At the ALS Network, we deeply value the voices of people living with ALS, their caregivers, and others who have been impacted by this disease. Your experiences and insights are essential as we set our state and national advocacy priorities that truly reflect the needs of the ALS community.
The ALS Network has developed an advocacy survey, in conjunction with our ALS United partners, to ensure we are focusing on the issues that matter most to you. By participating in this survey, you will play a crucial role in guiding our public policy agenda in 2025 and beyond, as we engage state and federal lawmakers on legislation to advance ALS care, research, and advocacy.
You are at the heart of our advocacy initiatives. Thank you for your participation, and for your commitment to the ALS community!
Update: the survey is now closed as of 12/18/24. We encourage you to become an ALS advocate and learn more by visiting ALS Network’s Advocacy Action Center.