News & Stories

Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.

Be sure to sign up to receive our monthly enewsletter, news updates, and other important information from the ALS Network. For any media inquiries, please access this dedicated page

May 2024 | Monthly eNewsletter from ALS Network

May 3, 2024

Our May eNewsletter is in your inbox now or you can view it online!This month, we celebrate #ALS Awareness Month! Learn more about the ways that you can show your…

Letter by Letter, Steve Gleason Typed His Memoir With His Eyes

May 3, 2024

The former N.F.L. player has been living with A.L.S. for more than a decade. Sharing “the most lacerating and vulnerable times” in “A Life Impossible” was worth the physical and…

Volunteer Leader David Buseck Pens Travel Book

May 3, 2024

Paris: City of Cultures is your guide to see Paris beyond the Eiffel Tower.  Authored by David Buseck, ALS Network board member and person living with ALS, the book features…

2024 National Advocacy Event – Participate Virtually

May 2, 2024

Join the ALS Network for I AM ALS’s inaugural Community Summit and third annual DC ALS Awareness Event. While in-person attendance options are now fully booked, you can still participate…

Denali Therapeutics Announces Completion of Enrollment for Regimen G Evaluating eIF2B Agonist DNL343 in the Phase 2/3 HEALEY ALS Platform Trial

May 1, 2024

SOUTH SAN FRANCISCO, Calif., May 01, 2024 (GLOBE NEWSWIRE) — Denali Therapeutics Inc. (Nasdaq: DNLI), a biopharmaceutical company developing a broad portfolio of product candidates engineered to cross the blood-brain…

Studio City Life Magazine: Charity Spotlight

May 1, 2024

The May 2024 issue of Studio City Life Magazine featured ALS Network president and CEO Sheri Strahl, along with ALS Network Advisory Trustee Dr. Richard Smith. Readers received details on…

A Note From Our President and CEO, Sheri Strahl

April 29, 2024

Dear Friends, February 1, 2024 marked a significant milestone as I began my tenure as President and CEO of the ALS Network, formerly the ALS Association Golden West Chapter. I…

NBC Bay Area: 10th Annual Jim Tracy 5K in Golden Gate Park

April 28, 2024

Watch this segment with Terry McSweeney from NBC Bay Area talk about the 10th Annual Jim Tracy 5K, Walk & Roll to Cure ALS in Golden Gate Park.

CBS Bay Area: Jim Tracy 5K, Walk & Roll to Cure ALS

April 28, 2024

Watch this segment from KPIX CBS Bay Area about the 10th annual Jim Tracy 5K, Walk & Roll to Cure ALS.