News & Stories
Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.
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Pat Dolan: Mapping the future of ALS Care, Cures, and Community
When Pat Dolan was diagnosed with ALS in July 2016, he knew the life he thought he had planned would be forever changed. Pat was a solutions team lead at…
Tell Medicare Why Seat Elevation Matters to You
Submit you comment HERE. Seat elevation systems in power wheelchairs help people living with ALS, but Medicare does not cover these important mobility devices. After three years of requests from The…
The Fight to Make Air Travel Accessible for All
It’s that time of year again when millions of Americans across the nation are making their plans to travel to be with family and friends to celebrate the holidays. While…
A Message From Leonard “Leo” Snyder, Veteran and Person Living with ALS
I was born in Alabama in 1947 and moved to Illinois at the age of 16. After graduating high school in 1965, I enlisted in the US Navy where I…
Spotlight On… The History of Supporting Hawaii’s ALS Community
For decades, people with ALS and their families living in the state of Hawaii would have to travel to the mainland in order to have access to care and resources.…
Spotlight on… Jessica Baluyot:
Bringing the World of Graphic Design and ALS Advocacy Together
Ever since Jessica Baluyot was a child, she had a deep interest in art and creativity. Through hard work and dedication, she became a digital product and graphic designer in…
Spotlight on… Lynn Giovannelli, Susanne Miller, and Melissa Stephens Sisters, Mothers, and Champions for the ALS community
Susanne, Lynn, and Melissa Stephens spent their formative years in the small town of Hastings, Minnesota, and enjoyed many activities with their close-knit family like travel, cooking, and school events.…
2022 Volunteer Appreciation Month
Using Art to Bring Hope to Our ALS Community: Melissa Stephens Melissa Stephens is a Bay Area-based encaustic painting instructor who is volunteering her time to raise ALS awareness in…
National Doctors’ Day!
National Doctors’ Day is celebrated annually on March 30. As a part of Women’s History month, it is a great time to celebrate the many ALS clinicians and scientists. These…