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Save the date and join the ALS Network at the 2025 Swing to Find a Cure for ALS 13th Annual Golf Tournament hosted by the Martha Olson-Fernandez Foundation (MOFF). The event begins at 9:30 a.m. on Saturday, May 17. MOFF is committed to funding innovative research that aims to develop effective treatments and ultimately find…
Fat molecules called polyunsaturated fatty acids, or PUFAs, can help lessen nerve damage in amyotrophic lateral sclerosis (ALS), according to a study of fruit flies and cell models. Previous studies have shown that consumption of omega-3 fatty acid, a type of PUFA, is associated with a lower risk of developing ALS as well as slower…
Join the ALS Network for the 2025 Community Summit hosted by I AM ALS on May 7-10, 2025 in Washington, D.C. ALS Network is proud to once again sponsor this event, attended by volunteers and staff members who will gather with ALS community advocates to learn from each other, connect, heal, and mobilize. You can…
AP News: Roberta Flack, Grammy-winning ‘Killing Me Softly’ singer with an intimate style, dies at 88
Roberta Flack, the Grammy-winning singer and pianist whose intimate vocal and musical style made her one of the top recordings artists of the 1970s and an influential performer long after, died Monday. She was 88.
(PDF link) The Honorable Matthew J. Memoli, M.D., M.S.Acting DirectorNational Institutes of Health9000 Rockville Pike,Bethesda, Maryland 20892 Re: NOT-OD-25-068: Supplemental Guidance to the 2024 NIH Grants Policy Statement: Indirect Cost Rates Dear Acting Director Memoli, On behalf of the approximately 300,000 Americans living with a neuromuscular disease (NMD), the undersigned 40 patient advocacy organizations strongly…
Ten years after ‘Still Alice’ the film’s co-writer/director tells the story of his ailing partner’s own heartbreaking struggle to survive and see their longshot project through to its glorious end.
Growing up in the small but mighty town of Strathmore, CA, Sarah was one of three children to her wonderful parents who taught her resilience and strength. With what started as a weakness in the arm about a year prior, in August 2012, Sarah’s father, Robert Arellano, was diagnosed with ALS, pushing her and her…
Our February eNewsletter is in your inbox now, or you can view it online! As we move into Black History Month, we celebrate and recognize the achievements and contributions of Black individuals in our community. Join us this month for ASK ME: ALS Research and Care in 2025 and Rare Disease Day. We also invite…
February 6, 2025 Following a comprehensive planning process, 15 independent nonprofit organizations from around the country have formalized ALS United, an innovative partnership dedicated to serving the ALS community. This new nonprofit membership organization is committed to serving the ALS community in a collaborative approach by providing comprehensive local care and support to individuals and…
Alongside incredible ALS advocates and colleagues, the ALS Network had impactful discussions on public policy priorities for the ALS community at the More Than Our Stories conference – a grassroots approach to emphasize the importance of research and advocacy in collaboration with other ALS organizations. We were honored to connect with dedicated members of Congress…