News & Stories
Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.
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Springer Nature Link: Racial Disparities in the Diagnosis and Prognosis of ALS Patients in the United States
Recently studies have shown ALS in the United States to be more commonly diagnosed in White males over 60 years of age. Previous epidemiologic studies addressing racial variation in ALS…
Addressing Inequities in ALS Healthcare: The Critical Need for Diversity in Research
ALS affects individuals across all backgrounds, yet representation in ALS research has long been skewed. Data reveals that approximately 95% of participants in previous ALS clinical trial studies were Caucasian,…
2025 Running Bitcoin Challenge
The Running Bitcoin Challenge combines Hal Finney’s love of running and Bitcoin to raise funds and awareness to help end ALS, which claimed his life. Since 2021, Hal’s wife, Fran…
2025 ALS Network Research Summit & Barber Award Winners
The 15th annual ALS Network Research Summit (formerly the California ALS Research Summit) convened more than 200 researchers, investigators, clinicians, biotech companies, government representatives, partner organizations, and advocates in ALS…
Celebrating Black History Month
Our ALS community celebrates and uplifts the voices of Black individuals affected by ALS. Together, we can create a more inclusive environment in care, research, and advocacy. Throughout February we…
Los Angeles Area Fire Update
Hello everyone, As you may know, individuals and families in the Los Angeles area are experiencing devastating wildfires. Our hearts are heavy at this time of profound loss for…
Wildfire Information
ALS Network care services and community outreach staff are actively connecting with our families impacted by wildfires to assess their safety and well-being. Emergency support is being offered for our…
CA Taxpayers Can Now Fund ALS Research – Use Code 447 on CA Income Tax Returns
Brain health is everyone’s issue! This year, California taxpayers can support the search for effective treatments and cures for ALS, and related neurodegenerative diseases like Parkinson’s, Alzheimer’s and FTD via…