Calendar
Calendar of Events
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1 event,
2024 Jim Tracy 5K, Walk & Roll to Cure ALS
2024 Jim Tracy 5K, Walk & Roll to Cure ALS
The 10th annual Jim Tracy 5K, Walk & Roll to Cure ALS is back and committed to going the distance in memory of San Francisco University High School’s beloved cross-country coach! This year we are unveiling a fresh new name and look for the event, but rest assured, it’s the same fantastic experience. Join us…
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1 event,
Adaptive Yoga/Assisted Movement and Guided Meditation
Adaptive Yoga/Assisted Movement and Guided Meditation
1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and…
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1 event,
2024 SoCal Ride & Rally to Cure ALS
2024 SoCal Ride & Rally to Cure ALS
Registration is open for the 8th annual SoCal Ride & Rally to Cure ALS (formerly known as the SoCal Ride and Rally to Defeat ALS) on Saturday, May 4, 2024! By participating and fundraising, YOU are driving the search for ALS treatments and cures through our mission priorities related to care, research, and advocacy. This…
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1 event,
Loved Ones Group: Connect, Support, Chat
Loved Ones Group: Connect, Support, Chat
Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom!
3 events,
Turlock/Central Valley: Connect, Support, Chat
Turlock/Central Valley: Connect, Support, Chat
Turlock/Central Valley: Connect, Support, Chat Please contact facilitator, Kathleen Kelsey, for information on how to join via Zoom! Kathleen Kelsey, RCP: kkelsey@alsnetwork.org; 818-292-4315
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat Please contact Regional Care Manager Rex for information on how to participate via Zoom! Facilitator: Rex Like, MA rlike@alsnetwork.org; 808-219-9036
NorCal Loved Ones: Connect, Support, Chat
NorCal Loved Ones: Connect, Support, Chat
NorCal Loved Ones: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
2 events,
Trach and Vent: Connect, Support, Chat
Trach and Vent: Connect, Support, Chat
Trach and Vent: Connect, Support, Chat Contact Facilitators: Robin Eller, RCP: 661-364-1913 or reller@alsnetwork.org or Kathleen Kelsey, RCP: (818) 292-4315 or kkelsey@alsnetwork.org for more information about how to participate via Zoom.
Ventura County Caregiver: Connect, Support, Chat
Ventura County Caregiver: Connect, Support, Chat
Ventura County Caregiver: Connect, Support, Chat Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsnetwork.org
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1 event,
Celebrate our ALS community on Mother’s Day
Celebrate our ALS community on Mother’s Day
All of us at ALS Network wish all of the mothers, grandmothers, aunties, pet moms, maternal figures, and folks who love someone who is a mom, a very Happy Mothers Day! We are grateful and honor them all - whether they are living with ALS, caring for, or have cared for someone battling the disease.…
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2 events,
Connect, Support, Chat: Community
Connect, Support, Chat: Community
Connect, Support, Chat: Community This month, Regional Care Manager, Sara Holiday, will be the group facilitator. Contact Sara at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
San Fernando Valley: Connect, Support, Chat
San Fernando Valley: Connect, Support, Chat
San Fernando Valley: Connect, Support, Chat Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsnetwork.org
3 events,
NorCal ALS Community: Connect, Support, Chat
NorCal ALS Community: Connect, Support, Chat
NorCal ALS Community: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please contact facilitator Debbie Joy, MHA for information on how to join using Zoom! Debbie Joy, MHA: 562-741-8138; djoy@alsnetwork.org
Kern County: Connect, Support, Chat
Kern County: Connect, Support, Chat
Kern County: Connect, Support, Chat Facilitator: Robin Eller, RCP: 818-402-6843 or reller@alsnetwork.org Contact Robin for information on how to participate! This group meets bi-monthly in person, at Brookdale Riverwalk, 350 Calloway Dr, Bakersfield, CA 93312 in Building B, in the Theater room.
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3 events,
Riverside County: Connect, Support, Chat
Riverside County: Connect, Support, Chat
Riverside County: Connect, Support, Chat Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org
All-Hawaii: Connect, Support, Chat
All-Hawaii: Connect, Support, Chat
All-Hawaii: Connect, Support, Chat Please contact Regional Care Manager Rex Like, MA for information on how to participate via Zoom! Facilitator: Rex Like, MA rlike@alsnetwork.org 808-219-9036
South Los Angeles: Connect, Support, Chat
South Los Angeles: Connect, Support, Chat
South Los Angeles: Connect, Support, Chat Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsnetwork.org
1 event,
Glendale: Connect, Support, Chat
Glendale: Connect, Support, Chat
Glendale: Connect, Support, Chat Please contact Regional Care Manager Cynthia Marks, RT for information on how to participate using Zoom! cmarks@alsnetwork.org or 909-736-5677
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4 events,
Bereavement (am): Connect, Support, Chat
Bereavement (am): Connect, Support, Chat
Bereavement (am): Connect, Support, Chat An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom!
LGBTQ+: Connect, Support, Chat
LGBTQ+: Connect, Support, Chat
LGBTQ+: Connect, Support, Chat All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion and check-in, and others may feature special guest speakers. This event is open to anyone, regardless of where you live. Please feel free to contact…
Bereavement (pm): Connect, Support, Chat
Bereavement (pm): Connect, Support, Chat
Bereavement (pm): Connect, Support, Chat A monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom!
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1 event,
Pomona: Connect, Support, Chat
Pomona: Connect, Support, Chat
Pomona: Connect, Support, Chat Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org
3 events,
SoCal Loved Ones: Connect, Support, Chat
SoCal Loved Ones: Connect, Support, Chat
SoCal Loved Ones: Connect, Support, Chat Please contact Regional Care Manager Crystal Galvan, RRT for information on how to participate via Zoom at 747-284-3003 or cgalvan@alsnetwork.org
San Francisco and Surrounding Counties: Connect, Support, Chat
San Francisco and Surrounding Counties: Connect, Support, Chat
San Francisco and Surrounding Counties: Connect, Support, Chat 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395; tton@alsnetwork.org
2024 Lei of Remembrance
2024 Lei of Remembrance
Aloha! As a part of ALS Awareness Month, ALS Ohana, ALS Foundation of Hawaii, and ALS Network would like to invite you to the ALS Lei of Remembrance Ceremony, at the Hawaii State Capitol on Friday, May 24. Please see the schedule of events below: 4:30: Sign Waving (we will provide signs, or bring your…
3 events,
Connect, Support, Chat: San Luis Obispo
Connect, Support, Chat: San Luis Obispo
Connect, Support, Chat: San Luis Obispo Please contact facilitator Julie Scurich for information on how to participate via Zoom! Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsnetwork.org
*DATE CHANGE* Connect, Support, Chat: Walnut Creek/East Bay
*DATE CHANGE* Connect, Support, Chat: Walnut Creek/East Bay
Connect, Support, Chat: Walnut Creek/East Bay is meeting on Saturday, May 25 this month and will resume its regular schedule in June. Contact Facilitator Margie Petrakis, RRT, RN, for information on how to participate: mpetrakis@alsnetwork.org
Connect, Support, Chat: Monterey Bay
Connect, Support, Chat: Monterey Bay
Connect, Support, Chat: Monterey Bay Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsnetwork.org
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1 event,
Honor and Remember our Veterans lost to ALS on Memorial Day
Honor and Remember our Veterans lost to ALS on Memorial Day
Every Memorial Day, we reflect on the bravery and courage of the men and women who have served and sacrificed for our nation. The ALS Network would like to send our deepest appreciation to our military heroes, especially those who battled or are currently living with ALS. Those who have served in the military have…
2 events,
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
Ventura/Santa Barbara: Connect, Support, Chat
Ventura/Santa Barbara: Connect, Support, Chat
Ventura/Santa Barbara: Connect, Support, Chat meets online every fourth Tuesday of the month at 4:00 PM PT. The group will meet in person quarterly at Hillcrest Center for the Arts in the community room located at 403 W. Hillcrest Drive, Thousand Oaks, CA 91360. Contact Kathleen for information on how to join online using Zoom! Facilitator:…
1 event,
I AM ALS inaugural Community Summit
I AM ALS inaugural Community Summit
Join the ALS Network for I AM ALS’s inaugural Community Summit and third annual DC ALS Awareness Event. While in-person attendance options are now fully booked, you can still participate virtually from Wednesday, May 29 through Friday, May 31. Registration for the event may be completed HERE. Please select the “I would like to attend…
2 events,
ASK ME: Recap of the Packard Center Annual ALS Research Symposium
ASK ME: Recap of the Packard Center Annual ALS Research Symposium
We invite you to join us on Zoom for ASK ME: Recap of the Packard Center Annual ALS Research Symposium on Thursday, May 30 at 5:00 PM PDT/2:00 PM HST. We will be joined by Dr. Christine Vande Velde, who is the Professor in the Department of Neurosciences at the Université de Montréal and Université de…
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