Calendar
Calendar of Events
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This quarterly group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits and resources currently available, while also meeting other Veterans and their families for support on their ALS journey. Please contact co-facilitators, Robin Eller, RCP or…
PLS: Connect, Support, Chat For information on how to participate via Zoom, contact Facilitator: Trung Ton at 510-753-0395 or tton@alsnetwork.org |
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Unpartnered People with ALS: Connect, Support, Chat A connection group for people living with ALS who do not have a partner/spouse on this journey. For more information and to register, please contact Sara Holiday at sholiday@alsnetwork.org or 707-727-5151. |
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Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom! |
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1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and… |
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Turlock/Central Valley: Connect, Support, Chat Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843 Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org |
3 events,
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Community: Connect, Support, Chat will not meet this month. The next meeting will be on Tuesday, September 9. Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsnetwork.org
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Walnut Creek/East Bay: Connect, Support, Chat will meet on Tuesday, August 12 3:30 PM PDT/12:30 PM HST instead of Tuesday, August 19. Contact Facilitator Susan Reider, OTR/L, for information on how to participate: sreider@alsnetwork.org, 925-878-6063
San Fernando Valley: Connect, Support, Chat Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsnetwork.org |
1 event,
NorCal Loved Ones: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate! |
2 events,
Trach and Vent: Connect, Support, Chat Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843 Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org, 209-564-1583
Ventura County Caregiver: Connect, Support, Chat Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsnetwork.org |
3 events,
Connect, Support, Chat: Riverside County Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org
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South Los Angeles: Connect, Support, Chat Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsnetwork.org
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All-Hawaii: Connect, Support, Chat We will be joined by special guest speaker, Lois Miyashiro-Tong, Community Liaison from Navien Hawaii Palliative Care. Please contact Regional Care Manager Josephine Poirier, PT for information on how to participate via Zoom! Facilitator: Josephine Poirier, PT, jpoirier@alsnetwork.org or 808-219-9036 |
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SoCal Community: Connect, Support, Chat will meet in person at Brightwater Assisted Living located at 28807 Baseline St. Highland, CA 92346 in the Orange Blossom Theatre. Please contact Regional Care Manager Cynthia Marks, RT for information on how to participate using Zoom! cmarks@alsnetwork.org or 909-736-5677 |
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An Afternoon of Art benefiting ALS research & care will honor Kate’s mom, Molly Wolveck, and our ALS community on Sunday, August 17 from 2:00 - 5:00 PM PDT at 9176 Sunset Gallery. Join us and RSVP today at www.TeamKateLinder.org. |
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Connect, Support, Chat: Bereavement (am) An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom!
Living with ALS Under 50: Connect, Support, Chat This group will focus on the special needs and challenges people living with ALS under the age of 50 and families during their ALS journeys. Please contact Emma or Shannan for information on how to participate via Zoom! Facilitators: Emma Karavardanyan, M.A., 747-282-8177 or ekaravardanyan@alsnetwork.org Shannan Sonnicksen,…
Connect, Support, Chat: LGBTQ+ All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion and check-in, and others may feature special guest speakers. This event is open to anyone, regardless of where you live. Please feel free to contact… |
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NorCal ALS Community: Connect, Support, Chat We will be joined by special guest speaker, Erin Core, RN, MPH to discuss Mindful Meditation. Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please contact facilitator Debbie Joy, MHA for information on how to join using Zoom! Debbie Joy, MHA: 562-741-8138; djoy@alsnetwork.org |
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August is Make a Will Month, and we invite you to join us for our next ASK ME educational webinar, "Let's Get Your Ducks and Dollars in a Row," on Thursday, August 21, at 12:00 PM PDT / 9:00 AM HST. Hear from Beth Greulich, CDFA, CFP, Partner, Quantum Financial Advisors, and Michael S. Welling,… |
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Connect, Support, Chat: SoCal Loved Ones Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org
San Francisco and Surrounding Counties: Connect, Support, Chat 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395; tton@alsnetwork.org
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Join us for a special event honoring Chuck Fromm and his ALS fight on Friday, August 22nd from 5:00 - 8:00 PM PDT at Block 21 Winery in Lodi, CA. |
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San Luis Obispo: Connect, Support, Chat will not meet this month. The next meeting will be in September. Please contact facilitator Julie Scurich for information on how to participate via Zoom! Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsnetwork.org |
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2025 Paddling to Cure ALS
Tom Horton has been “Paddling to Cure ALS” at the annual Catalina Classic Paddleboard Race in memory of his mother, Anastasia “Peacha” Horton, who lost her battle with ALS in 2005. On Sunday, August 24, Tom is participating in the race for the 19th time, along with his son Cole, in memory of Peacha and… |
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PLS: Connect, Support, Chat For information on how to participate via Zoom, contact Facilitator: Trung Ton at 510-753-0395 or tton@alsnetwork.org |
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Ventura/Santa Barbara: Connect, Support, Chat meets online every fourth Tuesday of the month at 4:00 PM PT. The group will meet in person quarterly at Hillcrest Center for the Arts in the community room located at 403 W. Hillcrest Drive, Thousand Oaks, CA 91360. Contact Morgan for information on how to join online using Zoom! Facilitator:…
Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org |
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Monterey Bay: Connect, Support, Chat will not meet this month. The next meeting will be in September. Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsnetwork.org |
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Pomona: Connect, Support, Chat We will be joined by special guest Erin Core, RN, MPH to discuss Mindful Meditation and Self Care. Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org |
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Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom! |
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Unpartnered People with ALS: Connect, Support, Chat A connection group for people living with ALS who do not have a partner/spouse on this journey. For more information and to register, please contact Sara Holiday at sholiday@alsnetwork.org or 707-727-5151. |
3 events,
2025 Big Island Walk & Roll to Cure ALS
Mark your calendar to join us at Wailoa River State Recreation Park Pavilion for the 3rd annual Big Island Walk & Roll to Cure ALS on Saturday, September 6, 2025! Whether you participate in honor of someone living with ALS, in memory of loved ones lost, or in support of the entire ALS community, there’s…
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San Luis Obispo: Connect, Support, Chat Please contact facilitator Julie Scurich for information on how to participate via Zoom! Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsnetwork.org
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Meet Me in Murphys is a live music festival in Murphys, CA, where every beat makes a difference. The music event takes place on Saturday, September 6, 2025. The ALS Network is grateful to be a beneficiary of this year's proceeds. "Feel the Music, Fuel the Mission" is more than just a slogan at "Meet… |