Calendar
Calendar of Events
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1 event,
Honor and Remember our Veterans lost to ALS on Memorial Day
Every Memorial Day, we reflect on the bravery and courage of the men and women who have served and sacrificed for our nation. The ALS Network would like to send our deepest appreciation to our military heroes, especially those who battled or are currently living with ALS. Those who have served in the military have…
2 events,
Ventura/Santa Barbara: Connect, Support, Chat
Ventura/Santa Barbara: Connect, Support, Chat
Ventura/Santa Barbara: Connect, Support, Chat meets online every fourth Tuesday of the month at 4:00 PM PT. The group will meet in person quarterly at Hillcrest Center for the Arts in the community room located at 403 W. Hillcrest Drive, Thousand Oaks, CA 91360. Contact Kathleen for information on how to join online using Zoom! Facilitator:…
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
1 event,
I AM ALS inaugural Community Summit
Join the ALS Network for I AM ALS’s inaugural Community Summit and third annual DC ALS Awareness Event. While in-person attendance options are now fully booked, you can still participate virtually from Wednesday, May 29 through Friday, May 31. Registration for the event may be completed HERE. Please select the “I would like to attend…
2 events,
ASK ME: Recap of the Packard Center Annual ALS Research Symposium
ASK ME: Recap of the Packard Center Annual ALS Research Symposium
We invite you to join us on Zoom for ASK ME: Recap of the Packard Center Annual ALS Research Symposium on Thursday, May 30 at 5:00 PM PDT/2:00 PM HST. We will be joined by Dr. Christine Vande Velde, who is the Professor in the Department of Neurosciences at the Université de Montréal and Université de…
2 events,
2024 Lou Gehrig Day with the SF Giants
2024 Lou Gehrig Day with the SF Giants
The focus of the official Lou Gehrig Day is to honor the legacy of Lou Gehrig and all those lost to the disease that bears his name; to raise ALS awareness and funding; and to celebrate the ALS community. On Lou Gehrig Day, each home Club will host ceremonies and display “4-ALS” logos in ballparks, commemorating Gehrig’s…
2024 Lou Gehrig Day with the LA Dodgers
2024 Lou Gehrig Day with the LA Dodgers
The focus of the official Lou Gehrig Day is to honor the legacy of Lou Gehrig and all those lost to the disease that bears his name; to raise ALS awareness and funding; and to celebrate the ALS community. On Lou Gehrig Day, each home Club will host ceremonies and display “4-ALS” logos in ballparks, commemorating Gehrig’s…
2 events,
Loved Ones Group: Connect, Support, Chat
Loved Ones Group: Connect, Support, Chat
Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom!
2024 Lou Gehrig Day with the Oakland A’s
2024 Lou Gehrig Day with the Oakland A’s
The focus of the official Lou Gehrig Day is to honor the legacy of Lou Gehrig and all those lost to the disease that bears his name; to raise ALS awareness and funding; and to celebrate the ALS community. On Lou Gehrig Day, each home Club will host ceremonies and display “4-ALS” logos in ballparks, commemorating Gehrig’s…
1 event,
Adaptive Yoga/Assisted Movement and Guided Meditation
Adaptive Yoga/Assisted Movement and Guided Meditation
1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and…
1 event,
*DATE CHANGE* Connect, Support, Chat: Ventura County Caregiver
*DATE CHANGE* Connect, Support, Chat: Ventura County Caregiver
Connect, Support, Chat: Ventura County Caregiver will meet on Thursday, June 6, at 4:00 PM PDT instead of Thursday, June 13. Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsnetwork.org
2 events,
*CANCELED* Adaptive Yoga/Assisted Movement and Guided Meditation
*CANCELED* Adaptive Yoga/Assisted Movement and Guided Meditation
The Adaptive Yoga/Assisted Movement and Guided Meditation is canceled for the month of June. The next meeting will take place on Monday, July 8. 2nd Monday each month, 1-2pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement…
Turlock/Central Valley: Connect, Support, Chat
Turlock/Central Valley: Connect, Support, Chat
Turlock/Central Valley: Connect, Support, Chat Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843 Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org
2 events,
Community: Connect, Support, Chat
Community: Connect, Support, Chat
Community: Connect, Support, Chat Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsnetwork.org
San Fernando Valley: Connect, Support, Chat
San Fernando Valley: Connect, Support, Chat
San Fernando Valley: Connect, Support, Chat Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsnetwork.org
1 event,
NorCal Loved Ones: Connect, Support, Chat
NorCal Loved Ones: Connect, Support, Chat
NorCal Loved Ones: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
1 event,
Trach and Vent: Connect, Support, Chat
Trach and Vent: Connect, Support, Chat
Trach and Vent: Connect, Support, Chat Contact Facilitator: Robin Eller, RCP: 661-364-1913 or reller@alsnetwork.org for more information about how to participate via Zoom.
2 events,
Walnut Creek/East Bay: Connect, Support, Chat
Walnut Creek/East Bay: Connect, Support, Chat
Walnut Creek/East Bay: Connect, Support, Chat Contact Facilitator Kathleen Kelsey, RCP, for information on how to participate: kkelsey@alsnetwork.org or 818-292-4315
SoCal Community: Connect, Support, Chat
SoCal Community: Connect, Support, Chat
SoCal Community: Connect, Support, Chat Please contact Regional Care Manager Cynthia Marks, RT for information on how to participate using Zoom! cmarks@alsnetwork.org or 909-736-5677
4 events,
Bereavement (am): Connect, Support, Chat
Bereavement (am): Connect, Support, Chat
Bereavement (am): Connect, Support, Chat An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom!
LGBTQ+: Connect, Support, Chat
LGBTQ+: Connect, Support, Chat
LGBTQ+: Connect, Support, Chat All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion and check-in, and others may feature special guest speakers. This event is open to anyone, regardless of where you live. Please feel free to contact…
Bereavement (pm): Connect, Support, Chat
Bereavement (pm): Connect, Support, Chat
Bereavement (pm): Connect, Support, Chat A monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom!
2 events,
*CANCELED* Connect, Support, Chat: NorCal ALS Community
*CANCELED* Connect, Support, Chat: NorCal ALS Community
Connect, Support, Chat: NorCal ALS Community will not meet this month and will resume on Wednesday, July 17 at 1:00 PM PST. Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
*CANCELED* Conéctese, Apoyar, Unase: Español/Connect, Support, Chat: Spanish Language
*CANCELED* Conéctese, Apoyar, Unase: Español/Connect, Support, Chat: Spanish Language
Actualización: El grupo Conéctese, Apoyar, Unase: Español no estará este mes y la próxima reunión será el Miércoles 17 de Julio. Update: Connect, Support, Join: Spanish will not meet this month and the next meeting will be on Wednesday, July 17. Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please contact facilitator Debbie Joy,…
3 events,
Riverside County: Connect, Support, Chat
Riverside County: Connect, Support, Chat
Riverside County: Connect, Support, Chat Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org
All-Hawaii: Connect, Support, Chat
All-Hawaii: Connect, Support, Chat
All-Hawaii: Connect, Support, Chat Please contact Regional Care Manager Josephine Poirier, PT for information on how to participate via Zoom! Facilitator: Josephine Poirier, PT, jpoirier@alsnetwork.org or 808-219-9036
South Los Angeles: Connect, Support, Chat
South Los Angeles: Connect, Support, Chat
South Los Angeles: Connect, Support, Chat Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsnetwork.org
1 event,
Connect, Support, Chat: Monterey Bay
Connect, Support, Chat: Monterey Bay
Connect, Support, Chat: Monterey Bay An in person connection group at Watsonville Community Hospital. Please contact facilitator Julie Scurich for information. Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsnetwork.org
3 events,
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
Ventura/Santa Barbara: Connect, Support, Chat
Ventura/Santa Barbara: Connect, Support, Chat
Ventura/Santa Barbara: Connect, Support, Chat meets online every fourth Tuesday of the month at 4:00 PM PT. The group will meet in person quarterly at Hillcrest Center for the Arts in the community room located at 403 W. Hillcrest Drive, Thousand Oaks, CA 91360. Contact Kathleen for information on how to join online using Zoom! Facilitator:…
ASK ME: What’s New in Speech and Communication Technology
ASK ME: What’s New in Speech and Communication Technology
Join us for our next ASK ME educational webinar, "What's New in Speech and Communication Technology" featuring Amy Roman, Speech Therapist and AAC Specialist from Forbes Norris ALS Treatment and Research Center. RSVP today!
1 event,
Connect, Support, Chat: All-Hawaii
Connect, Support, Chat: All-Hawaii
Connect, Support, Chat: All-Hawaii will be held in-person at the Ilima at Leihano Senior Assisted Living Facility. This group will also be offered via Zoom. Please contact Regional Care Manager Rex for information on how to participate! Facilitator: Rex Like, MA rlike@alsnetwork.org 808-219-9036
1 event,
Pomona: Connect, Support, Chat
Pomona: Connect, Support, Chat
Pomona: Connect, Support, Chat Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org
3 events,
SoCal Loved Ones: Connect, Support, Chat
SoCal Loved Ones: Connect, Support, Chat
SoCal Loved Ones: Connect, Support, Chat Please contact Regional Care Manager Crystal Galvan, RRT for information on how to participate via Zoom at 747-284-3003 or cgalvan@alsnetwork.org
San Francisco and Surrounding Counties: Connect, Support, Chat
San Francisco and Surrounding Counties: Connect, Support, Chat
San Francisco and Surrounding Counties: Connect, Support, Chat 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395; tton@alsnetwork.org
*CANCELED* Connect, Support, Chat: Unpartnered People with ALS
*CANCELED* Connect, Support, Chat: Unpartnered People with ALS
Connect, Support, Chat: Unpartnered People with ALS will not meet this month and will resume on Friday, July 19 at 2:00 PM PST. A connection group for people living with ALS who do not have a partner/spouse on this journey. For more information and to register, please contact Sara Holiday at sholiday@alsnetwork.org or 707-727-5151.
1 event,
Connect, Support, Chat: San Luis Obispo
Connect, Support, Chat: San Luis Obispo
Connect, Support, Chat: San Luis Obispo is meeting in person at The Senior Center at Mitchell Park, San Luis Obispo. Please contact facilitator Julie Scurich for information. Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsnetwork.org
1 event,
Summer FUNdraising: DIY
It is officially Summer and it's a perfect time to create a fundraiser in support of our mission and our ALS community! Learn more about how you can create your own do-it-yourself (DIY) FUNdraising page at diy.alsnetwork.org.
2 events,
Summer FUNdraising: East Bay Walk & Roll to Cure ALS
We are four months away from our 25th annual East Bay Walk & Roll to Cure ALS. Proceeds from the East Bay Walk & Roll to Cure ALS events will provide critical funding for the ALS Network's urgent mission priorities related to ALS care services, public policy initiatives, and cutting-edge research. Sign up and/or make…
*CANCELED* Connect, Support, Chat: Loved Ones Group
*CANCELED* Connect, Support, Chat: Loved Ones Group
Connect, Support, Chat: Loved Ones Group is not meeting this month and the next meeting will be on Tuesday, August 6. Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom!
1 event,
Adaptive Yoga/Assisted Movement and Guided Meditation
Adaptive Yoga/Assisted Movement and Guided Meditation
1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and…
1 event,
Summer FUNdraising: Fourth of July
Celebrate Independence Day and honor the 85th Anniversary of Lou Gehrig’s farewell to baseball by hosting 4th of July BBQ FUNdraising event in support of our ALS community! Learn more about how you can create your own do-it-yourself (DIY) FUNdraising page at diy.alsnetwork.org.
1 event,
Summer FUNdraising: Bay Area Peninsula Walk & Roll
We are just three months away from our 25th annual Bay Area/ Peninsula Walk & Roll to Cure ALS. Proceeds from the Bay Area Peninsula Walk & Roll to Cure ALS events in the Bay Area Peninsula will provide critical funding for the ALS Network's urgent mission priorities related to ALS care services, public policy…