News & Stories

Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.

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Prilenia envisions Phase III trial despite ALS drug missing primary endpoint  

January 22, 2024

Prilenia has announced plans to initiate a Phase III trial in H2 2024 after presenting results at the Annual California ALS Research Summit in Los Angeles, US. Prilenia Therapeutics’ amyotrophic…

An evening to celebrate Champions for Cures and Care

January 20, 2024

January 19, Los Angeles It was a truly wonderful evening dedicated to conquering ALS at the Champions for Cures and Care celebration on Friday, January 19. The elegant gala event,…

Actor Aaron Lazar opens up about ALS diagnosis

January 17, 2024

My ALS Story – Dave Coker and Team Coker Stars

January 8, 2024

Born and raised in Richmond, California, Dave Coker has always dedicated his life to helping others. He first started his career as a social worker at a psychiatric hospital during…

ALS Network – 2023 Care Services Survey Outcomes

January 4, 2024

In September 2023, ALS Golden West distributed a survey to all clients we serve – people living with ALS, their loved ones and their professional caregivers. The goal was to…

The Light in the Piazza Star Aaron Lazar Announces ALS Diagnosis

January 2, 2024

Broadway actor Aaron Lazar announced that he has been diagnosed with amyotrophic lateral sclerosis (ALS). Also known as Lou Gehrig’s Disease, the condition is neurodegenerative, affecting the brain and the…

Broadway Veteran Announces ALS Diagnosis: “A Divine Opportunity Disguised as an Impossible Situation”

January 1, 2024

Broadway actor Aaron Lazar recently announced that he has been diagnosed with ALS. He made the announcement on the Carefully Taught Podcast with host Matthew Teague Miller. Lazar has performed in the…

Caregivers Helped Us Be a Family. Everyone Should Have That Option.

January 1, 2024

Rachael King, Wife of Ady Barkan “My 7-year-old son, Carl, realized that it was Tuesday and asked why Robert was not coming to our house that day. Robert had been…

January 2024 | Monthly eNewsletter from ALS Golden West

January 1, 2024

Our January eNewsletter is in your inbox now or you can view it online! This month, we celebrate another year of progress and achievements with our 2023 Year in Review.…