News & Stories

Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.

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Spotlight on … Mandy Silveira

August 19, 2024

After experiencing tingling and tightness in her left ankle, along with cramping and restlessness in her legs while sleeping, Mandy visited her doctor to figure out what was causing these…

Hawaii ohana makes an impact together at the Big Island Walk & Roll to Cure ALS

August 18, 2024

The ALS Network held their 2nd annual Big Island Walk & Roll to Cure ALS (formerly the Big Island Walk to Defeat ALS) on Sunday, August 18, 2024 at Old…

Local News Features 2nd Annual Big Island Walk & Roll to Cure ALS

August 16, 2024

Mahalo to West Hawaii Today and Hawaii Tribune Herald for featuring our 2nd Annual Big Island Walk & Roll to Cure ALS in their publications.

The ALS Network, Denali Therapeutics, and Cytokinetics Inc. Celebrate the 3rd Splash to Cure ALS

August 14, 2024

The ALS Network partnered with biotech leaders Denali Therapeutics and Cytokinetics, Inc. for the 3rd South San Francisco (SSF) Splash to Cure ALS on Wednesday, August 14, in support of…

NY TIMES: ALS Stole His Voice. A.I. Retrieved It.

August 14, 2024

Casey Harrell, who has A.L.S., received surgically implanted electrodes last July that help connect his brain to a computer allowing him to speak with the assistance of an A.I.-powered computer…

The ALS Network Celebrates the 10th Anniversary of the ALS Ice Bucket Challenge

August 8, 2024

A decade of impact, inspiring people to boldly advance the discovery of prevention strategies, treatments, and cures. Ten years ago, a seemingly simple act ignited a global social movement. Inspired…

LiveNOW from FOX features 10th Anniversary of the Ice Bucket Challenge

August 5, 2024

Recently, the ALS Network spoke with Christy Matino at LiveNOW from FOX about the 10th anniversary of the ALS Ice Bucket Challenge and its decade-long impact on thousands affected with…

ESPN pays tribute to Pete Frates, his legacy, and impact of the 2014 ALS Ice Bucket Challenge

August 4, 2024

The ALS Network is grateful to ESPN for their special feature on Pete Frates, the former Captain of the Boston College baseball team and professional baseball player in Europe. Pete…

August 2024 | Monthly eNewsletter from ALS Network

August 2, 2024

Our August eNewsletter is in your inbox now, or you can view it online! This month, we celebrate the 10th Anniversary of the ALS Ice Bucket Challenge, Essey-Award Winner Aaron…