ALS Advocacy
Texas voters Tuesday approved Proposition 14, which creates a state-funded dementia research facility and sets aside money aimed at prevention of the disease. SJR 3 authorizes the state comptroller to set…
Here’s what’s happening in Washington, D.C., and how you can help safeguard ALS programs and research. Updates Earlier this summer, the President signed H.R. 1 — the “One Big Beautiful…
On July 4, 2025, the budget reconciliation bill, H.R.1, was signed into law. The legislation includes changes to Medicaid, Medicare, and the Affordable Care Act (ACA), putting at risk the…
At the ALS Network, we deeply value the voices of people living with ALS, their caregivers, and others who have been impacted by this disease. Your experiences and insights are…
A true hero and activist personified, Ady Barkan made an enduring impact on the ALS community that will live on through his significant contributions to healthcare reform. Once described as…
“Like the morning sun you come and like the wind you go.”– from “Uncle John’s Band” by the Grateful Dead. Throughout his life, Russell “Rusty” Selix has been told by…