Calendar
Events
Calendar of Events
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2 events,
Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org 
Ventura/Santa Barbara: Connect, Support, Chat meets online every fourth Tuesday of the month at 4:00 PM PT. The group will meet in person quarterly at Hillcrest Center for the Arts in the community room located at 403 W. Hillcrest Drive, Thousand Oaks, CA 91360. Contact Morgan for information on how to join online using Zoom! Facilitator:… |
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1 event,Over 300 million people are living with a rare disease worldwide, including ALS. Thursday, 2/29, is National Rare Disease Day—join the ALS Network as we show our support and raise ALS awareness. Learn more on the Rare Disease Day website. |
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Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom! |
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1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and… |
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Please join us on Thursday, March 7 for ASK ME: ALS Network Town Hall at 5:00pm PST / 3:00pm HST. During this informative evening, you will learn about the future of the newly rebranded ALS Network (formerly The ALS Association Golden West Chapter). You will hear from Sheri Strahl, ALS Network’s new president and CEO,… |
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Join us for this FREE event with good drinks, delicious food, and great company! Meet our staff and volunteer committee, find out what’s new at the ALS Network, and learn what you can expect as a 2024 SoCal Ride & Rally participant. RSVP: bit.ly/2024-SoCal-Ride-and-Rally-Kickoff |
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1 event,
Turlock/Central Valley: Connect, Support, Chat Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843 Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org |
4 events,
Connect, Support, Chat: All Area Group Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsagoldenwest.org 
Community: Connect, Support, Chat Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsnetwork.org 
Check back for information on special speaker! Contact Care Managers Robin Eller, RCP at reller@alsagoldenwest.org or 661-364-1913, or Kathleen Kelsey, RCP at kkelsey@alsagoldenwest.org or 818-292-4315 for information on how to participate using Zoom! |
1 event,
NorCal Loved Ones: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate! |
2 events,
Trach and Vent: Connect, Support, Chat Please contact co-facilitators, Robin Eller, RCP or Lauren Leonard, BSRT, RRT, RCP-ACCS, for information on how to join via Zoom! Robin Eller, RCP: reller@alsnetwork.org, 818-402-6843 Lauren Leonard, BSRT, RRT, RCP-ACCS: lleonard@alsnetwork.org, 209-564-1583 
Ventura County Caregiver: Connect, Support, Chat Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsnetwork.org |
3 events,
Riverside County: Connect, Support, Chat Contact Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsnetwork.org 
South Los Angeles: Connect, Support, Chat Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsnetwork.org 
All-Hawaii: Connect, Support, Chat Please contact Regional Care Manager Josephine Poirier, PT for information on how to participate via Zoom! Facilitator: Josephine Poirier, PT, jpoirier@alsnetwork.org or 808-219-9036 |
1 event,
SoCal Community: Connect, Support, Chat Please contact Regional Care Manager Cynthia Marks, RT for information on how to participate using Zoom! cmarks@alsnetwork.org or 909-736-5677 |
1 event,
Join the ALS Network’s team and run in support of a mission we can all get behind – developing effective prevention strategies, treatments, and cures for ALS. Funds raised will go towards: Supporting patient services, multidisciplinary clinics, support groups, equipment lending, and transportation. Funding cutting-edge research projects wherever the best science is located. Supporting advocacy… |
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6 events,
Bereavement (am): Connect, Support, Chat An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org to participate via Zoom! 
Living with ALS Under 50: Connect, Support, Chat This group will focus on the special needs and challenges people living with ALS under the age of 50 and families during their ALS journeys. Please contact Emma or Shannan for information on how to participate via Zoom! Facilitators: Emma Karavardanyan, M.A., 747-282-8177 or ekaravardanyan@alsnetwork.org Shannan Sonnicksen,… 
LGBTQ+: Connect, Support, Chat All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion and check-in, and others may feature special guest speakers. This event is open to anyone, regardless of where you live. Please feel free to contact… |
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Connect, Support, Chat: Monterey Bay Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsnetwork.org 
NorCal ALS Community: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate! 
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please contact facilitator Debbie Joy, MHA for information on how to join using Zoom! Debbie Joy, MHA: 562-741-8138; djoy@alsnetwork.org |
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3 events,
SoCal Loved Ones: Connect, Support, Chat Please contact Regional Care Manager Crystal Galvan, RRT for information on how to participate via Zoom at 747-284-3003 or cgalvan@alsnetwork.org 
San Francisco and Surrounding Counties: Connect, Support, Chat 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395; tton@alsnetwork.org
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Connect, Support, Chat: Unpartnered People with ALS will not meet this month. The next meeting will take place on Friday, May 24. A connection group for people living with ALS who do not have a partner/spouse on this journey. For more information and to register, please contact Sara Holiday at sholiday@alsnetwork.org or 707-727-5151. |
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Please join us to honor and remember special friends and loved ones lost to ALS. Virtual via Zoom Memories Shared · Music · Memorial Scroll · Connect with the ALS Community IMPORTANT NOTE: As a part of our program, we welcome you to join others in lighting a candle from wherever you are (safely and…
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Connect, Support, Chat: San Luis Obispo is meeting in person at Sierra Vista Hospital this month. Please contact facilitator Julie Scurich for information. Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsnetwork.org |
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Connect, Support, Chat: Palo Alto will meet on Tuesday, March 12, at 4:00 PM PST instead of Tuesday, March 26. Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org |
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Pomona: Connect, Support, Chat Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org |
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1 event,
Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom! |
1 event,
1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and… |
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