News & Stories

Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.

Be sure to sign up to receive our monthly enewsletter, news updates, and other important information from the ALS Network. For any media inquiries, please access this dedicated page

Spotlight On…Rusty Selix Healthcare and ALS Advocate

November 7, 2018

“Like the morning sun you come and like the wind you go.”– from “Uncle John’s Band” by the Grateful Dead.  Throughout his life, Russell “Rusty” Selix has been told by…

The ALS Association Golden West Chapter to Honor Nanci Ryder with 2018 Walk Hero Award at the 16th Annual Los Angeles County Walk to Defeat ALS® on Sunday, November 4

September 1, 2018

The ALS Association Golden West Chapter is proud to announce that Nanci Ryder will be the recipient of the 2018 Walk Hero Award at the 16th annual Los Angeles County…

Spotlight on: Dwight Clark and the San Francisco 49ers

June 8, 2018

On June 4, 2018, the world lost the beloved NFL legend, San Francisco 49ers Dwight Clark, to ALS. On the day of his passing, his wife, Kelly, announced the sad…

Eric Amador

Noted Chef Robert Irvine to present inaugural Walk Hero Award to Veteran with ALS at Golden West Central Valley Walk to Defeat ALS®

October 19, 2016

This year, The ALS Association Golden West Chapter is debuting its Central Valley Walk Hero Award with its inaugural honoree, Senior Chief Eric Amador, at the 15th annual Central Valley…

The ALS Association Golden West Chapter Takes the Ice Bucket Challenge to Raise ALS Awareness and Funding!

August 12, 2014

In the last two weeks, the “Ice Bucket Challenge” has quite literally “soaked” the nation. The public response has been remarkable. People who have never before heard of ALS are…

The Golden West Chapter Honors Veterans Living with ALS/Lou Gehrig’s Disease

November 10, 2013

Military veterans are twice as likely as the general public to be diagnosed with amyotrophic lateral sclerosis (ALS, also known as Lou Gehrig’s Disease), regardless of whether they served at…

After an Epic Journey of 10,000 Miles, in Two Weeks, with Four Guys, in  One Car — The PanAmerica Returns to California

August 10, 2013

When Gary Galene’s father, Gilles, lost his battle with ALS in November 2012, he and his family found themselves unable to do an early return of Gilles’ leased 2011 Porsche…

Diane Winokur sworn in and will be the recipient of 2013 Lifetime Achievement Award

January 16, 2013

San Francisco, California. (January 16, 2013) — In a small ceremony, surrounded by friends and supporters, Golden West Chapter Board Member Diane Winokur has been sworn in by California’s Lieutenant…

Dr. Richard K. Olney, founding director of the ALS Center at UCSF, dies after an eight-year battle with Lou Gehrig’s Disease. 

January 30, 2012

On Friday January 27, 2012,  the ALS community lost a member whose commitment to cutting-edge research,  and personal dedication to help people living with Lou Gehrig’s disease was unparalleled. A…