News & Stories
Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.
Be sure to sign up to receive our monthly enewsletter, news updates, and other important information from the ALS Network. For any media inquiries, please access this dedicated page.
January 2025 | Monthly eNewsletter from ALS Network
Our January eNewsletter is in your inbox now, or you can view it online! This month, we celebrate our progress and achievements together Join us as we reflect on our…
Los Angeles Area Fire Update
Hello everyone, As you may know, individuals and families in the Los Angeles area are experiencing devastating wildfires. Our hearts are heavy at this time of profound loss for…
Wildfire Information
ALS Network care services and community outreach staff are actively connecting with our families impacted by wildfires to assess their safety and well-being. Emergency support is being offered for our…
CA Taxpayers Can Now Fund ALS Research – Use Code 447 on CA Income Tax Returns
Brain health is everyone’s issue! This year, California taxpayers can support the search for effective treatments and cures for ALS, and related neurodegenerative diseases like Parkinson’s, Alzheimer’s and FTD via…
Aaron Lazar – a champion in the ALS community
Award-winning actor, singer, speaker, and advocate Aaron Lazar has exemplified a resilience that reminds us of the power we have to make the impossible possible, encouraging us all to “dream…
Grammy Award Winners and Nominees to be Honored by ALS Network on January 17
December 23, 2024 SAN FRANCISCO – The ALS Network announces its annual Champions for Cures and Care on Friday, January 17, 2025, at the Hyatt Regency San Francisco. This elegant…
Servicios de Cuidado / Care Services
Cada persona con ELA que se registra con la ALS Network es conectada a servicios de atención personalizados. Vea este video para obtener mas información sobre nuestros programas y servicios.…
TEN NONPROFITS PARTNER TO ACCELERATE URGENT SEARCH TO CURE ALS
The ALS Network and ALS United organizations announce national collaboration. December 17, 2024 – FOR IMMEDIATE RELEASE LOS ANGELES – In an unprecedented collaboration, nine ALS organizations have joined with…
Private Medicare required to cover Biogen’s ALS drug by US Agency
Private insurers are now required to cover Biogen’s ALS FDA approved drug, Qalsody, by the Centers for Medicare & Medicaid Services (CMS) following reports of coverage denials. Previously, Medicare Advantage…