This week, several ALS organizations came together in Washington, D.C. to expedite solutions to advance the fight against ALS in the current policy environment. We have committed to leverage our individual and collective strengths, reduce duplication of efforts, and ensure that all people living with ALS and their loved ones receive the support they need. Specifically, the group reviewed the recommendations from the recent National Academies of Science, Engineering and Medicine report on making ALS livable. We will work together with the broader ALS community to fulfill the report’s recommendations.
Participating organizations include: ALS Association, ALS United, I AM ALS, Les Turner ALS Foundation, Muscular Dystrophy Association, Northeast ALS Consortium (NEALS)