News & Stories
Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.
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Celebrating Pride Month and Honoring 10 Years Since Obergefell v. Hodges
June is Pride Month, and this year marks the 10th anniversary of a pivotal milestone in LGBTQ+ and civil rights history. On June 26, 2015, the U.S. Supreme Court issued…
Eric Dane Reveals His Right Arm No Longer Works Amid ALS Battle
Eric Dane just revealed in April that he’d been diagnosed with amyotrophic lateral sclerosis (ALS), but he’s already lost function in his right arm and worries about weakness on his left side and…
June 2025 | Monthly eNewsletter from ALS Network
Our June eNewsletter is in your inbox now, or you can view it online! This month, we honor Pride Month, Lou Gehrig Day and the ALS community! Please check our…
Celebrating the 5th Annual Lou Gehrig Day and the ALS Community
The ALS Network is honored to celebrate the 5th annual Lou Gehrig Day and our continued partnership with Major League Baseball in paying tribute to Lou Gehrig’s enduring legacy and…
Collaborating for Change at the 2025 ALS Community Summit
On May 7–10, 2025, representatives from the ALS Network joined other nonprofit organizations at the second annual ALS Community Summit, hosted by I AM ALS in Washington, D.C. This four-day…
New 2025 Barber Award Winners Named
The ALS Network presented four researchers with the Barber Research Award during the UC ALS Reinvigorating Innovation in ALS Research workshop on May 15-16. From left to right: Julie Smeyers,…
CNN: Harvard expert warns of danger to key public health research as a result of funding cuts
In response to federal research funding cuts, Marc Weisskopf, a professor in the Environmental Health Department at Harvard’s T.H. Chan School of Public Health, states, “It poses a tremendous threat…
2025 Sheila Essey Award for ALS Research Recipients
Left to Right: Sheri Strahl, MPH, MBA, President and CEO, ALS Network; Christopher J. McDermott, MBChB, FRCP, PhD, University of Sheffield; Neil A. Shneider, MD, PhD, Columbia University; Jim Essey,…
Neuroscience News: ALS Drug Shows Unprecedented Recovery in Patients With Rare Mutation
A groundbreaking experimental therapy for a rare, aggressive form of ALS caused by FUS gene mutations has produced surprising clinical improvements in some patients, including restored mobility and extended survival.…