Highlighting the Importance of Advocacy at the More Than Our Stories Conference

Alongside incredible ALS advocates and colleagues, the ALS Network had impactful discussions on public policy priorities for the ALS community at the More Than Our Stories conference – a grassroots approach to emphasize the importance of research and advocacy in collaboration with other ALS organizations.

We were honored to connect with dedicated members of Congress and their staff to amplify the voices of those impacted by ALS. Partnerships with lawmakers were strengthened through sharing insights from our national survey, which defined the ALS Network’s key policy priorities—expanding research funding and clinical trial access, enhancing financial support for ALS families, and improving healthcare access and coverage—and emphasized the important impact of our work on their constituents. These conversations are crucial to advancing legislative initiatives that will create meaningful improvements for those living with ALS and help end ALS together.

Become an advocate today and join the ALS Network as we continue the search for a cure!