News & Stories
Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.
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My ALS Story – The Borba Family
Luis Borba was admired by many and was often referred to as “Uncle Louie,” from many family and friends. Luis developed a life in the Central Valley, and worked on…
The 2023 Central Coast Ride and Rally to Defeat ALS was a great success!
ALS Golden West hosted the 2nd annual Central Coast Ride and Rally to Defeat ALS on Saturday, September 16, 2023 at Bang the Drum Brewery in San Luis Obispo. The…
September 2023 | Monthly eNewsletter from ALS Golden West
Our September eNewsletter is in your inbox now or you can view it online! This month, we are highlighting Hawaii’s ALS community, the Hawaii Walk to Defeat ALS, and the…
Celebrating Tom Horton and Paddling to Defeat ALS
Our deepest gratitude to Golden West supporter Tom Horton, who participated in his 17th Catalina Classic Paddleboard Race to Defeat ALS on August 27, 2023. The annual Catalina Classic Paddleboard…
Mapping the CDC National ALS Registry
At the annual National ALS Registry Research Symposium, hosted by the Centers for Disease Control and Prevention (CDC), there was a special presentation on mapping to better understand the registry’s…
‘New’ ALS gene destabilizes neuron’s structure and nucleus
The viral ALS Ice Bucket Challenge a few years ago raised major funding that resulted in the discovery of new genes connected to the disease. One of those genes is…
Opportunity to submit comments to FDA about NurOwn
On Wednesday, September 27, 2023, the FDA will host a public advisory committee meeting (AdComm) for BrainStorm Cell Therapeutics’ stem cell therapy NurOwn for the treatment of ALS. The public…
My ALS Story – The Sy Ohana
In 2020, Elizabeth Sy was diagnosed with ALS. After learning more about the disease, the Sy family connected with ALS Golden West for services and support. The Sy family also…
My ALS Story – Gary Jarrett and Family
Born in Canada, Gary Jarrett was the youngest of five kids who spent the majority of his childhood in Southern California. In 1973 the family moved to the Central Coast…