News & Stories
Our News & Stories section serves as a valuable resource for both the ALS community and media professionals to receive timely updates about ALS, our community, and the ALS Network.
Be sure to sign up to receive our monthly enewsletter, news updates, and other important information from the ALS Network. For any media inquiries, please access this dedicated page.
Meet Your New ALS Network Board Member and Advisory Trustees
This year, we welcome four new individuals serving in volunteer leadership roles, including Scean Ellis, a new member of our Board of Directors and multiple Advisory Trustees including Hunter Doohan,…
Robert Hammer Honored with Lifetime Achievement Award by the ALS Network
SAN FRANCISCO — April 7, 2026 — The ALS Network is proud to announce Robert Hammer has been named the recipient of the Lifetime Achievement Award, recognizing his commitment to…
Spotlight on… Carson Lee
Meet Carson Lee, a junior at De La Salle High School, Diablo, CA resident, and brother-in-law to Alyssa Jeswald-Lee, who lived with ALS for four years. When Alyssa was diagnosed…
April is Volunteer Appreciation Month
Volunteers provide help and hope to people living with ALS and their loved ones in many meaningful ways — from supporting community outreach events and raising critical funds to advocating…
2026 MLB Lou Gehrig Day With the ALS Network
Each June 2 and throughout the month of June, we honor the legacy of Lou Gehrig and all those impacted by ALS. We look forward to our annual partnership with…
Keeping Hope High – An ALS Network and MMD Partnership
The ALS Network is proud to partner with MMD Shops, a leading California cannabis retailer, and a few of their top brand partners Heavy Hitters, Papa & Barkley, and Almora,…
End the Legacy’s 2026 Genetic ALS & FTD Community Summit
After two incredible summits in 2024 and 2025, End the Legacy’s 2026 Genetic ALS & FTD Community Summit is returning to Sacramento, CA, September 24–26, 2026. Hosted by ALS Network,…
Celebrating National Doctors’ Day and Women’s History Month
Monday, March 30 is National Doctors’ Day. Women’s History month is a great opportunity to celebrate women ALS clinicians and scientists. These dedicated individuals work tirelessly for people living with…
Brooke Eby Honored with Advocate of the Year Award
The ALS Network is proud to announce Brooke Eby has been named the recipient of the 2026 Dean and Kathleen Rasmussen Advocate of the Year Award, recognizing her extraordinary commitment…
Articles from ALS News Today
ALS News Today is a digital platform intended to provide the ALS community with the most recent news and information on ALS, as well as first-hand community perspectives from their patient and caregiver columnists.