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Wildfire Information

January 8, 2025 Comments Off on Wildfire Information

ALS Network care services and community outreach staff are actively connecting with our families impacted by wildfires to assess their safety and well-being.  Emergency support is being offered for our affected families while our connection support groups, equipment loan program, and other resources remain available. For details about local support needs, please contact your care…

CA Taxpayers Can Now Fund ALS Research – Use Code 447 on CA Income Tax Returns

January 2, 2025 Comments Off on CA Taxpayers Can Now Fund ALS Research – Use Code 447 on CA Income Tax Returns

Brain health is everyone’s issue! This year, California taxpayers can support the search for effective treatments and cures for ALS, and related neurodegenerative diseases like Parkinson’s, Alzheimer’s and FTD via the California ALS Research Network Voluntary Tax Contribution Fund. The fund was created by Assembly Bill 511(AB 511) allowing Californians filing their state income taxes…

Aaron Lazar – a champion in the ALS community

December 30, 2024 Comments Off on Aaron Lazar – a champion in the ALS community

Award-winning actor, singer, speaker, and advocate Aaron Lazar has exemplified a resilience that reminds us of the power we have to make the impossible possible, encouraging us all to “dream the impossible dream.” Honored with the ALS Network’s 2024 Essey Spotlight Award at our Champions for Cures and Care gala in January, Lazar continues to…

Grammy Award Winners and Nominees to be Honored by ALS Network on January 17

December 23, 2024 Comments Off on Grammy Award Winners and Nominees to be Honored by ALS Network on January 17

December 23, 2024 SAN FRANCISCO – The ALS Network announces its annual Champions for Cures and Care on Friday, January 17, 2025, at the Hyatt Regency San Francisco. This elegant evening will bring together the ALS community to honor the individuals and organizations making a significant effort to advance the ALS Network’s mission related to…

Servicios de Cuidado / Care Services

December 20, 2024 Comments Off on Servicios de Cuidado / Care Services

Cada persona con ELA que se registra con la ALS Network es conectada a servicios de atención personalizados. Vea este video para obtener mas información sobre nuestros programas y servicios. El nuevo video fue creado para crear conciencia entre las audiencias que hablan inglés y español sobre los programas y servicios de atención locales gratuitos…

TEN NONPROFITS PARTNER TO ACCELERATE URGENT SEARCH TO CURE ALS

December 17, 2024 Comments Off on TEN NONPROFITS PARTNER TO ACCELERATE URGENT SEARCH TO CURE ALS

The ALS Network and ALS United organizations announce national collaboration. December 17, 2024 – FOR IMMEDIATE RELEASE LOS ANGELES – In an unprecedented collaboration, nine ALS organizations have joined with the ALS Network, formerly ALS Golden West, to collectively fund cutting-edge ALS research. The participating organizations include: ALS United Connecticut, ALS United Greater Chicago, ALS…

Private Medicare required to cover Biogen’s ALS drug by US Agency

December 12, 2024 Comments Off on Private Medicare required to cover Biogen’s ALS drug by US Agency

Private insurers are now required to cover Biogen’s ALS FDA approved drug, Qalsody, by the Centers for Medicare & Medicaid Services (CMS) following reports of coverage denials. Previously, Medicare Advantage plans, which covers adults 65 years and older or those with disabilities, were denied coverage under the pretense of the drug being “experimental and investigational.”…

FOX11: LA’s Hailey Winslow on the 2024 Los Angeles Walk & Roll to Cure ALS

December 8, 2024 Comments Off on FOX11: LA’s Hailey Winslow on the 2024 Los Angeles Walk & Roll to Cure ALS

Our deepest gratitude to Hailey Winslow, Susan Hirasuna, and FOX 11 news for your thoughtful segment about the 24th annual Los Angeles Walk & Roll to Cure ALS. We cannot say thank you enough to Hailey for joining us at Dignity Health Sports Park as this year’s emcee, even taking the #ALSIceBucketChallenge, on behalf of…

December 2024 | Monthly eNewsletter from ALS Network

December 6, 2024 Comments Off on December 2024 | Monthly eNewsletter from ALS Network

Our December eNewsletter is in your inbox now, or you can view it online! This month, we celebrate our ALS Network family! Throughout this month, we will showcase members of the ALS community and their dedication to cure ALS together. Join us as we prepare for our LA Walk & Roll to Cure ALS this…

Honoring the Producers of the Impossible Dream Album

December 6, 2024 Comments Off on Honoring the Producers of the Impossible Dream Album

The ALS Network (formerly ALS Golden West) is proud to announce Kitt Wakeley, David Das, and the Producers of the Grammy Award-nominated album, Impossible Dream, as our 2025 Essey Spotlight Award Honorees. The list of esteemed honorees includes the following exceptional team of music industry professionals: Grammy Award winner Kitt Wakeley (pictured left above), David…