News & Stories
Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.
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Spotlight on… Maya Bunch
Born and raised in Fresno, CA, Maya Bunch grew up in a large family full of love and energy. Her parents raised six children, including Maya, her four sisters, and…
New Resource: Helping You Navigate Everyday Movement with Greater Confidence
Some of the most challenging moments in ALS aren’t the milestones, they’re the everyday movements. Getting out of bed. Getting into the shower. Moving safely from one place to another.…
This ALS Awareness Month – Shop with Purpose to Cure ALS
Now through May 10, shop brands including Aroma360, Johnnie-O, and Buki through our Boundless Giving partnership, and a portion of every purchase will support ALS care, advocacy, and research. We’re deeply grateful…
ALS Advocates Drive Momentum on Capitol Hill During ALS Awareness Month
May is ALS Awareness Month, and ALS Network advocates met with members of Congress in Washington, D.C. this week, sharing personal stories and expertise to highlight how federal policies affect…
Honoring Steve Ellis: A Legacy That Lives On
Some stories don’t end, they continue to expand When Steve Ellis was diagnosed with ALS, he chose to share his journey openly, helping others feel less alone and more supported…
Transforming What Comes Next: Dr. Leonard Petrucelli Honored with Prestigious Sheila Essey Award for ALS Research
The ALS research landscape continues to advance because of bold thinkers and this year, one of the most influential among them has been recognized on a global stage. Leonard Petrucelli,…
No one fights ALS alone. Join us this May!
Dear Friends, Three years ago, I got a call and everything changed in an instant. My close friend, Geoff, had been diagnosed with ALS. From that moment, everything changed —…
ACT for ALS Reauthorization Act Introduced in the Senate
ALS Network applauds the bipartisan legislation to sustain momentum in ALS research and access to investigational therapies LOS ANGELES — May 1, 2026 — The ALS Network today announced its…
Meet Your New ALS Network Board Member and Advisory Trustees
This year, we welcome four new individuals serving in volunteer leadership roles, including Scean Ellis, a new member of our Board of Directors and multiple Advisory Trustees including Hunter Doohan,…
Articles from ALS News Today
ALS News Today is a digital platform intended to provide the ALS community with the most recent news and information on ALS, as well as first-hand community perspectives from their patient and caregiver columnists.