News & Stories
Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.
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Sydney Caroll
The $6 Challenge Example! Youth Action participant Sydney Carroll donated the few dollars she had in her piggy bank towards fighting ALS and asked that others do the same. Today,…
Our tribute to Mari Winsor: Fitness icon, powerful ALS advocate, and a dear friend
Mari Winsor, an internationally renowned fitness legend who was widely credited with popularizing Pilates and making this once obscure workout accessible to the public, died peacefully at her home surrounded…
ALS 101 – Educational Video Series
The ALS Association Golden West Chapter is proud to introduce a new educational series, entitled ALS 101 that is intended to serve as a comprehensive overview about the disease. Our…
Star’ Trek: Discovery’ ‘s Kenneth Mitchell Reveals ALS Diagnosis: ‘I Can’t Hide It Anymore’
Kenneth Mitchell has been diagnosed with amyotrophic lateral sclerosis, or ALS, a debilitating neurological disease that slowly takes away a person’s ability to control his or her muscles. In an…
Nanci Ryder, a renown Hollywood publicist and co-founder of BWR Public Relations, was diagnosed with ALS in 2014
Nanci Ryder, a renown Hollywood publicist and co-founder of BWR Public Relations, was diagnosed with ALS in 2014. From then on, she worked tirelessly to raise public awareness, and to…
A Sad Update About Our #VoiceYourLove Ambassador, Ryan Farnsworth
It is with heavy hearts that we share the news that Ryan Farnsworth, whose story is featured as a part of our #VoiceYouLove campaign, died Tuesday evening surrounded by his…
Spotlight On…Rusty Selix Healthcare and ALS Advocate
“Like the morning sun you come and like the wind you go.”– from “Uncle John’s Band” by the Grateful Dead. Throughout his life, Russell “Rusty” Selix has been told by…
The ALS Association Golden West Chapter to Honor Nanci Ryder with 2018 Walk Hero Award at the 16th Annual Los Angeles County Walk to Defeat ALS® on Sunday, November 4
The ALS Association Golden West Chapter is proud to announce that Nanci Ryder will be the recipient of the 2018 Walk Hero Award at the 16th annual Los Angeles County…
Spotlight on John & Sandy Repczynski – A Life in Focus
John Repczynski has literally spent his life focusing on other people. As a camera operator, director, and producer for over 45 years, John had to be acutely aware, even anticipate,…