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Luis Borba was admired by many and was often referred to as “Uncle Louie,” from many family and friends. Luis developed a life in the Central Valley, and worked on a dairy farm in his early adulthood years. About two years before a formal diagnosis, Luis began experiencing problems swallowing, weakness in his hands, and…
ALS Golden West hosted the 2nd annual Central Coast Ride and Rally to Defeat ALS on Saturday, September 16, 2023 at Bang the Drum Brewery in San Luis Obispo. The Fall event brought incredible energy and an outpouring of support for those affected by ALS in the Central Coast. Participants joined members of the ALS…
Our September eNewsletter is in your inbox now or you can view it online! This month, we are highlighting Hawaii’s ALS community, the Hawaii Walk to Defeat ALS, and the efforts of many dedicated supporters and caring volunteers who helped launch the Hawaii Walk to Defeat ALS in 2013. Please check our calendar for upcoming…
Our deepest gratitude to Golden West supporter Tom Horton, who participated in his 17th Catalina Classic Paddleboard Race to Defeat ALS on August 27, 2023. The annual Catalina Classic Paddleboard Race is a 32-mile “marathon,” which starts at Catalina’s Isthmus Cove and ends at the Manhattan Beach Pier. Tom had initially participated in the race…
At the annual National ALS Registry Research Symposium, hosted by the Centers for Disease Control and Prevention (CDC), there was a special presentation on mapping to better understand the registry’s data, featuring the work of our 2023 ALS Hero, Pat Dolan.
The viral ALS Ice Bucket Challenge a few years ago raised major funding that resulted in the discovery of new genes connected to the disease. One of those genes is NEK1, in which mutations have been linked to as much as 2% of all ALS cases, making it one of the top-known causes of the…
On Wednesday, September 27, 2023, the FDA will host a public advisory committee meeting (AdComm) for BrainStorm Cell Therapeutics’ stem cell therapy NurOwn for the treatment of ALS. The public is invited to attend the AdComm meeting via YouTube. A panel of experts will review and evaluate the data provided by BrainStorm about NurOwn’s safety…
In 2020, Elizabeth Sy was diagnosed with ALS. After learning more about the disease, the Sy family connected with ALS Golden West for services and support. The Sy family also got involved in the ALS community and participated in the 2022 Hawaii Walk to Defeat ALS. Elizabeth’s family and team, Team HECS4EVR, has worked to…
Born in Canada, Gary Jarrett was the youngest of five kids who spent the majority of his childhood in Southern California. In 1973 the family moved to the Central Coast area where his dad started “Ed’s Mobile Homes” in Nipomo. Gary met Christine when he was 13 years old and she was 11, living in…
Members of Southern and Central California’s ALS community enjoyed an evening of togetherness and awareness on Tuesday, August 29 at Dodger Stadium. Golden West partnered with the Los Angeles Dodgers and Major League Baseball to gather hundreds of people with ALS, their caregivers, family members, friends, as well as others impacted by ALS for an…