Calendar
Calendar of Events
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This quarterly group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits and resources currently available, while also meeting other Veterans and their families for support on their ALS journey. Please contact co-facilitators, Robin Eller, RCP or… |
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Unpartnered People with ALS: Connect, Support, Chat A connection group for people living with ALS who do not have a partner/spouse on this journey. For more information and to register, please contact Sara Holiday at sholiday@alsnetwork.org or 707-727-5151. |
2 events,
Save the date for the 9th annual SoCal Ride, Walk & Roll to Cure ALS on Saturday, May 3, 2025 at Dos Vientos Park! By participating and fundraising, YOU are driving the search for ALS treatments and cures through our mission priorities related to care, research, and advocacy. This one-day community event is designed to…
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San Luis Obispo: Connect, Support, Chat will meet in-person this month at The Senior Center at Mitchell Park. Please contact facilitator Julie Scurich for information! Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsnetwork.org |
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The 11th annual Jim Tracy 5K, Walk & Roll to Cure ALS is back and committed to going the distance in memory of San Francisco University High School’s beloved cross-country coach! This year we are unveiling a fresh new name and look for the event, but rest assured, it’s the same fantastic experience. Join us… |
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Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom! |
2 events,
From May 7 – May 10, 2025, many ALS advocates and supporters from the ALS Network and other ALS nonprofit organizations will participate in the ALS Community Summit, hosted by I AM ALS. This event unites advocates from the ALS community to share knowledge, build connections, and take action. We invite you to be part… 
1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and… |
3 events,
Trach and Vent: Connect, Support, Chat Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843 Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org, 209-564-1583 
Ventura County Caregiver: Connect, Support, Chat Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsnetwork.org |
2 events,
All of us at the ALS Network send a big mahalo to Governor Josh Green of Hawaii for signing the proclamation making May ALS Awareness Month. Throughout #ALSAwarenessMonth, we are grateful to all who continue to raise #ALS awareness in #ourALScommunity, including our ohana in Hawaii. Learn more about how you can get involved on… |
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Turlock/Central Valley: Connect, Support, Chat Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843 Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org |
2 events,
Community: Connect, Support, Chat Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsnetwork.org 
San Fernando Valley: Connect, Support, Chat Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsnetwork.org |
1 event,
NorCal Loved Ones: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate! |
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3 events,
Connect, Support, Chat: Riverside County Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org 
South Los Angeles: Connect, Support, Chat Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsnetwork.org
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All-Hawaii: Connect, Support, Chat will meet on Friday, May 16 at 2:00 PM HST instead of 11:15 AM HST. Please contact Regional Care Manager Josephine Poirier, PT for information on how to participate via Zoom! Facilitator: Josephine Poirier, PT, jpoirier@alsnetwork.org or 808-219-9036 |
3 events,
Save the date and join the ALS Network at the 2025 Swing to Find a Cure for ALS 13th Annual Golf Tournament hosted by the Martha Olson-Fernandez Foundation (MOFF). The event begins at 9:30 a.m. on Saturday, May 17. MOFF is committed to funding innovative research that aims to develop effective treatments and ultimately find a cure…
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Monterey Bay: Connect, Support, Chat will meet in-person this month at Watsonville Community Hospital. For more information and to RSVP, please contact Julie Scurich, OTR/L. ATP. Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsnetwork.org 
SoCal Community: Connect, Support, Chat Please contact Regional Care Manager Cynthia Marks, RT for information on how to participate using Zoom! cmarks@alsnetwork.org or 909-736-5677 |
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Join us for the annual ALS Golf Classic on Monday, May 19, 2025 at The Oaks Club at Valencia! By participating and fundraising, YOU are driving the search for ALS treatments and cures through our mission priorities related to care, research, and advocacy. This unforgettable tournament on the green is perfect for golfers of all… |
5 events,
Bereavement (am): Connect, Support, Chat An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom! 
Living with ALS Under 50: Connect, Support, Chat This group will focus on the special needs and challenges people living with ALS under the age of 50 and families during their ALS journeys. Please contact Emma or Shannan for information on how to participate via Zoom! Facilitators: Emma Karavardanyan, M.A., 747-282-8177 or ekaravardanyan@alsnetwork.org Shannan Sonnicksen,… 
Connect, Support, Chat: LGBTQ+ All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion and check-in, and others may feature special guest speakers. This event is open to anyone, regardless of where you live. Please feel free to contact… |
3 events,
NorCal ALS Community: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate! 
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please contact facilitator Debbie Joy, MHA for information on how to join using Zoom! Debbie Joy, MHA: 562-741-8138; djoy@alsnetwork.org 
Kern County: Connect, Support, Chat Facilitator: Robin Eller, RCP: 818-402-6843 or reller@alsnetwork.org Contact Robin for information on how to participate! This group meets bi-monthly in person, at Brookdale Riverwalk, 350 Calloway Dr, Bakersfield, CA 93312 in Building B, in the Theater room. |
2 events,
Pomona: Connect, Support, Chat Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org
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We invite you to our next educational webinar, "ASK ME: Recap of the 2025 Packard Center Annual ALS Research Symposium" on Thursday, May 22 at 5:00 PM PDT/2:00 PM HST. During this program, you will hear from Christine Vande Velde, PhD, Scientific Director, Robert Packard Center for ALS Research at Johns Hopkins. RSVP today. |
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Connect, Support, Chat: SoCal Loved Ones Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org 
San Francisco and Surrounding Counties: Connect, Support, Chat 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395; tton@alsnetwork.org |
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Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
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Ventura/Santa Barbara: Connect, Support, Chat will meet in person this month at Conejo Parks Center for the Arts on Hill Crest Drive in Thousand Oaks. Contact Kathleen for information on how to join online using Zoom! Facilitator: Kathleen Kelsey, RCP, 818-292-4315 or kkelsey@alsnetwork.org |
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