ALS Awareness Month

My ALS Story: David, Person with ALS

May 21, 2024 Comments Off on My ALS Story: David, Person with ALS

ALS has definitely changed the way that I live my life. There are some activities that I just can’t do anymore, but others that I’ve been finding ways to adapt.…

Hawaii Governor Proclaims May as ALS Awareness Month

May 16, 2024 Comments Off on Hawaii Governor Proclaims May as ALS Awareness Month

The ALS Network is grateful to our ALS ohana for generating ALS awareness throughout May, ALS Awareness Month.  On May 16, 2024, the ALS Network, ALS Foundation of Hawaii, ALS…

My ALS Story: Sharalyn, Person with ALS

May 14, 2024 Comments Off on My ALS Story: Sharalyn, Person with ALS

The daily struggles with ALS start with just getting dressed. My strength and energy are low. Every time I need a new piece of assistive equipment, I get sad that…

My ALS Story: Sam, ALS Caregiver

May 11, 2024 Comments Off on My ALS Story: Sam, ALS Caregiver

Since my wife, Sharalyn, was diagnosed with ALS in August of 2020, we have faced many challenges but found support through the ALS Network (formerly the ALS Association Golden West…

Thousand Oaks officially recognizes ALS Awareness Month

May 8, 2024 Comments Off on Thousand Oaks officially recognizes ALS Awareness Month

This month, the City Of Thousand Oaks officially recognized May 2024 as ALS Awareness month during the 2024 SoCal Ride & Rally to Cure ALS in Newbury Park, CA. The…

Share the facts about ALS!

May 1, 2024 Comments Off on Share the facts about ALS!

The ALS Network and the ALS community recognize ALS Awareness Month by sharing inspiring stories and highlighting current facts about this devastating disease. Below are some informational graphics that YOU…

ALS Awareness Month Proclamations and Activities in Hawaii

May 26, 2023 Comments Off on ALS Awareness Month Proclamations and Activities in Hawaii

The Golden West Chapter is grateful to our ohana on the islands for their continuing efforts to raise ALS awareness throughout ALS Awareness Month. Our ALS families on the island…

ALS Awareness Month is perfect time to sign up for our Walk to Defeat ALS events!

May 26, 2023 Comments Off on ALS Awareness Month is perfect time to sign up for our Walk to Defeat ALS events!

May is #ALSAwarenessMonth, and the perfect time to sign up for one (or more) of our Golden West Chapter Walk to Defeat ALS events! These family-friendly gatherings include wheelchair accessible…

An ALS diagnosis can take months or even years

May 26, 2023 Comments Off on An ALS diagnosis can take months or even years

Did you know that an ALS diagnosis can take months or even years? ALS is often diagnosed by ruling out other diseases. The initial symptoms of #ALS can be quite…

The estimated cost to develop a drug to slow or stop progression is $2 billion.

May 25, 2023 Comments Off on The estimated cost to develop a drug to slow or stop progression is $2 billion.

Did you know there are currently seven drugs approved by the FDA to treat ALS and its symptoms? The estimated cost to develop a drug to slow or stop progression…