Serving Hawaii’s ALS Community

Everything we do advances the search for effective prevention strategies, treatments, and cures for ALS. The ALS Network provides comprehensive and compassionate care services, free of charge, to people living with ALS and their loved ones throughout the state of Hawaii. Our evidence-based model of care is designed to help people live longer and better with ALS and to engage the ALS community in research that will accelerate scientific discovery and therapy development.

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About the ALS Network in Hawaii

ALSN

Our services include professional care management, access to multidisciplinary ALS clinical care and specialists, monthly support groups and educational programs, loans of durable medical equipment and augmentative communication devices, and opportunities to participate in community outreach, advocacy, and awareness activities.

Our Care Management and Community Outreach staff are available to our ALS ohana throughout Hawaii. They provide vital resources and support for navigating the challenges of living with ALS, and offer essential assistance in the event of emergencies and natural disasters.

Your ALS Network Team in Hawaii

AnnMarie Ingham

AnnMarie Ingham
Associate Director of Community Outreach
808-480-9689

Rex Like

Rex Like
Regional Care Manager
808-219-9036

MC Hoover Negre

Mc Hoover (Mac) Negre
Equipment Program Assistant
808-394-7642

Let’s Walk & Roll to Cure ALS in Hawaii

Registration is now OPEN for the ALS Network's two Walk & Roll to Cure ALS events in Hawaii!

Big Island Walk & Roll

to Cure ALS

Big Island Walk & Roll to Cure ALS

Join us on Sunday, August 18, 2024 for our 2nd annual Big Island Walk & Roll to Cure ALS at Old Kona Airport in Kailua-Kona, Hawaii.

Hawaii Walk & Roll

to Cure ALS

Hawaii Walk & Roll to Cure ALS

Help raise ALS awareness on Saturday, November 9, 2024 at our 12th annual Hawaii Walk & Roll to Cure ALS at Kapiolani Park in Honolulu, Oahu.

These Walk and Roll events include wheelchair-accessible routes, an ALS resource fair, entertainment, food, prizes and giveaways, and a Festival Zone with activities for all ages. Registration is free, while fundraising and philanthropy through the Hawaii and Big Island Walks provides critical funding for essential care services, important public policy initiatives, and cutting-edge research.

If you are interested in sponsorship opportunities for the Walk and Roll to Cure ALS program, or other events throughout Hawaii, please contact AnnMarie Ingham, Associate Director, Community Outreach at HIWalk@alsnetwork.org or (808) 480-9689.

Funds raised in Hawaii are used to support our Hawaii programs and services.

“I didn’t know what ALS was before I was diagnosed. At first, it was like the whole world dropped out for me and my family. I used to be able to sing with my choir, before I lost my voice to the disease.

I have always participated in various community service activities, and I am always happiest when I give back to others. I am so grateful for my children and grandchildren.”

Elizabeth Corpuz Sy, living with ALS since 2020

“Our mother is loving, caring, and very giving. She donates a lot of her money to family in the Philippines and the community. She has sacrificed a lot for our family.

Since forever, she used to always add “HECS4Ever,” below her signature on letters and notes, which stands for “Honestly Elizabeth Corpuz Sy Forever.” So we thought she'd like that to be our team name.

Mama is a warrior. We are Walking to raise awareness and support, so no one else has to face this disease.”

-Maria Sy-Rondaris,
Team Captain, Team HECS4EVR

Be sure to register for our monthly enewsletter and receive news updates and other highlights from the ALS Network. You can also subscribe to our social media channels and networks.

For any media inquiries, please contact us at media@alsnetwork.org or call our media hotline 415-967-2572.

Hawaii Recap (3)

Celebrating ALS Awareness Month in Hawaii

Lei Of Remembrance (1)

Honoring our loved ones and ‘ohana at the annual Lei of Remembrance

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Hawaii Governor Proclaims May as ALS Awareness Month

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Advancing Research and Care in Hawaii

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Benioffs donate $150M to Hilo and Straub medical centers

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My ALS Story – The Sy Ohana

Special Message

A special message about the Hawaii fires and the ALS community

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ALS Awareness Month Proclamations and Activities in Hawaii

John N Mary At Home

Spotlight on… Mary and John Patterson

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Spotlight On… The History of Supporting Hawaii’s ALS Community

Jose Fajardo Spotlight

A message from …. José Fajardo: There is hope to end ALS

We invite you to take part in our many upcoming events in Hawaii:

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Connect, Support, Chat: All-Hawaii

Connect, Support, Chat: All-Hawaii at Leihano Senior Center (739 Leihano St, Kapolei, HI 96707). This group will also be offered via Zoom. Please contact Regional Care Manager Rex Like, MA…

Recurring

Connect, Support, Chat: All-Hawaii

Connect, Support, Chat: All-Hawaii at Leihano Senior Center (739 Leihano St, Kapolei, HI 96707). This group will also be offered via Zoom. Please contact Regional Care Manager Rex Like, MA…

Recurring

Connect, Support, Chat: All-Hawaii

Connect, Support, Chat: All-Hawaii at Leihano Senior Center (739 Leihano St, Kapolei, HI 96707). This group will also be offered via Zoom. Please contact Regional Care Manager Rex Like, MA…

Recurring

Connect, Support, Chat: All-Hawaii

Connect, Support, Chat: All-Hawaii at Leihano Senior Center (739 Leihano St, Kapolei, HI 96707). This group will also be offered via Zoom. Please contact Regional Care Manager Rex Like, MA…