Calendar
Calendar of Events
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This quarterly group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits and resources currently available, while also meeting other Veterans and their families for support on their ALS journey. Please contact co-facilitators, Robin Eller, RCP or… |
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Unpartnered People with ALS: Connect, Support, Chat A connection group for people living with ALS who do not have a partner/spouse on this journey. For more information and to register, please contact Sara Holiday at sholiday@alsnetwork.org or 707-727-5151. |
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We invite you to join us for the 2024 East Bay Walk & Roll to Cure ALS (formerly the East Bay Walk to Defeat ALS)! Please join us at Miller/Knox Regional Shoreline (900 Dornan Dr, Richmond, CA 94801) on Saturday, November 2, 2024 for a fun and inspirational day! In addition to our new event names and…
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San Luis Obispo: Connect, Support, Chat will be meeting on Saturday, November 2 instead of Saturday, November 16. Please contact facilitator Julie Scurich for information on how to participate via Zoom! Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsnetwork.org |
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ALS advocates demonstrate their strength and impact by sharing personal experiences with legislators and urging support for policies that enhance the quality of life for those affected by ALS. Another powerful way to raise your voice is at the ballot box! The ALS Network encourages everyone in the ALS community to vote and explore accessible… 
Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom! |
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We invite you to join us for the 2024 Hawaii Walk & Roll to Cure ALS (formerly the Hawaii Walk to Defeat ALS)! Please join us at Kapiolani Park (3840 Paki Ave, Honolulu, HI 96815) on Saturday, November 9, 2024 for a fun and inspirational day! In addition to our new event names and logos,… |
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2 events,
Every year on Veterans Day, we honor those who devoted their lives to our country. For unknown reasons, people who have served in the military, regardless of the branch, are at greater risk of developing ALS than those with no history of military service. The Veterans Administration recognizes ALS as a service-connected disease, offering significant… 
Turlock/Central Valley: Connect, Support, Chat Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843 Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org |
2 events,
Community: Connect, Support, Chat Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsnetwork.org 
San Fernando Valley: Connect, Support, Chat Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsnetwork.org |
3 events,
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Adaptive Yoga/Assisted Movement and Guided Meditation will be meeting on Wednesday, November 13 this month instead of Wednesday, November 6. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising… 
NorCal Loved Ones: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
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Join us for our ASK ME educational webinar, "Finding Hope: A Physician’s Perspective on Emotions and Managing ALS featuring Jeffrey Rosenfeld, MD, PhD, of the Neuromuscular ALS/NMD Multidisciplinary Clinic at Loma Linda University Health Wednesday, November 13 at 5:00 PM PDT/2:00 PM HST. RSVP TODAY |
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Trach and Vent: Connect, Support, Chat Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843 Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org, 209-564-1583 
Ventura County Caregiver: Connect, Support, Chat Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsnetwork.org |
3 events,
Riverside County: Connect, Support, Chat Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org 
South Los Angeles: Connect, Support, Chat Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsnetwork.org 
All-Hawaii: Connect, Support, Chat Please contact Regional Care Manager Josephine Poirier, PT for information on how to participate via Zoom! Facilitator: Josephine Poirier, PT, jpoirier@alsnetwork.org or 808-219-9036 |
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SoCal Community: Connect, Support, Chat Please contact Regional Care Manager Cynthia Marks, RT for information on how to participate using Zoom! cmarks@alsnetwork.org or 909-736-5677
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Monterey Bay: Connect, Support, Chat Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsnetwork.org |
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Bereavement (am): Connect, Support, Chat An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom! 
Living with ALS Under 50: Connect, Support, Chat This group will focus on the special needs and challenges people living with ALS under the age of 50 and families during their ALS journeys. Please contact Emma or Shannan for information on how to participate via Zoom! Facilitators: Emma Karavardanyan, M.A., 747-282-8177 or ekaravardanyan@alsnetwork.org Shannan Sonnicksen,… 
Connect, Support, Chat: LGBTQ+ All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion and check-in, and others may feature special guest speakers. This event is open to anyone, regardless of where you live. Please feel free to contact… |
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NorCal ALS Community: Connect, Support, Chat Whether you are elsewhere in California or Hawaii, please join us for this important event. We will be joined by Kara Bischoff, MD, Associate Division Chief for Outpatient Palliative Care and the Medical Director of UCSF's Outpatient Palliative Care Service, to talk about the role of palliative care and… 
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please contact facilitator Debbie Joy, MHA for information on how to join using Zoom! Debbie Joy, MHA: 562-741-8138; djoy@alsnetwork.org
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Kern County: Connect, Support, Chat will not meet this month. The next meeting will be in January. Facilitator: Robin Eller, RCP: 818-402-6843 or reller@alsnetwork.org Contact Robin for information on how to participate! This group meets bi-monthly in person, at Brookdale Riverwalk, 350 Calloway Dr, Bakersfield, CA 93312 in Building B, in the Theater room. |
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SoCal Loved Ones: Connect, Support, Chat will not meet this month. The next meeting will be in January. Please contact Regional Care Manager Crystal Galvan, RRT for information on how to participate via Zoom at 747-284-3003 or cgalvan@alsnetwork.org
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San Francisco and Surrounding Counties: Connect, Support, Chat will not meet this month. The next meeting will be on Friday, December 27. 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395; tton@alsnetwork.org |
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Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org 
Ventura/Santa Barbara: Connect, Support, Chat meets online every fourth Tuesday of the month at 4:00 PM PT. The group will meet in person quarterly at Hillcrest Center for the Arts in the community room located at 403 W. Hillcrest Drive, Thousand Oaks, CA 91360. Contact Morgan for information on how to join online using Zoom! Facilitator:… |
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Pomona: Connect, Support, Chat will not meet this month. The next meeting will be in January. Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org |
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