News & Stories
Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.
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Celebrating the Successes of ALS Research Today, While Working to Fund More for the Future
This last year has seen incredible progress in the fight to create a world without ALS. The FDA approval of Relyvrio (AMX0035) in 2022 and Qalsody (tofersen) last month are…
May 2023 | Monthly eNewsletter from the Golden West Chapter
Our May eNewsletter is in your inbox now or you can view it online! This month is ALS Awareness Month! Join together with The ALS Association Golden West Chapter and…
Regenerative Medicine: A New Path for ALS Treatment
A first-of-its-kind stem cell therapy for ALS passes a critical safety benchmark, advancing the search to slow down, reverse and prevent the disease. In a parallel study, investigators are growing…
FDA approves treatment of ALS associated with a mutation in the SOD1 gene
On April 25, 2023, the US Food and Drug Administration (FDA) announced that Qalsody (tofersen) HAS BEEN APPROVED as a new prescription therapy for the treatment of people with rare…
FDA Grants Accelerated Approval for QALSODY™ (tofersen) for SOD1-ALS, a Major Scientific Advancement as the First Treatment to Target a Genetic Cause of ALS
CAMBRIDGE, Mass., April 25, 2023 (GLOBE NEWSWIRE) — Biogen Inc. (Nasdaq: BIIB) announced today that the U.S. Food and Drug Administration (FDA) has approved QALSODY™ (tofersen) 100 mg/15mL injection for…
No one left behind: ALS Clinic uncovers racial disparities in diagnostic delays
Researchers at the VCU Health ALS Clinic found that Black patients in Virginia experienced longer delays to being diagnosed with ALS than white patients. Now, they are focused on finding…
Public Comments Filed on Rules to Improve Medicare
The ALS Association recently submitted a series of regulatory filings to reduce administrative burdens placed on people living with ALS. The filings are in support of administrative rule changes at…
A Focus on Quality of Life: The Occupational Therapist Role in ALS Multidisciplinary Care
In broad terms, occupational therapy focuses on a person’s ability to perform activities of daily living—to live life to its fullest. For people with ALS, an occupational therapist (or OT)…
April 2023 | Monthly eNewsletter from the Golden West Chapter
Our April eNewsletter is in your inbox now or you can view it online! April is Volunteer Appreciation Month and the Golden West Chapter celebrates all who have generously given…