News & Stories

Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.

Be sure to sign up to receive our monthly enewsletter, news updates, and other important information from the ALS Network. For any media inquiries, please access this dedicated page

Reuters: Private Medicare required to cover Biogen’s ALS drug by US Agency

December 12, 2024

Private insurers are now required to cover Biogen’s ALS FDA approved drug, Qalsody, by the Centers for Medicare & Medicaid Services (CMS) following reports of coverage denials. Previously, Medicare Advantage…

FOX11: LA’s Hailey Winslow on the 2024 Los Angeles Walk & Roll to Cure ALS

December 8, 2024

Our deepest gratitude to Hailey Winslow, Susan Hirasuna, and FOX 11 news for your thoughtful segment about the 24th annual Los Angeles Walk & Roll to Cure ALS. We cannot…

December 2024 | Monthly eNewsletter from ALS Network

December 6, 2024

Our December eNewsletter is in your inbox now, or you can view it online! This month, we celebrate our ALS Network family! Throughout this month, we will showcase members of…

Honoring the Producers of the Impossible Dream Album

December 6, 2024

The ALS Network (formerly ALS Golden West) is proud to announce Kitt Wakeley, David Das, and the Producers of the Grammy Award-nominated album, Impossible Dream, as our 2025 Essey Spotlight…

ALS Network Holiday Card Features Artwork of Gayle Garner Roski

December 5, 2024

Before her passing from ALS in 2020, Gayle Garner Roski described watercolor as a “medium of magic.”  Gayle once explained she loved “watercolors because they have a way of being…

Help Shape ALS Network’s 2025 Advocacy Priorities

December 5, 2024

At the ALS Network, we deeply value the voices of people living with ALS, their caregivers, and others who have been impacted by this disease. Your experiences and insights are…

FOX 11: 24th annual Walk & Roll to Cure ALS happening in LA

December 5, 2024

This weekend is the Walk & Roll to Cure ALS. ALS Network president and CEO Sheri Strahl joined FOX 11 to talk about the event and the work the nonprofit…

ALS Network Seeks Support For the ALS Community

December 2, 2024

Giving Tuesday & Year-End Tax-Deductible Gifts Support Care, Research, and Advocacy Efforts December 2, 2024 – FOR IMMEDIATE RELEASE LOS ANGELES – Support from individual and corporate donors fuels the…

Giving Tuesday: Stories from families helped by your support

December 2, 2024

On Giving Tuesday your support can create a lasting impact. Your gift will help provide care services, resources, and community connection; fuel groundbreaking research; and advance important public policy initiatives…