Calendar
Calendar of Events
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2 events,
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
Ventura/Santa Barbara: Connect, Support, Chat
Ventura/Santa Barbara: Connect, Support, Chat
Ventura/Santa Barbara: Connect, Support, Chat meets online every fourth Tuesday of the month at 4:00 PM PT. The group will meet in person quarterly at Hillcrest Center for the Arts in the community room located at 403 W. Hillcrest Drive, Thousand Oaks, CA 91360. Contact Kathleen for information on how to join online using Zoom! Facilitator:…
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1 event,
2024 Rare Disease Day
Over 300 million people are living with a rare disease worldwide, including ALS. Thursday, 2/29, is National Rare Disease Day—join the ALS Network as we show our support and raise ALS awareness. Learn more on the Rare Disease Day website.
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1 event,
Loved Ones Group: Connect, Support, Chat
Loved Ones Group: Connect, Support, Chat
Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom!
1 event,
Adaptive Yoga/Assisted Movement and Guided Meditation
Adaptive Yoga/Assisted Movement and Guided Meditation
1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and…
1 event,
ALS Network Town Hall
ALS Network Town Hall
Please join us on Thursday, March 7 for ASK ME: ALS Network Town Hall at 5:00pm PST / 3:00pm HST. During this informative evening, you will learn about the future of the newly rebranded ALS Network (formerly The ALS Association Golden West Chapter). You will hear from Sheri Strahl, ALS Network’s new president and CEO,…
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1 event,
SoCal Ride & Rally to Cure ALS Kickoff Event
SoCal Ride & Rally to Cure ALS Kickoff Event
Join us for this FREE event with good drinks, delicious food, and great company! Meet our staff and volunteer committee, find out what’s new at the ALS Network, and learn what you can expect as a 2024 SoCal Ride & Rally participant. RSVP: bit.ly/2024-SoCal-Ride-and-Rally-Kickoff
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2 events,
Community: Connect, Support, Chat
Community: Connect, Support, Chat
Community: Connect, Support, Chat Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsnetwork.org
San Fernando Valley: Connect, Support, Chat
San Fernando Valley: Connect, Support, Chat
San Fernando Valley: Connect, Support, Chat Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsnetwork.org
3 events,
Turlock/Central Valley: Connect, Support, Chat
Turlock/Central Valley: Connect, Support, Chat
Turlock/Central Valley: Connect, Support, Chat Please contact facilitator, Kathleen Kelsey, for information on how to join via Zoom! Kathleen Kelsey, RCP: kkelsey@alsnetwork.org; 818-292-4315
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat Please contact Regional Care Manager Rex for information on how to participate via Zoom! Facilitator: Rex Like, MA rlike@alsnetwork.org; 808-219-9036
NorCal Loved Ones: Connect, Support, Chat
NorCal Loved Ones: Connect, Support, Chat
NorCal Loved Ones: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
2 events,
Trach and Vent: Connect, Support, Chat
Trach and Vent: Connect, Support, Chat
Trach and Vent: Connect, Support, Chat Contact Facilitators: Robin Eller, RCP: 661-364-1913 or reller@alsnetwork.org or Kathleen Kelsey, RCP: (818) 292-4315 or kkelsey@alsnetwork.org for more information about how to participate via Zoom.
Ventura County Caregiver: Connect, Support, Chat
Ventura County Caregiver: Connect, Support, Chat
Ventura County Caregiver: Connect, Support, Chat Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsnetwork.org
2 events,
Riverside County: Connect, Support, Chat
Riverside County: Connect, Support, Chat
Riverside County: Connect, Support, Chat Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org
South Los Angeles: Connect, Support, Chat
South Los Angeles: Connect, Support, Chat
South Los Angeles: Connect, Support, Chat Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsnetwork.org
2 events,
Walnut Creek/East Bay: Connect, Support, Chat
Walnut Creek/East Bay: Connect, Support, Chat
Walnut Creek/East Bay: Connect, Support, Chat Contact Facilitator Margie Petrakis, RRT, RN, for information on how to participate: mpetrakis@alsnetwork.org
Glendale: Connect, Support, Chat
Glendale: Connect, Support, Chat
Glendale: Connect, Support, Chat Please contact Regional Care Manager Cynthia Marks, RT for information on how to participate using Zoom! cmarks@alsnetwork.org or 909-736-5677
1 event,
2024 Los Angeles Marathon & Charity Half Marathon
Join the ALS Network’s team and run in support of a mission we can all get behind – developing effective prevention strategies, treatments, and cures for ALS. Funds raised will go towards: Supporting patient services, multidisciplinary clinics, support groups, equipment lending, and transportation. Funding cutting-edge research projects wherever the best science is located. Supporting advocacy…
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5 events,
Bereavement (am): Connect, Support, Chat
Bereavement (am): Connect, Support, Chat
Bereavement (am): Connect, Support, Chat An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom!
LGBTQ+: Connect, Support, Chat
LGBTQ+: Connect, Support, Chat
LGBTQ+: Connect, Support, Chat All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion and check-in, and others may feature special guest speakers. This event is open to anyone, regardless of where you live. Please feel free to contact…
Bereavement (pm): Connect, Support, Chat
Bereavement (pm): Connect, Support, Chat
Bereavement (pm): Connect, Support, Chat A monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom!
3 events,
NorCal ALS Community: Connect, Support, Chat
NorCal ALS Community: Connect, Support, Chat
NorCal ALS Community: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
Connect, Support, Chat: Monterey Bay
Connect, Support, Chat: Monterey Bay
Connect, Support, Chat: Monterey Bay Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsnetwork.org
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please contact facilitator Debbie Joy, MHA for information on how to join using Zoom! Debbie Joy, MHA: 562-741-8138; djoy@alsnetwork.org
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4 events,
All-Hawaii: Connect, Support, Chat
All-Hawaii: Connect, Support, Chat
All-Hawaii: Connect, Support, Chat Please contact Regional Care Manager Rex Like, MA for information on how to participate via Zoom! Facilitator: Rex Like, MA rlike@alsnetwork.org 808-219-9036
SoCal Loved Ones: Connect, Support, Chat
SoCal Loved Ones: Connect, Support, Chat
SoCal Loved Ones: Connect, Support, Chat Please contact Regional Care Manager Crystal Galvan, RRT for information on how to participate via Zoom at 747-284-3003 or cgalvan@alsnetwork.org
San Francisco and Surrounding Counties: Connect, Support, Chat
San Francisco and Surrounding Counties: Connect, Support, Chat
San Francisco and Surrounding Counties: Connect, Support, Chat 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395; tton@alsnetwork.org
2 events,
2024 Day of Remembrance
2024 Day of Remembrance
Please join us to honor and remember special friends and loved ones lost to ALS. Virtual via Zoom Memories Shared · Music · Memorial Scroll · Connect with the ALS Community IMPORTANT NOTE: As a part of our program, we welcome you to join others in lighting a candle from wherever you are (safely and…
Connect, Support, Chat: San Luis Obispo
Connect, Support, Chat: San Luis Obispo
Connect, Support, Chat: San Luis Obispo is meeting in person at Sierra Vista Hospital this month. Please contact facilitator Julie Scurich for information. Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsnetwork.org
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1 event,
*DATE CHANGE* Connect, Support, Chat: Palo Alto
*DATE CHANGE* Connect, Support, Chat: Palo Alto
Connect, Support, Chat: Palo Alto will meet on Tuesday, March 12, at 4:00 PM PST instead of Tuesday, March 26. Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
0 events,
1 event,
Pomona: Connect, Support, Chat
Pomona: Connect, Support, Chat
Pomona: Connect, Support, Chat Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org
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1 event,
Loved Ones Group: Connect, Support, Chat
Loved Ones Group: Connect, Support, Chat
Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom!
1 event,
Adaptive Yoga/Assisted Movement and Guided Meditation
Adaptive Yoga/Assisted Movement and Guided Meditation
1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and…