Calendar
Events
Calendar of Events
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3 events,
Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
Ventura/Santa Barbara: Connect, Support, Chat meets online every fourth Tuesday of the month at 4:00 PM PT. The group will meet in person quarterly and biannually — please see more details below. To join online, contact Morgan for information on how to join online using Zoom! Facilitator: Morgan McDonald, LVN 818.573.4724 or mmcdonald@alsnetwork.org The group will…
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Please join us virtually on Tuesday, February 25 for ASK ME: ALS Research and Care in 2025 at 5:00pm PST / 3:00pm HST. This event will feature leading ALS researchers and physicians who will discuss recent scientific advancements, answer your questions, and preview what to expect in the year ahead. During this informative program, you… |
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1 event,
Pomona: Connect, Support, Chat Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org |
2 events,
Connect, Support, Chat: SoCal Loved Ones Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org
San Francisco and Surrounding Counties: Connect, Support, Chat 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395; tton@alsnetwork.org |
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1 event,
Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom! |
1 event,
1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and… |
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2 events,
2025 Abilities Expo
Join the ALS Network at the 2025 Abilities Expo at the Los Angeles Convention Center! Come see us at Booth 123 all weekend long to learn about the many services we offer the ALS community and the exciting events and opportunities you can get involved with! Learn More!
Unpartnered People with ALS: Connect, Support, Chat A connection group for people living with ALS who do not have a partner/spouse on this journey. For more information and to register, please contact Sara Holiday at sholiday@alsnetwork.org or 707-727-5151. |
1 event, |
1 event,
2025 Abilities Expo
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5 events,
Connect, Support, Chat: All Area Group Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsagoldenwest.org
Community: Connect, Support, Chat Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsnetwork.org
Turlock/Central Valley: Connect, Support, Chat Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843 Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org |
1 event,
NorCal Loved Ones: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate! |
2 events,
Trach and Vent: Connect, Support, Chat Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843 Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org, 209-564-1583
Ventura County Caregiver: Connect, Support, Chat Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsnetwork.org |
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4 events,
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San Luis Obispo: Connect, Support, Chat Please contact facilitator Julie Scurich for information on how to participate via Zoom! Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsnetwork.org
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Walnut Creek/East Bay: Connect, Support, Chat will not meet this month. The next meeting will be in April. Contact Facilitator Margie Petrakis, RRT, RN, for information on how to participate: mpetrakis@alsnetwork.org
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Monterey Bay: Connect, Support, Chat Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsnetwork.org |
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2025 Los Angeles Marathon & Charity Half Marathon
Combine your passion for physical challenges and your commitment to finding a cure for ALS by participating and supporting Team ALS Network at the 2025 Los Angeles Marathon and Charity Half Marathon! Visit our fundraising page to help us surpass our $25,000 fundraising goal in support of ALS Network's mission priorities related to care, research,… |
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5 events,
Bereavement (am): Connect, Support, Chat An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom!
Living with ALS Under 50: Connect, Support, Chat This group will focus on the special needs and challenges people living with ALS under the age of 50 and families during their ALS journeys. Please contact Emma or Shannan for information on how to participate via Zoom! Facilitators: Emma Karavardanyan, M.A., 747-282-8177 or ekaravardanyan@alsnetwork.org Shannan Sonnicksen,…
LGBTQ+: Connect, Support, Chat All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion and check-in, and others may feature special guest speakers. This event is open to anyone, regardless of where you live. Please feel free to contact… |
3 events,
NorCal ALS Community: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please contact facilitator Debbie Joy, MHA for information on how to join using Zoom! Debbie Joy, MHA: 562-741-8138; djoy@alsnetwork.org
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Kern County: Connect, Support, Chat Facilitator: Robin Eller, RCP: 818-402-6843 or reller@alsnetwork.org Contact Robin for information on how to participate! This group meets bi-monthly in person, at Brookdale Riverwalk, 350 Calloway Dr, Bakersfield, CA 93312 in Building B, in the Theater room. |
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3 events,
Riverside County: Connect, Support, Chat Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org
South Los Angeles: Connect, Support, Chat Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsnetwork.org
All-Hawaii: Connect, Support, Chat Please contact Regional Care Manager Josephine Poirier, PT for information on how to participate via Zoom! Facilitator: Josephine Poirier, PT, jpoirier@alsnetwork.org or 808-219-9036 |
1 event,
Virtual Event
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Virtual Event
Please join us to honor and remember special friends and loved ones lost to ALS. Virtual via Zoom · Registration is free Memories Shared · Music · Memorial Scroll · Connect with the ALS Community IMPORTANT NOTE: As a part of our program, we welcome you to join others in lighting a candle from wherever… |
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Palo Alto: Connect, Support, Chat We will be joined by Scott Harrison from Maxim Healthcare Services to discuss private duty nursing as an option to help keep patients in their homes. Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
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Ventura/Santa Barbara: Connect, Support, Chat meets online every fourth Tuesday of the month at 4:00 PM PT. For March's meeting, we will be joined by Allison Nadeau, Policy Advocacy Manager with ALS Network, to discuss important advocacy priorities affecting people living with ALS. The group will meet in person quarterly at Hillcrest Center for the Arts… |
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2 events,
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Join the ALS Network’s Policy and Advocacy Manager, Allison Nadeau, MPH, MBA, on Thursday, March 27, at 12:00 pm PDT / 9:00 am HST for a Lunch and Learn, where you’ll get an inside look at the ALS Network’s policy and advocacy efforts and how you can be a powerful voice for change! We will cover: ALS Network advocacy…
Pomona: Connect, Support, Chat Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org |
2 events,
Connect, Support, Chat: SoCal Loved Ones Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org
San Francisco and Surrounding Counties: Connect, Support, Chat 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395; tton@alsnetwork.org |
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1 event,
Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom! |
1 event,
1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and… |
0 events,
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1 event,
Unpartnered People with ALS: Connect, Support, Chat A connection group for people living with ALS who do not have a partner/spouse on this journey. For more information and to register, please contact Sara Holiday at sholiday@alsnetwork.org or 707-727-5151. |
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