Yo: mayo 2024

Celebrating ALS Awareness Month in Hawaii

mayo 31, 2024 Comentarios desactivados en Celebrating ALS Awareness Month in Hawaii

The ALS Network is grateful to our ‘ohana on the islands for their continuing efforts to raise ALS awareness during ALS Awareness Month. Our ALS community in Hawai‘i gathered together…

Fighting ALS. A look behind the ALS Network

mayo 30, 2024 Comentarios desactivados en Fighting ALS. A look behind the ALS Network

FOX 11 news anchor and longtime ALS supporter Elex Michaelson, talks with Sheri Strahl, president and CEO, of the ALS Network about our partnership with the ALS community. Watch this…

Culver City officially recognizes ALS Awareness Month

mayo 29, 2024 Comentarios desactivados en Culver City officially recognizes ALS Awareness Month

The City of Culver City officially recognized May 2024 as ALS Awareness Month by signing a proclamation on Tuesday, May 28, 2024 during a City Council meeting. The proclamation encouraged…

My ALS Story: Remembering Eric, Veteran and Person with ALS

mayo 24, 2024 Comentarios desactivados en My ALS Story: Remembering Eric, Veteran and Person with ALS

Every Memorial Day, we reflect on the bravery and courage of the people who have served and sacrificed for our nation. The ALS Network (formerly the ALS Association Golden West…

Fox 11 Los Angeles “The Issue Is”:  ‘No Ordinary Campaign’ – Raising $1 billion to fight ALS

mayo 24, 2024 Comentarios desactivados en Fox 11 Los Angeles “The Issue Is”:  ‘No Ordinary Campaign’ – Raising $1 billion to fight ALS

Please watch the full episode of Fox 11 Los Angeles “The Issue Is: with Elex Michaelson,”with a special interview with Brian Wallace and Sandra Abrevaya, co-founders of the nonprofit organization…

Honoring our loved ones and ‘ohana at the annual Lei of Remembrance

mayo 24, 2024 Comentarios desactivados en Honoring our loved ones and ‘ohana at the annual Lei of Remembrance

The ALS Network, along with ALS Foundation of Hawai‘i and ALS Ohana, held the annual Lei of Remembrance, a memorial ceremony honoring the people with ALS in Hawai‘i who have…

May is ALS Awareness Month: Join the ALS Network and the urgent fight for treatments and cures 

mayo 22, 2024 Comentarios desactivados en May is ALS Awareness Month: Join the ALS Network and the urgent fight for treatments and cures 

May is ALS Awareness Month and The ALS Network is committed to raising awareness and understanding of the disease by bringing attention to the needs of people living with ALS.…

My ALS Story: David, Person with ALS

mayo 21, 2024 Comentarios desactivados en My ALS Story: David, Person with ALS

ALS has definitely changed the way that I live my life. There are some activities that I just can’t do anymore, but others that I’ve been finding ways to adapt.…

ALS Network Celebrates New FAA Rules to Make Travel More Accessible

mayo 16, 2024 Comentarios desactivados en ALS Network Celebrates New FAA Rules to Make Travel More Accessible

The ALS Network commends Congress for passing the bipartisan Federal Aviation Administration (FAA) Reauthorization Bill which includes important provisions to improve accessibility in air travel. These changes come after years…

Biogen and Ionis Announce Topline Phase 1/2 Study Results

mayo 16, 2024 Comentarios desactivados en Biogen and Ionis Announce Topline Phase 1/2 Study Results

CAMBRIDGE, Mass. and CARLSBAD, Calif., May 16, 2024  (GLOBE NEWSWIRE) —  Biogen Inc. and Ionis Pharmaceuticals, Inc. announced the decision to terminate development of BIIB105 (ION541) an investigational antisense oligonucleotide…