News & Stories
Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.
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The Hollywood Reporter: One of Eric Dane’s Final Roles Was Boosting Visibility for ALS: “Used His Platform Not for Attention, But for Action”
Eric Dane still has some posthumous performances to be released, but the role he took on in his final year will be remembered as the most impactful. After the Grey’s Anatomy and Euphoria actor publicly announced his…
ABC7: Actor Eric Dane’s unwavering advocacy for ALS was the most powerful role of his career
LOS ANGELES (KABC) — Actor Eric Dane, best known for his roles on “Grey’s Anatomy” and “Euphoria,” lost his battle with ALS 10 months after publicly sharing his diagnosis. Dane, however, continued to…
Spotlight on… the Ellis Family
The Ellis family lived a fond life as a family of three: Stephen (Steve), Scean, and their daughter, Kennedy. Based in Los Angeles, California, Steve and Scean found work in…
ALS Network Welcomes ALStogether Slack Community, Expanding Digital Support and National Reach
The ALS Network is honored to welcome ALStogether into our family of support. In addition to the press release below, please read a message from ALStogether founder Brooke Eby to Slack community…
A Message From ALStogether Founder, Brooke Eby
Hi my fellow ALStogetherers, First things first, a huge THANK YOU for being a part of this community. When my team and I thought of the concept of ALStogether, this…
A Journey Through ALS
After being diagnosed with ALS in 2023, Steve Ellis partnered with the ALS Network to share his story, raise awareness, and support others facing the disease. Alongside his loved ones,…
2026 ALS Network Research Summit & Our Next ASK ME
The 16th annual ALS Network Research Summit (formerly the California ALS Research Summit) brought together over 200 researchers, clinicians, biotech representatives, government officials, partner organizations, and advocates in ALS and…
A Night of Inspiration: 2026 Champions for Cures and Care
The 2026 Champions for Cures and Care gala was an inspirational night recognizing the power and commitment of the ALS community. The event, hosted at the Pasadena Convention Center, celebrated…
Bionews: Rare Disease Community Scholarship
In celebration of Rare Disease Day, Bionews is launching the Community Connection Travel Scholarship, awarding two scholarships (up to $2,500 each) to help rare disease patients or caregivers attend advocacy or…
Articles from ALS News Today
ALS News Today is a digital platform intended to provide the ALS community with the most recent news and information on ALS, as well as first-hand community perspectives from their patient and caregiver columnists.