Calendar
Calendar of Events
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Loved Ones Group: Connect, Support, Chat
Loved Ones Group: Connect, Support, Chat
Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom!
1 event,
Adaptive Yoga/Assisted Movement and Guided Meditation
Adaptive Yoga/Assisted Movement and Guided Meditation
1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and…
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2 events,
Community: Connect, Support, Chat
Community: Connect, Support, Chat
Community: Connect, Support, Chat Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsnetwork.org
San Fernando Valley: Connect, Support, Chat
San Fernando Valley: Connect, Support, Chat
San Fernando Valley: Connect, Support, Chat Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsnetwork.org
1 event,
NorCal Loved Ones: Connect, Support, Chat
NorCal Loved Ones: Connect, Support, Chat
NorCal Loved Ones: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
2 events,
Trach and Vent: Connect, Support, Chat
Trach and Vent: Connect, Support, Chat
Trach and Vent: Connect, Support, Chat Contact Facilitator: Robin Eller, RCP: 661-364-1913 or reller@alsnetwork.org for more information about how to participate via Zoom.
Ventura County Caregiver: Connect, Support, Chat
Ventura County Caregiver: Connect, Support, Chat
Ventura County Caregiver: Connect, Support, Chat Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsnetwork.org
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1 event,
San Luis Obispo: Connect, Support, Chat
San Luis Obispo: Connect, Support, Chat
San Luis Obispo: Connect, Support, Chat Please contact facilitator Julie Scurich for information on how to participate via Zoom! Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsnetwork.org
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1 event,
*SCHEDULE CHANGE* Turlock/Central Valley: Connect, Support, Chat
*SCHEDULE CHANGE* Turlock/Central Valley: Connect, Support, Chat
Turlock/Central Valley: Connect, Support, Chat will now meet on the second Monday every month instead of the second Wednesday. This month's meeting is Monday, April 14, 1:00 PM PDT. Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843 Lauren…
5 events,
Bereavement (am): Connect, Support, Chat
Bereavement (am): Connect, Support, Chat
Bereavement (am): Connect, Support, Chat An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom!
Connect, Support, Chat: LGBTQ+
Connect, Support, Chat: LGBTQ+
Connect, Support, Chat: LGBTQ+ All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion and check-in, and others may feature special guest speakers. This event is open to anyone, regardless of where you live. Please feel free to contact…
Familial ALS: Connect, Support, Chat
Familial ALS: Connect, Support, Chat
A quarterly online support group specifically for those with a Familial ALS diagnosis. Contact facilitator Cynthia Marks for information on how to participate via Zoom! Cynthia Marks, RT: cmarks@alsnetwork.org; 909-736-5677
2 events,
NorCal ALS Community: Connect, Support, Chat
NorCal ALS Community: Connect, Support, Chat
NorCal ALS Community: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please contact facilitator Debbie Joy, MHA for information on how to join using Zoom! Debbie Joy, MHA: 562-741-8138; djoy@alsnetwork.org
1 event,
ASK ME: Preservation of Vital Capacity as a Goal of ALS Drug Development: The NP001 story
ASK ME: Preservation of Vital Capacity as a Goal of ALS Drug Development: The NP001 story
We invite you to our next educational webinar, “ASK ME: Preservation of Vital Capacity as a Goal of ALS Drug Development: The NP001 story” on Thursday, April 17 at 5:00 PM PDT/2:00 PM HST featuring Michael McGrath, MD, PhD, Professor of Medicine, Laboratory Medicine, and Pathology, UCSF. RSVP today!
1 event,
South Los Angeles: Connect, Support, Chat
South Los Angeles: Connect, Support, Chat
South Los Angeles: Connect, Support, Chat Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsnetwork.org
4 events,
SoCal Ride, Walk & Roll to Cure ALS Training Ride & Kickoff Event
SoCal Ride, Walk & Roll to Cure ALS Training Ride & Kickoff Event
You're invited to our 2025 SoCal Ride, Walk & Roll to Cure ALS training ride and kickoff event on Saturday, April 19, 2025 at Pedals & Pints Brewing Company in Thousand Oaks. Join us at 9:00 AM for the bike ride and at 12:00 PM for good drinks, delicious food, and great company! Find out…
*CANCELED* Walnut Creek/East Bay: Connect, Support, Chat
*CANCELED* Walnut Creek/East Bay: Connect, Support, Chat
Walnut Creek/East Bay: Connect, Support, Chat will not meet this month. The next meeting will be in May. Contact Facilitator Kathleen Kelsey, RCP, for information on how to participate: kkelsey@alsnetwork.org or 818-292-4315
*IN-PERSON* Monterey Bay: Connect, Support, Chat
*IN-PERSON* Monterey Bay: Connect, Support, Chat
Monterey Bay: Connect, Support, Chat will meet in-person this month at Watsonville Community Hospital. For more information and to RSVP, please contact Julie Scurich, OTR/L. ATP. Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsnetwork.org
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*IN-PERSON* Ventura/Santa Barbara: Connect, Support, Chat
*IN-PERSON* Ventura/Santa Barbara: Connect, Support, Chat
Ventura/Santa Barbara: Connect, Support, Chat will meet in-person this month at Hillcrest Center for the Arts in the community room located at 403 W. Hillcrest Drive, Thousand Oaks, CA 91360. The group meets online every fourth Tuesday of the month at 4:00 PM PT and meets in person quarterly. Contact Kathleen for information on how…
*GUEST SPEAKER* Palo Alto: Connect, Support, Chat
*GUEST SPEAKER* Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat We will be joined by Kara E. Bischoff, MD from UCSF to discuss Living Fully, Living Well: Palliative Care for ALS. Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
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1 event,
Pomona: Connect, Support, Chat
Pomona: Connect, Support, Chat
Pomona: Connect, Support, Chat Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org
3 events,
*DATE CHANGE* All-Hawaii: Connect, Support, Chat
*DATE CHANGE* All-Hawaii: Connect, Support, Chat
All-Hawaii: Connect, Support, Chat will meet Friday, April 25 this month instead of Friday, April 18. Connect, Support, Chat: All-Hawaii Please contact the Regional Care Manager, Josephine Poirier, PT for information on how to participate via Zoom! Facilitator: Josephine Poirier, PT, jpoirier@alsnetwork.org or 808-219-9036
San Francisco and Surrounding Counties: Connect, Support, Chat
San Francisco and Surrounding Counties: Connect, Support, Chat
San Francisco and Surrounding Counties: Connect, Support, Chat 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395; tton@alsnetwork.org
Unpartnered People with ALS: Connect, Support, Chat
Unpartnered People with ALS: Connect, Support, Chat
Unpartnered People with ALS: Connect, Support, Chat A connection group for people living with ALS who do not have a partner/spouse on this journey. For more information and to register, please contact Sara Holiday at sholiday@alsnetwork.org or 707-727-5151.
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Veterans with ALS: Connect, Support, Chat
Veterans with ALS: Connect, Support, Chat
This quarterly group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits and resources currently available, while also meeting other Veterans and their families for support on their ALS journey. Please contact co-facilitators, Robin Eller, RCP or…
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2025 SoCal Ride, Walk & Roll to Cure ALS
Save the date for the 9th annual SoCal Ride, Walk & Roll to Cure ALS on Saturday, May 3, 2025 at Dos Vientos Park! By participating and fundraising, YOU are driving the search for ALS treatments and cures through our mission priorities related to care, research, and advocacy. This one-day community event is designed to…