Connect, Support, Chat
Connection groups provide opportunities for people living with ALS and their loved ones to share their personal experiences and learn more about strategies for preserving independence and maximizing quality of life.
All ALS Network groups are facilitated by our professional Care Managers, who have extensive experience in ALS. With many monthly options to choose from, our goal is to provide support that is convenient for you and your loved ones.
What You Can Expect
- Tips and practical solutions for navigating the everyday challenges of living with ALS.
- Resources for exploring options and making decisions throughout the disease process.
- Connection and support from other people living with ALS, caregivers, and loved ones.
Some topic-specific groups we offer include:
- Caregiver/Loved Ones
- Veterans
- Trach and Vent
- Living with ALS Under Age 50
- Familial Diagnosis
- General ALS
- LGBTQIA+
- Español
- Yoga
- Bereavement
Groups are offered free-of-charge and are open to people with ALS, caregivers, family members, and friends.
Questions?
Contact us for more information at 1-866-750-2572 or careservices@alsnetwork.org.
Upcoming Meetings
Calendar of Events
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Apply now for the International Alliance of ALS/MMD Assocaitions New Programs: Virtual Global Clinical Research Learning Institute & Patient Fellows Program. Virtual Global Clinical Research Learning Institute (CRLI): This is… |
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Loved Ones Group: Connect, Support, Chat will not meet this month. The next meeting will be in August. Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining… |
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Save the date for an exciting kickoff and bingo fundraiser on Monday, July 7, at 7pm at Temblor Brewing Company in Bakersfield to benefit the Kern County Walk & Roll… |
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Community: Connect, Support, Chat will not meet this month. The next meeting will be in August. Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia,… 
San Fernando Valley: Connect, Support, Chat Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsnetwork.org |
4 events,
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Adaptive Yoga/Assisted Movement and Guided Meditation will meet on Wednesday, July 9 instead of Wednesday, July 2 this month. Adaptive Yoga for ALS is a fully seated or reclining practice,… 
NorCal Loved Ones: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate! 
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat Please contact Regional Care Manager Josephine Poirier, PT for information on how to participate via Zoom! Facilitator: Josephine Poirier,… |
2 events,
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Trach and Vent: Connect, Support, Chat will not meet this month. The next meeting will be in August. Please contact co-facilitators, Robin Eller or Lauren Leonard for information on how… 
Ventura County Caregiver: Connect, Support, Chat Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsnetwork.org |
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Turlock/Central Valley: Connect, Support, Chat Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843… |
6 events,
Bereavement (am): Connect, Support, Chat An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group… 
Connect, Support, Chat: LGBTQ+ All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion… 
A quarterly online support group specifically for those with a Familial ALS diagnosis. Contact facilitator Cynthia Marks for information on how to participate via Zoom! Cynthia Marks, RT: cmarks@alsnetwork.org; 909-736-5677 |
3 events,
NorCal ALS Community: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate! 
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please contact facilitator Debbie Joy, MHA for information on how to join using… 
Kern County: Connect, Support, Chat Facilitator: Robin Eller, RCP: 818-402-6843 or reller@alsnetwork.org Contact Robin for information on how to participate! This group meets bi-monthly in person, at Brookdale Riverwalk, 350… |
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All-Hawaii: Connect, Support, Chat Please contact Regional Care Manager Josephine Poirier, PT for information on how to participate via Zoom! Facilitator: Josephine Poirier, PT, jpoirier@alsnetwork.org or 808-219-9036 
South Los Angeles: Connect, Support, Chat Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsnetwork.org 
Unpartnered People with ALS: Connect, Support, Chat A connection group for people living with ALS who do not have a partner/spouse on this journey. For more information and to register,… |
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SoCal Community: Connect, Support, Chat Please contact Regional Care Manager Cynthia Marks, RT for information on how to participate using Zoom! cmarks@alsnetwork.org or 909-736-5677 |
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Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
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Ventura/Santa Barbara: Connect, Support, Chat will meet in person this month at Hillcrest Center for the Arts in the community room located at 403 W. Hillcrest Drive, Thousand Oaks, CA 91360.… |
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Monterey Bay: Connect, Support, Chat Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsnetwork.org |
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Pomona: Connect, Support, Chat Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org |
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Connect, Support, Chat: SoCal Loved Ones Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org 
San Francisco and Surrounding Counties: Connect, Support, Chat 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395;… |
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San Luis Obispo: Connect, Support, Chat Please contact facilitator Julie Scurich for information on how to participate via Zoom! Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsnetwork.org |
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This quarterly group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits… 
PLS: Connect, Support, Chat For information on how to participate via Zoom, contact Facilitator: Trung Ton at 510-753-0395 or tton@alsnetwork.org |
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“An ALS support group is really just a camaraderie of amazing people, many of whom are dealing with the same issues, who share information. We form strong friendships with each other and with our families about our shared experiences.”
- Julianne Angel