On July 4, 2025, the budget reconciliation bill, H.R.1, was signed into law. The legislation includes changes to Medicaid, Medicare, and the Affordable Care Act (ACA), putting at risk the essential care that millions of Americans — including thousands of people living with ALS and their caregivers — depend on.
As these changes take effect, the ALS Network will continue to track developments closely, share clear information, and connect our community with the guidance they need to understand and navigate any impacts on care and services.
Across California and Hawaii, the ALS Network proudly provides free, personalized care services to people living with ALS and their families — regardless of insurance coverage or immigration status. Our team provides benefits navigation, referrals to specialty care and clinical trials, equipment loans, emergency grants, caregiver support, and educational programs. The ALS Network is here to help the community respond and ensure that people with ALS live their lives as fully as possible.
No matter what changes in policy or funding occur, people with ALS and their families remain at the heart of our work, as together, we advance research and clinical trial access, strengthen financial safety nets, and work to improve healthcare access and coverage.