Resource Guides for Daily Living

In conjunction with Your ALS Guide, the following is a list of up-to-date and informative resources that address many of the common concerns and issues that face people living with ALS.

Reading all of this information at one time can be overwhelming to those living with ALS and their families. We highly recommend that you only access the information that pertains to your present circumstances.

Once you have reviewed this information, you may have questions and you may want to know where to go for more support. Feel free to contact the ALS Network via our toll-free number at (866)-750-2572 or e-mail

Newly Diagnosed with ALS

This resource provides an overview of ALS, what it is, and how it affects your body. It provides information on what kind of resources are available to help you deal with ALS more effectively.

ALS Home and Daily Living Guide

This practical guide aims to help people living with ALS improve their everyday quality of life and empower both family and paid caregivers with the knowledge, skills, and resources needed to provide the best care possible.

Advance Directives

Advance directives are written documents that you can complete to let everyone know what type of medical treatment you would—or wouldn’t—want in the event of a medical emergency.

Swallowing Changes and Nutritional Management in ALS

This resource will help you understand how swallowing is affected by ALS and what you can do to maintain nutrition for energy and strength and to keep your airway open.

Changes in Speech and Communication Solutions

This resource guide covers how speech can be affected by ALS and explores a variety of techniques, technologies, and devices available for improving communication. By maintaining communication with others, you continue to make a significant difference in their lives, while retaining control of your own.

ALS Network provides an Augmentative and Alternative Communication (AAC) Equipment Loan program, free-of-charge, to meet both light tech and high tech needs. This program supports those families who do not have coverage through health insurance, have high-out-pocket deductibles, and/or do not otherwise have the means to pay for it themselves.

ALS Respiratory Guide

Find trusted information and helpful tips relating to ALS respiratory challenges, support, intervention, and equipment.

Resources for Families

ALS Network offers many tools and resources for families facing ALS.