
Bereavement (am): Connect, Support, Chat An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group…
Connect, Support, Chat: LGBTQ+
Connect, Support, Chat: LGBTQ+
Connect, Support, Chat: LGBTQ+ All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion…
Connect, Support, Chat: Bereavement (pm)
Connect, Support, Chat: Bereavement (pm)
Connect, Support, Chat: Bereavement (pm) A monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org…
2 events,
NorCal ALS Community: Connect, Support, Chat
NorCal ALS Community: Connect, Support, Chat
NorCal ALS Community: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please contact facilitator Debbie Joy, MHA for information on how to join using…
0 events,
3 events,
*IN-PERSON & VIRTUAL* All-Hawaii: Connect, Support, Chat
*IN-PERSON & VIRTUAL* All-Hawaii: Connect, Support, Chat
All-Hawaii: Connect, Support, Chat will meet both in-person and on Zoom this month at Ilima at Leihano, 739 Leihano St. Kapolei, HI 96707. Please contact Regional Care Manager Josephine Poirier,…
South Los Angeles: Connect, Support, Chat
South Los Angeles: Connect, Support, Chat
South Los Angeles: Connect, Support, Chat Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsnetwork.org
Unpartnered People with ALS: Connect, Support, Chat
Unpartnered People with ALS: Connect, Support, Chat
Unpartnered People with ALS: Connect, Support, Chat A connection group for people living with ALS who do not have a partner/spouse on this journey. For more information and to register,…
2 events,
San Luis Obispo: Connect, Support, Chat
San Luis Obispo: Connect, Support, Chat
San Luis Obispo: Connect, Support, Chat Please contact facilitator Julie Scurich for information on how to participate via Zoom! Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsnetwork.org
SoCal Community: Connect, Support, Chat
SoCal Community: Connect, Support, Chat
SoCal Community: Connect, Support, Chat Please contact Regional Care Manager Cynthia Marks, RT for information on how to participate using Zoom! cmarks@alsnetwork.org or 909-736-5677
0 events,
1 event,
PLS: Connect, Support, Chat
PLS: Connect, Support, Chat
PLS: Connect, Support, Chat For information on how to participate via Zoom, contact Facilitator: Trung Ton at 510-753-0395 or tton@alsnetwork.org
3 events,
*DATE CHANGE* Walnut Creek/East Bay: Connect, Support, Chat
*DATE CHANGE* Walnut Creek/East Bay: Connect, Support, Chat
Walnut Creek/East Bay: Connect, Support, Chat will meet this month on Tuesday, June 24, 3:30 PM PDT instead of Tuesday, June 17. Contact Facilitator Susan Reider, OTR/L, for information on…
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
Ventura/Santa Barbara: Connect, Support, Chat
Ventura/Santa Barbara: Connect, Support, Chat
Ventura/Santa Barbara: Connect, Support, Chat meets online every fourth Tuesday of the month at 4:00 PM PT. The group will meet in person quarterly at Hillcrest Center for the Arts in…
0 events,
1 event,
Pomona: Connect, Support, Chat
Pomona: Connect, Support, Chat
Pomona: Connect, Support, Chat Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org
2 events,
SoCal Loved Ones: Connect, Support, Chat
SoCal Loved Ones: Connect, Support, Chat
Connect, Support, Chat: SoCal Loved Ones Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org
San Francisco and Surrounding Counties: Connect, Support, Chat
San Francisco and Surrounding Counties: Connect, Support, Chat
San Francisco and Surrounding Counties: Connect, Support, Chat 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395;…
1 event,
Monterey Bay: Connect, Support, Chat
Monterey Bay: Connect, Support, Chat
Monterey Bay: Connect, Support, Chat Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsnetwork.org
0 events,
1 event,
International Alliance of ALS/MMD Associations New Programs’ Application Deadline
Apply now for the International Alliance of ALS/MMD Assocaitions New Programs: Virtual Global Clinical Research Learning Institute & Patient Fellows Program. Virtual Global Clinical Research Learning Institute (CRLI): This is…
1 event,
Loved Ones Group: Connect, Support, Chat
Loved Ones Group: Connect, Support, Chat
Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom!
1 event,
Adaptive Yoga/Assisted Movement and Guided Meditation
Adaptive Yoga/Assisted Movement and Guided Meditation
1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted…