ALS Advocacy
At the ALS Network, we deeply value the voices of people living with ALS, their caregivers, and others who have been impacted by this disease. Your experiences and insights are…
A true hero and activist personified, Ady Barkan made an enduring impact on the ALS community that will live on through his significant contributions to healthcare reform. Once described as…
“Like the morning sun you come and like the wind you go.”– from “Uncle John’s Band” by the Grateful Dead. Throughout his life, Russell “Rusty” Selix has been told by…