News & Stories

Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.

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The Light in the Piazza Star Aaron Lazar Announces ALS Diagnosis

January 2, 2024

Broadway actor Aaron Lazar announced that he has been diagnosed with amyotrophic lateral sclerosis (ALS). Also known as Lou Gehrig’s Disease, the condition is neurodegenerative, affecting the brain and the…

Broadway Veteran Announces ALS Diagnosis: “A Divine Opportunity Disguised as an Impossible Situation”

January 1, 2024

Broadway actor Aaron Lazar recently announced that he has been diagnosed with ALS. He made the announcement on the Carefully Taught Podcast with host Matthew Teague Miller. Lazar has performed in the…

Caregivers Helped Us Be a Family. Everyone Should Have That Option.

January 1, 2024

Rachael King, Wife of Ady Barkan “My 7-year-old son, Carl, realized that it was Tuesday and asked why Robert was not coming to our house that day. Robert had been…

January 2024 | Monthly eNewsletter from ALS Golden West

January 1, 2024

Our January eNewsletter is in your inbox now or you can view it online! This month, we celebrate another year of progress and achievements with our 2023 Year in Review.…

2023 Our ALS Community Stories

December 31, 2023

Thank you for your strong support of the ALS community this year. You are the reason that ALS Golden West serves more people living with ALS than ever, raises greater awareness…

Running Bitcoin with Fran Finney

December 29, 2023

Fran Finney is the widow of the legendary Hal Finney, who received the first Bitcoin transaction. In this interview, WBD 754 and Fran discuss her husband’s impact, their life together,…

Spotlight on … Ryan Farnsworth

December 15, 2023

A California native, Ryan Farnsworth was diagnosed with ALS in 2015 at the age of 29. Before his diagnosis, Ryan lived with his dad amongst the majestic mountains in Telluride,…

December 2023 | Monthly eNewsletter from ALS Golden West

December 9, 2023

Our December eNewsletter is in your inbox now or you can view it online! This month, we are celebrating unparalleled leadership from CEO Fred Fisher, who will become Golden West’s…

Fred Fisher – An Unparalleled Leader

December 8, 2023

Following more than two decades of leadership, ALS Golden West’s president and CEO, Fred Fisher, MSW, LCSW, will become the organization’s first President Emeritus effective February 1, 2024. As part…