ASK ME – Educational Webinars

Our ASK ME educational webinar series is an opportunity for people living with ALS and their families to learn more about important topics for the ALS community. This series has been accessed thousands of times through live broadcasts and on-demand via our social media channels. We hope you find much of this content to be relevant and informative.

ASK ME Webinars Hover Card ASK ME ALS Research And Care In 2022 V2

Upcoming Webinar ASK ME: What's New in Speech and Communication Technology

We invite you to join us on Zoom for ASK ME: What's New in Speech and Communication Technology on Tuesday, June 25 at 5:00 PM PDT/2:00 PM HST. We will be joined by Amy Roman, Speech Therapist and AAC Specialist from Forbes Norris ALS Treatment and Research Center.

2024 06 ASK ME Speech And Comm Technology Video
Play Video

Recent Webinar ASK ME: Recap of the Packard Center Annual ALS Research Symposium

Please watch ASK ME: Recap of the Packard Center Annual ALS Research Symposium. We were joined by Dr. Christine Vande Velde, who is the Professor in the Department of Neurosciences at the Université de Montréal and Université de Montréal Hospital Research Center (CRCHUM) and the Scientific Director of the Robert Packard Center for ALS Research at Johns Hopkins.

Past Webinars

Play Video

ASK ME: Home Accessibility and Modification

Please watch our ASK ME educational webinar, ASK ME: Home Accessibility and Modification. We were joined by Alisa Brownlee, ATP, CLIPP, CAPS, WSP, Assistive Technology and Home Modification Specialist at ALS United Mid-Atlantic. Alisa is also the founder of ALS AT Home, offering virtual home assessments for modifications and safety to those diagnosed with ALS and other progressive diseases.


Play Video

ASK ME: ALS Network Town Hall

Please watch our ASK ME educational webinar, “ALS Network Town Hall” to learn about the future of the newly-rebranded ALS Network (formerly the ALS Association Golden West Chapter). Sheri Strahl, ALS Network’s new president and CEO, will discuss her vision for the organization moving forward. Also hear from special guests, including Aaron Lazar, actor, singer, and 2024 Essey Spotlight Award recipient who is living with ALS and using his personal experiences to share messages of hope, healing, courage, and resilience. The program will also include David Buseck and Karen Sutton, ALS Network Board Members who are living with ALS.


Play Video

ASK ME: ALS Research and Care in 2024

Please watch ASK ME: ALS Research and Care in 2024. Learn about the outcomes from our 14th Annual California ALS Research Summit, featuring Clive Svendsen, PhD, Director, Cedars-Sinai Regenerative Medicine Institute and Chair, California ALS Research Network and Jill Goslinga, MD, MPH Assistant Professor, Neurology at UCSF Weill Institute for Neuroscience. The webinar will also include the  2024 Barber ALS Research Award Winners.


Play Video

ASK ME: Genetic Testing and Familial ALS

Please watch our recent ASK ME educational webinar, "Genetic Testing and Familial ALS," featuring guest speakers Tara A. Jones, MS, LCGC, Neurology Genetic Counselor II at Cedars-Sinai and Jean Swidler, Executive Director, End the Legacy.


Play Video

ASK ME: Advocacy in ALS - Why Your Voice Matters

Learn how advocacy efforts benefit the ALS community and how you can become involved from speakers Reyn Archer, MD, Aisling McDonough, and Danny Hartl, as well as Mary Kay Turner, Senior VP of Patient Advocacy with BrainStorm Cell Therapeutics, Inc.

Play Video

ASK ME: ALS Treatments and Therapies

Jeffrey Rosenfeld, MD, PhD, FAAN, Director of Center for Restorative Neurology at Loma Linda University and Namita Goyal, MD, Co-Director of UCI Health ALS & Neuromuscular Center discuss important updates on current ALS treatments and therapies, as well as some that are in the research pipeline.

Play Video

ASK ME: Financial Planning after an ALS Diagnosis

Dan J. Nguyen, Senior Vice President and Private Wealth Advisor from U.S. Bank Private Wealth Management discusses how to manage and protect your personal finances in the event of a challenging life event, such as an ALS diagnosis.

Play Video

ASK ME: ALS Research and Care in 2023

See this special presentation from Clive Svendsen PhD, Catherine Lomen-Hoerth, MD, PhD and the 2023 Barber ALS Research Award winners. This webinar features the outcomes from our 13th Annual California Research Summit and the future impact of ALS care and research.

Play Video

ASK ME: ALS From the Caregiver's Perspective

In celebration of National Family Caregivers Month, please watch our ASK ME webinar featuring Mari Fuentes, who cared for her husband, filmmaker Anton Maillie, and Trish Rice, who cared for her son, writer and poet Ryan Farnsworth.

Play Video

ASK ME: Estate Planning and ALS

See this special presentation from Kate Phelan Lowen, Senior Vice President/Regional Director of Wealth Planning and Trust Advisory at U.S. Bank Private Wealth Management followed by a Q&A. 

Play Video

ASK ME: Inside the ALS Lab with Dr. Justin Ichida, USC

Dr. Ichida has been a strong partner and collaborator with the Golden West Chapter for many years and was honored with our 2017 Essey Commitment to a Cure Award for his outstanding achievements in the fight against ALS.

Play Video

ASK ME: The Importance of Multidisciplinary Care in ALS

Please watch our ASK ME educational webinar featuring the clinic team at the ALS Treatment and Research Center at UCSF.

Play Video

ASK ME: Respiratory Care in ALS

See our ASK ME educational webinar featuring Andrea Eddleman, RCP, RRT at Loma Linda University Health Center.

Play Video

ASK ME: When to Consider Using a Feeding Tube

Watch our ASK ME educational webinar featuring Clinical Dietitians Tanya Bitcon, MS, RD, CNSC and Katherine Goebel, MS, RD, CSP, CNSC with Cedars-Sinai.

Play Video

ASK ME: ALS Research and Care in 2022

Learn about the outcomes from our 12th Annual California ALS Research Summit! The Summit, created and presented by the Golden West Chapter, is an annual gathering of researchers, investigators, clinicians, biotech companies, government representatives, and advocates in ALS and related fields in the state of California.