Calendar
Events
Calendar of Events
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Last Day to Give in 2024!
Today is the last day to make a year-end tax-deductible donation to the ALS Network! Your gift will go directly to our mission, focusing on care services, advocacy, and research in support of the ALS community. Please join us as we cure ALS together! |
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Unpartnered People with ALS: Connect, Support, Chat A connection group for people living with ALS who do not have a partner/spouse on this journey. For more information and to register, please contact Sara Holiday at sholiday@alsnetwork.org or 707-727-5151. |
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Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom! |
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Adaptive Yoga/Assisted Movement and Guided Meditation will meet on Wednesday, January 8, at 11:30 AM PST instead of Wednesday, January 1. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with…
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For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat will not meet this month. The next meeting will be in February. Please contact the Director of Care Services, Jennifer Claxton for information on how to participate via Zoom! Facilitator: Jennifer Claxton, jclaxton@alsnetwork.org or 818-203-9594
NorCal Loved Ones: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate! |
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Trach and Vent: Connect, Support, Chat Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843 Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org, 209-564-1583
Ventura County Caregiver: Connect, Support, Chat Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsnetwork.org |
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2025 Running Bitcoin Challenge
This is THE EVENT that combines Hal Finney's love of running and Bitcoin and is raising funds and awareness to help cure ALS, which claimed his life. You are challenged to run (or walk, roll, or hike) the equivalent of a half marathon - cumulatively or all at once - whenever you like in 2025.… |
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2025 Running Bitcoin Challenge
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Turlock/Central Valley: Connect, Support, Chat Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843 Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org |
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Community: Connect, Support, Chat Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsnetwork.org
San Fernando Valley: Connect, Support, Chat Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsnetwork.org |
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NorCal ALS Community: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please contact facilitator Debbie Joy, MHA for information on how to join using Zoom! Debbie Joy, MHA: 562-741-8138; djoy@alsnetwork.org
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Join us for Kern County: Connect, Support, Chat in-person at Brookdale Riverwalk, 350 Calloway Dr, Bakersfield, CA 93312 in Building B, in the Theater room. For more information, please contact Robin Eller, RCP. Facilitator: Robin Eller, RCP: 818-402-6843 or reller@alsnetwork.org |
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Riverside County: Connect, Support, Chat Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org
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All-Hawaii: Connect, Support, Chat will not meet this month. The next meeting will be in February. Please contact the Director of Care Services, Jennifer Claxton for information on how to participate via Zoom! Facilitator: Jennifer Claxton, jclaxton@alsnetwork.org or 818-203-9594
South Los Angeles: Connect, Support, Chat Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsnetwork.org |
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SoCal Community: Connect, Support, Chat Please contact Regional Care Manager Cynthia Marks, RT for information on how to participate using Zoom! cmarks@alsnetwork.org or 909-736-5677 |
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2025 Running Bitcoin Challenge
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Bereavement (am): Connect, Support, Chat An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom!
Living with ALS Under 50: Connect, Support, Chat This group will focus on the special needs and challenges people living with ALS under the age of 50 and families during their ALS journeys. Please contact Emma or Shannan for information on how to participate via Zoom! Facilitators: Emma Karavardanyan, M.A., 747-282-8177 or ekaravardanyan@alsnetwork.org Shannan Sonnicksen,…
Connect, Support, Chat: LGBTQ+ All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion and check-in, and others may feature special guest speakers. This event is open to anyone, regardless of where you live. Please feel free to contact… |
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Monterey Bay: Connect, Support, Chat Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsnetwork.org Note: The group meets monthly on different dates, please check the calendar regularly for updates. |
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Pomona: Connect, Support, Chat Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org |
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San Francisco and Surrounding Counties: Connect, Support, Chat 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395; tton@alsnetwork.org |
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Walnut Creek/East Bay: Connect, Support, Chat will meet on Saturday, January 25 instead of Saturday, January 18. Contact Facilitator Margie Petrakis, RRT, RN, for information on how to participate: mpetrakis@alsnetwork.org |
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2025 Running Bitcoin Challenge
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This quarterly group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits and resources currently available, while also meeting other Veterans and their families for support on their ALS journey. Please contact co-facilitators, Robin Eller, RCP or… |
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Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
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Join us for Ventura/Santa Barbara: Connect, Support, Chat in person at Conejo Recreation and Park District - Hillcrest Center for the Arts at 403 W. Hillcrest Drive, Thousand Oaks, CA 91360. For more information and to register, please contact Care Manager Kathleen Kelsey, RCP. Facilitator: Kathleen Kelsey, RCP 818-292-4315 or kkelsey@alsnetwork.org |
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