Bereavement Support Program

For family members and friends who have lost a loved one to ALS.

Once a person’s journey with ALS has ended, family members will begin a bereavement process through which they will mourn and face a future without their loved one. The grief process may be very different for each family member, depending on their relationship to the person with ALS. Their closeness to the deceased and their anticipation or preparation for the death will also affect their bereavement process.

Grief is as different for each family member as ALS is for each person living with it. Family members need their own time and space, and relevant support tools to move forward after the loss. As a member of the ALS Network community, we hope that you find some of the resources listed below to be helpful and comforting during this difficult time. If you need additional options for support, please reach out to us at careservices@alsnetwork.org.

Connect, Support, Chat: Bereavement

Connect, Support, Chat: Bereavement

A monthly meeting on the third Tuesday for anyone grieving the loss of a loved one to ALS.

There are two meetings—the first is at 11:00am PT/9:00am HST and the second is at 3:00pm PT/1:00pm HST.

Contact Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom.

Day of Remembrance - Saturday, March 23, 2024

Day of Remembrance - Saturday, March 23, 2024

Please join us for our Day of Remembrance on Saturday, March 23, at 11:30 AM PDT/8:30 AM HST to honor and remember special friends and loved ones lost to ALS.

Virtual via Zoom · Registration is free

Memories Shared · Music · Memorial Scroll · Connect with the ALS Community

IMPORTANT NOTE: As a part of our program, we welcome you to join others in lighting a candle from wherever you are (safely and drip-free). If you would like to participate, please plan to have a votive, candlestick, or some other light source close by. All participants registered before March 1, 2024 will receive a commemorative votive, courtesy of ALS Network.

If you have any questions or need assistance, please do not hesitate to contact Janelle Webb, Manager, Family Outreach, at jwebb@alsnetwork.org or (818) 635-7187.

There is no cost to attend this event. All gifts to ALS Network are greatly appreciated and provide essential help and hope to the ALS community.

Tools for Coping through Grief

Myths About Grief Abstract

Myths About Grief

Some of us suffer more because of the myths and unrealistic expectations that society holds about grief.

10 Ways To Cope With Grief

Person sitting down holding a pencil and journal

Honor Your Loved Ones Online!

Honor Your Loved Ones Online!

Would you like to honor a loved one diagnosed with ALS? Now you can establish a meaningful online tribute page in honor or memory of your loved one. These pages are customizable with the ability to add photos, text, a custom URL, and more. You can honor your loved one, share the link and invite others to support the ALS community too - create your tribute page today!

Join Team Remember

Join Team Remember

Created for and by those walking and riding in memory of someone lost to ALS, Team Remember is an opportunity to continue participating and engaging with the ALS community without the full commitment of starting and leading one’s own team. 

It can be truly fulfilling to pay tribute to loved ones lost to ALS through Team Remember while knowing your efforts are generating help and hope for those who are still living with ALS today, and for those who will be diagnosed in the future.

Let's remember and celebrate their lives together through our ALS Network Community Outreach Events. These in person and online gatherings empower us to share our many stories, laugh and cry together as a community, and raise important awareness and funds as we urgently pursue improved care and effective treatments and cures to end ALS.

For more information, please Janelle Webb, Manager, Family Outreach at jwebb@alsnetwork.org or at (818) 635-7187.