News & Stories
Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.
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Kayla Turochy: Lamar Helped Me Find My Voice
Kayla met Lamar Woody back in 2017 at the music store where he taught voice and piano lessons. As her very first vocal coach, Lamar will always have a special…
Kristina Woody, Full-Time Nurse, Wife, Mother and ALS Caregiver
Kristina met Lamar Woody in high school, although it wasn’t until college when they really found their true connection. Lamar loves to tell everyone Kristina was the prettiest girl in…
Lamar Woody and his family, Living with ALS
Lamar and Kristina Woody are a lot like any other busy, hard-working couple. They’re juggling careers, education and the day-to-day activities of their sassy and smart nine-year-old daughter, Natalie. Married…
The Golden West Chapter to honor the California ALS Research Network with the Essey Commitment to Cures Award
The Golden West Chapter will honor the members of the California ALS Research Network with the Essey Commitment to Cures Award at their Champions for Cures and Care celebration on…
Cytokinetics Presents Data at the Virtual 33rd International Symposium on ALS/MND
SOUTH SAN FRANCISCO, Calif., Dec. 08, 2022 (GLOBE NEWSWIRE) — Cytokinetics, Incorporated (Nasdaq: CYTK) today announced that data were presented at the Virtual 33rd International Symposium on ALS/MND related to…
Spotlight on… Mary and John Patterson
The 2020 Virtual Hawaii Walk to Defeat ALS is honoring Mary Patterson and her husband John with the ‘Ohana Award this year. Mary and John were very involved in raising…
ALS Association Fights for Access to RELYRVIO
The ALS Association recently sent letters to 43 of the largest insurance companies and health care payers to make RELYVRIO, which was formerly developed as AMX0035 and approved by the…
Spotlight on Linda and Tom Waldrop
Linda Clegg and Tom Waldrop were an unlikely couple. Tom played in bands in the 60s in San Francisco, studied sociology and music, and settled into a corporate communications career in…
A Tribute to Matt Chaney, Our Hero
It is with a heavy heart that we share the sad news that Matt Chaney, Chapter Advisory Trustee and dear friend to many, died on November 11, 2022, after a…