Calendar
Calendar of Events
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1 event,
2025 Running Bitcoin Challenge
This is THE EVENT that combines Hal Finney's love of running and Bitcoin and is raising funds and awareness to help cure ALS, which claimed his life. You are challenged to run (or walk, roll, or hike) the equivalent of a half marathon - cumulatively or all at once - whenever you like in 2025.…
2 events,
Veterans with ALS: Connect, Support, Chat
Veterans with ALS: Connect, Support, Chat
This quarterly group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits and resources currently available, while also meeting other Veterans and their families for support on their ALS journey. Please contact Robin Eller or Kathleen Kelsey…
3 events,
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
*IN-PERSON* Ventura/Santa Barbara: Connect, Support, Chat
*IN-PERSON* Ventura/Santa Barbara: Connect, Support, Chat
Join us for Ventura/Santa Barbara: Connect, Support, Chat in person at Conejo Recreation and Park District - Hillcrest Center for the Arts at 403 W. Hillcrest Drive, Thousand Oaks, CA 91360. For more information and to register, please contact Care Manager Kathleen Kelsey, RCP. Facilitator: Kathleen Kelsey, RCP 818-292-4315 or kkelsey@alsnetwork.org
1 event,
1 event,
1 event,
1 event,
Loved Ones Group: Connect, Support, Chat
Loved Ones Group: Connect, Support, Chat
Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom!
1 event,
Adaptive Yoga/Assisted Movement and Guided Meditation
Adaptive Yoga/Assisted Movement and Guided Meditation
1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and…
2 events,
Community: Connect, Support, Chat
Community: Connect, Support, Chat
Community: Connect, Support, Chat Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsnetwork.org
San Fernando Valley: Connect, Support, Chat
San Fernando Valley: Connect, Support, Chat
San Fernando Valley: Connect, Support, Chat Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsnetwork.org
3 events,
Turlock/Central Valley: Connect, Support, Chat
Turlock/Central Valley: Connect, Support, Chat
Turlock/Central Valley: Connect, Support, Chat Please contact facilitator, Kathleen Kelsey, for information on how to join via Zoom! Kathleen Kelsey, RCP: kkelsey@alsnetwork.org; 818-292-4315
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat Please contact Regional Care Manager Rex for information on how to participate via Zoom! Facilitator: Rex Like, MA rlike@alsnetwork.org; 808-219-9036
NorCal Loved Ones: Connect, Support, Chat
NorCal Loved Ones: Connect, Support, Chat
NorCal Loved Ones: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
2 events,
Trach and Vent: Connect, Support, Chat
Trach and Vent: Connect, Support, Chat
Trach and Vent: Connect, Support, Chat Contact Facilitators: Robin Eller, RCP: 661-364-1913 or reller@alsnetwork.org or Kathleen Kelsey, RCP: (818) 292-4315 or kkelsey@alsnetwork.org for more information about how to participate via Zoom.
Ventura County Caregiver: Connect, Support, Chat
Ventura County Caregiver: Connect, Support, Chat
Ventura County Caregiver: Connect, Support, Chat Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsnetwork.org
2 events,
Walnut Creek/East Bay: Connect, Support, Chat
Walnut Creek/East Bay: Connect, Support, Chat
Walnut Creek/East Bay: Connect, Support, Chat Contact Facilitator Margie Petrakis, RRT, RN, for information on how to participate: mpetrakis@alsnetwork.org
Glendale: Connect, Support, Chat
Glendale: Connect, Support, Chat
Glendale: Connect, Support, Chat Please contact Regional Care Manager Cynthia Marks, RT for information on how to participate using Zoom! cmarks@alsnetwork.org or 909-736-5677
4 events,
Bereavement (am): Connect, Support, Chat
Bereavement (am): Connect, Support, Chat
Bereavement (am): Connect, Support, Chat An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom!
Connect, Support, Chat: LGBTQ+
Connect, Support, Chat: LGBTQ+
Connect, Support, Chat: LGBTQ+ All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion and check-in, and others may feature special guest speakers. This event is open to anyone, regardless of where you live. Please feel free to contact…
Connect, Support, Chat: Bereavement (pm)
Connect, Support, Chat: Bereavement (pm)
Connect, Support, Chat: Bereavement (pm) A monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom!
2 events,
NorCal ALS Community: Connect, Support, Chat
NorCal ALS Community: Connect, Support, Chat
NorCal ALS Community: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please contact facilitator Debbie Joy, MHA for information on how to join using Zoom! Debbie Joy, MHA: 562-741-8138; djoy@alsnetwork.org
2 events,
All-Hawaii: Connect, Support, Chat
All-Hawaii: Connect, Support, Chat
All-Hawaii: Connect, Support, Chat Please contact Regional Care Manager Rex Like, MA for information on how to participate via Zoom! Facilitator: Rex Like, MA rlike@alsnetwork.org 808-219-9036
South Los Angeles: Connect, Support, Chat
South Los Angeles: Connect, Support, Chat
South Los Angeles: Connect, Support, Chat Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsnetwork.org
1 event,
San Luis Obispo: Connect, Support, Chat
San Luis Obispo: Connect, Support, Chat
San Luis Obispo: Connect, Support, Chat Please contact facilitator Julie Scurich for information on how to participate via Zoom! Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsnetwork.org
3 events,
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
Ventura/Santa Barbara: Connect, Support, Chat
Ventura/Santa Barbara: Connect, Support, Chat
Ventura/Santa Barbara: Connect, Support, Chat meets online every fourth Tuesday of the month at 4:00 PM PT. The group will meet in person quarterly at Hillcrest Center for the Arts in the community room located at 403 W. Hillcrest Drive, Thousand Oaks, CA 91360. Contact Kathleen for information on how to join online using Zoom! Facilitator:…
ASK ME: ALS Research and Care in 2025
ASK ME: ALS Research and Care in 2025
We invite you to our next ASK ME educational webinar, "ASK ME: ALS Research and Care in 2025" on Tuesday, February 25 at 5:00 PM PST/3:00 PM HST. Clive Svendsen, PhD, Professor and Executive Director, Board of Governors Regenerative Medicine Institute, Cedars-Sinai RMI will share updates from the 2025 ALS Network Research Summit and the…
1 event,
Monterey Bay: Connect, Support, Chat
Monterey Bay: Connect, Support, Chat
Monterey Bay: Connect, Support, Chat Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsnetwork.org
1 event,
Pomona: Connect, Support, Chat
Pomona: Connect, Support, Chat
Pomona: Connect, Support, Chat Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org
1 event,
San Francisco and Surrounding Counties: Connect, Support, Chat
San Francisco and Surrounding Counties: Connect, Support, Chat
San Francisco and Surrounding Counties: Connect, Support, Chat 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395; tton@alsnetwork.org