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Black Patients with ALS Face Significant Diagnostic Delays, Large Study Confirms

February 4, 2021 Comments Off on Black Patients with ALS Face Significant Diagnostic Delays, Large Study Confirms

A new study found that Black patients with amyotrophic lateral sclerosis (ALS) experienced longer delays to being diagnosed with ALS than White patients. Societal determinants of health, such as disparities in access to care, may play a role, independent sources said. Although they had a longer median survival, Black patients with amyotrophic lateral sclerosis (ALS)…

The Golden West Chapter Honors Biogen with the Essey Commitment to Cures Award

November 19, 2020 Comments Off on The Golden West Chapter Honors Biogen with the Essey Commitment to Cures Award

The Golden West Chapter presents the Essey Commitment to Cures Award to individuals and companies who champion drug discovery and development in the relentless pursuit of treatments and cures for people with ALS and related diseases. The Chapter is proud to recognize Biogen with the Essey Commitment to Cures Award for its development of a…

The ALS Association Support Paved the Way for Antisense Therapy

November 2, 2020 Comments Off on The ALS Association Support Paved the Way for Antisense Therapy

Antisense oligonucleotide (ASO) therapy is a groundbreaking concept that has drastically changed the gene therapy landscape. In the 12 years since the first study was initiated in ALS, ASO therapy has fuelled clinical trials in many different diseases, including two in ALS targeting SOD1 and C9orf72, the two most common genetic causes of ALS. The…

A loving tribute to Nanci Ryder: Champion for ALS Awareness and Dear Friend

June 12, 2020 Comments Off on A loving tribute to Nanci Ryder: Champion for ALS Awareness and Dear Friend

“My mission in life is not merely to survive, but to thrive; and to do so with some passion, some compassion, some humor, and some style.” – Maya Angelou, American poet, singer, memoirist, and civil rights activist It is difficult to define any person by a single word, especially one who is a trailblazer in…

Sydney Caroll

May 12, 2020 Comments Off on Sydney Caroll

The $6 Challenge Example! Youth Action participant Sydney Carroll donated the few dollars she had in her piggy bank towards fighting ALS and asked that others do the same. Today, the fund that Sydney started with just $6 totals almost $6,000 for ALS research – and it continues to grow.

Our tribute to Mari Winsor: Fitness icon, powerful ALS advocate, and a dear friend

April 30, 2020 Comments Off on Our tribute to Mari Winsor: Fitness icon, powerful ALS advocate, and a dear friend

Mari Winsor, an internationally renowned fitness legend who was widely credited with popularizing Pilates and making this once obscure workout accessible to the public, died peacefully at her home surrounded by family and close friends on Tuesday, April 28, 2020, at the age of 70. She had been living with amyotrophic lateral sclerosis (ALS) since…

ALS 101 – Educational Video Series

March 6, 2020 Comments Off on ALS 101 – Educational Video Series

The ALS Association Golden West Chapter is proud to introduce a new educational series, entitled ALS 101 that is intended to serve as a comprehensive overview about the disease. Our deepest thanks to Dallas Forshew, RN, BSN for creating this presentation. As an active member of the Golden West Chapter, Dallas Forshew has served on…

Star’ Trek: Discovery’ ‘s Kenneth Mitchell Reveals ALS Diagnosis: ‘I Can’t Hide It Anymore’

February 28, 2020 Comments Off on Star’ Trek: Discovery’ ‘s Kenneth Mitchell Reveals ALS Diagnosis: ‘I Can’t Hide It Anymore’

Kenneth Mitchell has been diagnosed with amyotrophic lateral sclerosis, or ALS, a debilitating neurological disease that slowly takes away a person’s ability to control his or her muscles. In an exclusive interview with PEOPLE, the Star Trek: Discovery star, 45, opens up about his life-changing diagnosis, how it has affected him and his work, why…

Nanci Ryder, a renown Hollywood publicist and co-founder of BWR Public Relations, was diagnosed with ALS in 2014

February 20, 2019 Comments Off on Nanci Ryder, a renown Hollywood publicist and co-founder of BWR Public Relations, was diagnosed with ALS in 2014

Nanci Ryder, a renown Hollywood publicist and co-founder of BWR Public Relations, was diagnosed with ALS in 2014. From then on, she worked tirelessly to raise public awareness, and to advance the search for effective treatments and cures. During her battle with ALS, her loved ones watched their vibrant friend, who was never shy about…

A Sad Update About Our #VoiceYourLove Ambassador, Ryan Farnsworth

February 19, 2019 Comments Off on A Sad Update About Our #VoiceYourLove Ambassador, Ryan Farnsworth

It is with heavy hearts that we share the news that Ryan Farnsworth, whose story is featured as a part of our #VoiceYouLove campaign, died Tuesday evening surrounded by his family. Ryan was diagnosed with ALS in October 2015, at the age of 29. Soon after, he and his family connected with The ALS Association…