News & Stories

Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.

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2023 MLK Day of Service

January 11, 2023

Monday, January 16 is the 28th anniversary of the Martin Luther King, Jr. Day of Service. On this day, we celebrate the legacy of the Nobel prize-winning civil rights leader,…

BrainStorm Cell Therapeutics Partners to Provide Public Access to Biospecimens from NurOwn’s Phase 3 ALS Study

January 10, 2023

NEW YORK, Jan. 10, 2023 /PRNewswire/ — BrainStorm Cell Therapeutics Inc. (NASDAQ: BCLI), a leading developer of adult stem cell therapeutics for neurodegenerative diseases, today announced that BCLI will donate biospecimens from…

Honoring the Legacy of Stephen Hawking: Reading for the Stars to Help Fight ALS

January 7, 2023

Stephen Hawking, the world-renowned British scientist, professor, and author, is regarded as one of the most brilliant theoretical physicists in history. From the Big Bang to black holes, his work on…

Meet Clive Svendsen, PhD

January 1, 2023

Thought leaders and scientific community collaborators like Clive Svendsen, PhD, help the ALS Network pursue moonshots and accelerate the search for effective prevention strategies, treatments, and cures for ALS every…

Roberta Flack reveals ALS diagnosis, making it “impossible to sing”

December 30, 2022

Wife of Hal Finney Announces Bitcoin Charity Event

December 30, 2022

The ‘Running Bitcoin Challenge’ in Hal Finney’s memory is on again

December 30, 2022

“Not Going Quietly” with Ady Barkan and Nick Bruckman

December 21, 2022

In December 2022, Judy Heumann interviewed activist and person living with ALS, Ady Barkan, about his documentary, Not Going Quietly, which follows his journey into progressive politics after being diagnosed…

Natalie Woody: Growing Up with My Dad and ALS

December 20, 2022

ALS affects all people in the family – including kids. And while most ALS youth caregivers demonstrate amazing resilience and grace, they have complex experiences and feelings when living with…