Connect, Support, Chat
Connection groups provide opportunities for people living with ALS and their loved ones to share their personal experiences and learn more about strategies for preserving independence and maximizing quality of life.
All ALS Network groups are facilitated by our professional Care Managers, who have extensive experience in ALS. With many monthly options to choose from, our goal is to provide support that is convenient for you and your loved ones.
What You Can Expect
- Tips and practical solutions for navigating the everyday challenges of living with ALS.
- Resources for exploring options and making decisions throughout the disease process.
- Connection and support from other people living with ALS, caregivers, and loved ones.
Some topic-specific groups we offer include:
- Caregiver/Loved Ones
- Veterans
- Trach and Vent
- Living with ALS Under Age 50
- Familial Diagnosis
- General ALS
- LGBTQIA+
- Español
- Yoga
- Bereavement
Groups are offered free-of-charge and are open to people with ALS, caregivers, family members, and friends.
Questions?
Contact us for more information at 1-866-750-2572 or careservices@alsnetwork.org.
Upcoming Meetings
Calendar of Events
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1 event,
*CANCELED* Loved Ones Group: Connect, Support, Chat
*CANCELED* Loved Ones Group: Connect, Support, Chat
Connect, Support, Chat: Loved Ones Group will not meet this October. The next meeting will take place on Tuesday, November 5. Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for…
1 event,
Adaptive Yoga/Assisted Movement and Guided Meditation
Adaptive Yoga/Assisted Movement and Guided Meditation
1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted…
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1 event,
2024 Bay Area Peninsula Walk & Roll to Cure ALS
We invite you to join us for the 2024 Bay Area Peninsula Walk & Roll to Cure ALS (formerly the Silicon Valley Walk to Defeat ALS)! Please join us at Coyote…
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0 events,
2 events,
*CANCELED* Community: Connect, Support, Chat
*CANCELED* Community: Connect, Support, Chat
Community: Connect, Support, Chat will not meet this October. The next meeting will take place on Tuesday, November 12. Contact facilitator for information on how to participate via Zoom! Facilitator:…
San Fernando Valley: Connect, Support, Chat
San Fernando Valley: Connect, Support, Chat
San Fernando Valley: Connect, Support, Chat Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsnetwork.org
3 events,
Turlock/Central Valley: Connect, Support, Chat
Turlock/Central Valley: Connect, Support, Chat
Turlock/Central Valley: Connect, Support, Chat Please contact facilitator, Kathleen Kelsey, for information on how to join via Zoom! Kathleen Kelsey, RCP: kkelsey@alsnetwork.org; 818-292-4315
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat Please contact Regional Care Manager Rex for information on how to participate via Zoom! Facilitator: Rex Like, MA rlike@alsnetwork.org;…
NorCal Loved Ones: Connect, Support, Chat
NorCal Loved Ones: Connect, Support, Chat
NorCal Loved Ones: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
2 events,
Trach and Vent: Connect, Support, Chat
Trach and Vent: Connect, Support, Chat
Trach and Vent: Connect, Support, Chat Contact Facilitators: Robin Eller, RCP: 661-364-1913 or reller@alsnetwork.org or Kathleen Kelsey, RCP: (818) 292-4315 or kkelsey@alsnetwork.org for more information about how to participate via…
Ventura County Caregiver: Connect, Support, Chat
Ventura County Caregiver: Connect, Support, Chat
Ventura County Caregiver: Connect, Support, Chat Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsnetwork.org
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5 events,
Bereavement (am): Connect, Support, Chat
Bereavement (am): Connect, Support, Chat
Bereavement (am): Connect, Support, Chat An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group…
Connect, Support, Chat: LGBTQ+
Connect, Support, Chat: LGBTQ+
Connect, Support, Chat: LGBTQ+ All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion…
Familial ALS: Connect, Support, Chat
Familial ALS: Connect, Support, Chat
A quarterly online support group specifically for those with a Familial ALS diagnosis. Contact facilitator Cynthia Marks for information on how to participate via Zoom! Cynthia Marks, RT: cmarks@alsnetwork.org; 909-736-5677
2 events,
NorCal ALS Community: Connect, Support, Chat
NorCal ALS Community: Connect, Support, Chat
NorCal ALS Community: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please contact facilitator Debbie Joy, MHA for information on how to join using…
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2 events,
Riverside County: Connect, Support, Chat
Riverside County: Connect, Support, Chat
Riverside County: Connect, Support, Chat Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org
South Los Angeles: Connect, Support, Chat
South Los Angeles: Connect, Support, Chat
South Los Angeles: Connect, Support, Chat Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsnetwork.org
3 events,
2024 Monterey Bay Walk & Roll to Cure ALS
We invite you to join us for the 2024 Monterey Bay Walk & Roll to Cure ALS (formerly the Monterey Bay Walk to Defeat ALS)! Please join us at El…
*IN PERSON* Walnut Creek/East Bay: Connect, Support, Chat
*IN PERSON* Walnut Creek/East Bay: Connect, Support, Chat
Walnut Creek/East Bay: Connect, Support, Chat is meeting in person this month at Walnut Creek Library at 1644 N. Broadway, CA 94596 in the Las Trampas Conference Room. Contact Facilitator…
Glendale: Connect, Support, Chat
Glendale: Connect, Support, Chat
Glendale: Connect, Support, Chat Please contact Regional Care Manager Cynthia Marks, RT for information on how to participate using Zoom! cmarks@alsnetwork.org or 909-736-5677
1 event,
2024 Inland Empire Walk & Roll to Cure ALS
We invite you to join us for the 2024 Inland Empire Walk & Roll to Cure ALS (formerly the Inland Empire Walk to Defeat ALS)! Please join us at Miller…
0 events,
2 events,
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
*IN PERSON* Ventura/Santa Barbara: Connect, Support, Chat
*IN PERSON* Ventura/Santa Barbara: Connect, Support, Chat
Ventura/Santa Barbara: Connect, Support, Chat will meet in person this month at Hillcrest Center for the Arts in the community room located at 403 W. Hillcrest Drive, Thousand Oaks, CA…
1 event,
*CANCELED* Monterey Bay: Connect, Support, Chat
*CANCELED* Monterey Bay: Connect, Support, Chat
Monterey Bay: Connect, Support, Chat will not meet this October. The next meeting will take place in November. Contact Julie for information on how to participate using Zoom! Facilitator: Julie…
1 event,
Pomona: Connect, Support, Chat
Pomona: Connect, Support, Chat
Pomona: Connect, Support, Chat Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org
4 events,
All-Hawaii: Connect, Support, Chat
All-Hawaii: Connect, Support, Chat
All-Hawaii: Connect, Support, Chat Please contact Regional Care Manager Rex Like, MA for information on how to participate via Zoom! Facilitator: Rex Like, MA rlike@alsnetwork.org 808-219-9036
SoCal Loved Ones: Connect, Support, Chat
SoCal Loved Ones: Connect, Support, Chat
SoCal Loved Ones: Connect, Support, Chat Please contact Regional Care Manager Crystal Galvan, RRT for information on how to participate via Zoom at 747-284-3003 or cgalvan@alsnetwork.org
San Francisco and Surrounding Counties: Connect, Support, Chat
San Francisco and Surrounding Counties: Connect, Support, Chat
San Francisco and Surrounding Counties: Connect, Support, Chat 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395;…
2 events,
2024 Kern County Walk & Roll to Cure ALS
We invite you to join us for the 2024 Kern County Walk & Roll to Cure ALS (formerly the Kern County Walk to Defeat ALS)! Please join us at the Park…
San Luis Obispo: Connect, Support, Chat
San Luis Obispo: Connect, Support, Chat
San Luis Obispo: Connect, Support, Chat Please contact facilitator Julie Scurich for information on how to participate via Zoom! Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsnetwork.org
0 events,
1 event,
Veterans with ALS: Connect, Support, Chat
Veterans with ALS: Connect, Support, Chat
This quarterly group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits…
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“An ALS support group is really just a camaraderie of amazing people, many of whom are dealing with the same issues, who share information. We form strong friendships with each other and with our families about our shared experiences.”
- Julianne Angel