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Mari Fuentes y Trish Rice – ELA desde la perspectiva del cuidador

Mari And Trish

We had NO idea what ALS was until our loved ones were diagnosed with it. ALS Golden West supported our families throughout their journey with ALS. Their free-of-charge care services, programs y support groups were a tremendous help with the daily challenges of living with this devastating disease. 

We each found our own ways to raise ALS awareness and support, including sharing our stories and participating in Chapter activities and events. But, through our common thread as caregivers, we both navigated the same obstacles and unknowns in the daily realities of ALS.

November is National Family Caregivers Month. Thanks to the support of the Golden West Chapter’s many programs, resources, and services for caregivers, we learned how to provide the best care for our loved ones. Now, we want to give back to help empower other families who are facing ALS and we are excited to be a part of the Chapter’s next ASK ME educational webinar.  

Being a caregiver can be very stressful, as many aspects of life are affected, including work, family, personal and financial obligations. To all of those who are in the critical role of providing care for loved ones, please know that you are NOT alone in facing this disease! 

ALS Golden West is here to support you and to provide a great deal of knowledge and resources. We invite you to watch ASK ME: ALS from the Caregiver’s Perspective

We were each impacted and forever changed by an ALS diagnosis. Together, we can use our love for them and our experiences with the disease to build connections and help others in our ALS community.

It is only together that we can defeat ALS.

Sincerely,
Mari Fuentes and Trish Rice

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