News & Stories
Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.
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Spotlight on … Leila Sulentic, Team Captain and Former Event Chair, Jim Tracy 5k to Defeat ALS
San Francisco University High School graduate Leila Sulentic and her family have been battling ALS for as long as she can remember. “My first experience was when I was around…
Spotlight on…. Stacy Title
Trailblazer in Hollywood and as an ALS Advocate
“I have always believed and always taught my kids they can do whatever they want. I’ve tried to live that life. Why should I stop doing what I love?” –…
Kevin Heller Receives The ALS Association’s Hero Award
We are honored to announce that the ALS Network’s Kevin Heller, Team Captain of #GiveEmHeller of the Napa Valley Ride and Walk to Cure ALS, was selected to receive one…
Black Patients with ALS Face Significant Diagnostic Delays, Large Study Confirms
A new study found that Black patients with amyotrophic lateral sclerosis (ALS) experienced longer delays to being diagnosed with ALS than White patients. Societal determinants of health, such as disparities…
The Golden West Chapter Honors Biogen with the Essey Commitment to Cures Award
The Golden West Chapter presents the Essey Commitment to Cures Award to individuals and companies who champion drug discovery and development in the relentless pursuit of treatments and cures for…
The ALS Association Support Paved the Way for Antisense Therapy
Antisense oligonucleotide (ASO) therapy is a groundbreaking concept that has drastically changed the gene therapy landscape. In the 12 years since the first study was initiated in ALS, ASO therapy…
A loving tribute to Nanci Ryder: Champion for ALS Awareness and Dear Friend
“My mission in life is not merely to survive, but to thrive; and to do so with some passion, some compassion, some humor, and some style.” – Maya Angelou, American…
Sydney Caroll
The $6 Challenge Example! Youth Action participant Sydney Carroll donated the few dollars she had in her piggy bank towards fighting ALS and asked that others do the same. Today,…
Our tribute to Mari Winsor: Fitness icon, powerful ALS advocate, and a dear friend
Mari Winsor, an internationally renowned fitness legend who was widely credited with popularizing Pilates and making this once obscure workout accessible to the public, died peacefully at her home surrounded…