News & Stories

Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.

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ALS NETWORK ANNOUNCES RESEARCH FUNDS AWARDED TO LIVERMORE LAB FOUNDATION

May 16, 2025

Researchers to Analyze Medication Effects on Development and Progression of ALS and Parkinson’s Diseases LOS ANGELES – The ALS Network, formerly ALS Golden West, in partnership with the ALS CURE…

The ALS Network joins ALS United and partners across the nation to expedite solutions to advance the fight against ALS

May 3, 2025

This week, several ALS organizations came together in Washington, D.C. to expedite solutions to advance the fight against ALS in the current policy environment. We have committed to leverage our…

Our ALS Community Features

May 1, 2025

Meet our ALS community’s incredible individuals, including our steadfast volunteers, researchers, advocates. Meet Cherryl Fluke, JD, Executive Vice President of Mission Advancement, ALS Network Meet Cherryl Fluke, JD, Executive Vice…

ALS News Today: Brain-computer Interface to Restore Speech Named Award Winner

April 28, 2025

A neurosurgeon and his team from the University of California (UC) Davis Health have won The Herbert Pardes Clinical Research Excellence Award — given by the nonprofit Clinical Research Forum — for…

AP News: Chicago Bears Great Steve McMichael Dies at 67 After Battle with ALS

April 23, 2025

CHICAGO (AP) — With his massive frame and larger-than-life persona, Steve McMichael was natural for the gridiron and the squared circle. The man known as “Mongo” and “Ming The Merciless”…

The ALS Network Honors the Life and Legacy of John Krave

April 21, 2025

A former ALS Network board chair, John Krave passed away on March 25, 2025, following a prolonged battle with pancreatic cancer. He was integral to the growth and evolution of…

ALS News Today: First Patient Dosed in a Phase 1 Study Testing AMX0114 in ALS

April 21, 2025

The first patient has been dosed in a Phase 1 clinical study testing AMX0114, an experimental therapy being developed by Almylyx Pharmaceuticals for amyotrophic lateral sclerosis (ALS). The treatment targets calpain-2, a protein believed to…

Spotlight on… Sarah Marez

April 18, 2025

Growing up in the small but mighty town of Strathmore, CA, Sarah was one of three children raised by loving parents who taught her resilience and strength. In August 2012,…

Sports Illustrated: Heartfelt Tributes Pour in Following Death of Surf Icon Greg Browning

April 15, 2025

The surfing community lost a great one recently—Greg Browning, a well-loved surfer and filmmaker who positively impacted the lives of many. In 2023, Browning was diagnosed with the heart-wrenching amyotrophic lateral sclerosis…