Bereavement Support Program
For family members and friends who have lost a loved one to ALS.
Once a person’s journey with ALS has ended, family members will begin a bereavement process through which they will mourn and face a future without their loved one. The grief process may be very different for each family member, depending on their relationship to the person with ALS. Their closeness to the deceased and their anticipation or preparation for the death will also affect their bereavement process.
Grief is as different for each family member as ALS is for each person living with it. Family members need their own time and space, and relevant support tools to move forward after the loss. As a member of the ALS Network community, we hope that you find some of the resources listed below to be helpful and comforting during this difficult time. If you need additional options for support, please reach out to us at careservices@alsnetwork.org.
Day of Remembrance
Thank you to everyone who joined us on Saturday, March 22, 2025 for the ALS Network's Day of Remembrance to honor loved ones lost to ALS.
Events like this along with our advocacy and fundraising efforts, cannot happen without the support of families sharing their ALS story. If you, or someone you know, is interested in learning more about opportunities to share your loved one’s story with the ALS Community, please reach out to Janelle Webb, Manager, Family Outreach, at dayofremembrance@alsnetwork.org.
If you would like to make a tribute gift in memory of your loved one, please use the “Make a Gift” button below. Donations to the ALS Network are greatly appreciated, 100% tax deductible, and provide essential help and hope to the ALS community.
Our Monthly Connection Group
A monthly meeting on the third Tuesday for anyone grieving the loss of a loved one to ALS.
There are two meetings—the first is at 11:00am PT/9:00am HST and the second is at 3:00pm PT/1:00pm HST.
Contact Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom.
Free Mindfulness and Meditation App
In partnership with a meditation/mindfulness app called Waking Up (wakingup.com), we offer a free six-month subscription for those living with ALS and their caregivers and loved ones. Practicing mindfulness and meditation may help you manage stress and high blood pressure, sleep better, and feel more balanced and connected.
Please contact careservices@alsnetwork.org for the promo code. Once the trial subscription expires, you can renew again for free with the same code.
Tools for Coping through Grief
Myths About Grief
Some of us suffer more because of the myths and unrealistic expectations that society holds about grief.
10 Ways To Cope With Grief
Honor Your Loved Ones Online!
Would you like to honor a loved one diagnosed with ALS? Now you can establish a meaningful online tribute page in honor or memory of your loved one. These pages are customizable with the ability to add photos, text, a custom URL, and more. You can honor your loved one, share the link and invite others to support the ALS community too - create your tribute page today!
Join Team Remember
Created for and by those walking and riding in memory of someone lost to ALS, Team Remember is an opportunity to continue participating and engaging with the ALS community without the full commitment of starting and leading one’s own team.
It can be truly fulfilling to pay tribute to loved ones lost to ALS through Team Remember while knowing your efforts are generating help and hope for those who are still living with ALS today, and for those who will be diagnosed in the future.
Let's remember and celebrate their lives together through our ALS Network Community Outreach Events. These in person and online gatherings empower us to share our many stories, laugh and cry together as a community, and raise important awareness and funds as we urgently pursue improved care and effective treatments and cures to end ALS.
For more information, please Janelle Webb, Manager, Family Outreach at jwebb@alsnetwork.org or at (818) 635-7187.