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 2025 National Advocacy Event – Participate In Person or Virtually

March 4, 2025 Comments Off on  2025 National Advocacy Event – Participate In Person or Virtually

Join the ALS Network for the 2025 Community Summit hosted by I AM ALS on May 7-10, 2025 in Washington, D.C. ALS Network is proud to once again sponsor this…

2025 ALS Network Research Summit & Barber Award Winners

February 5, 2025 Comments Off on 2025 ALS Network Research Summit & Barber Award Winners

The 15th annual ALS Network Research Summit (formerly the California ALS Research Summit) convened more than 200 researchers, investigators, clinicians, biotech companies, government representatives, partner organizations, and advocates in ALS…

Good Morning America: Broadway stars team up to raise awareness for ALS

September 6, 2024 Comments Off on Good Morning America: Broadway stars team up to raise awareness for ALS

August 20, 2024 Broadway legend Aaron Lazar shared a behind the scenes look at how his fellow stage stars are coming together to support him in his fight against ALS.

ALS United Greater New York Rings the Opening Bell

August 22, 2024 Comments Off on ALS United Greater New York Rings the Opening Bell

ALS United Greater New York, New York and New Jersey’s preeminent nonprofit ALS organization, visits the Nasdaq MarketSite in Times Square in recognition of the 10th anniversary of the Ice…

The ALS Network is now a member of ALS United

August 1, 2024 Comments Off on The ALS Network is now a member of ALS United

The ALS Network is proud to be a member of ALS United. This group of 15 nonprofit organizations from across the United States are all at the forefront of the…

Biogen and Ionis Announce Topline Phase 1/2 Study Results

May 16, 2024 Comments Off on Biogen and Ionis Announce Topline Phase 1/2 Study Results

CAMBRIDGE, Mass. and CARLSBAD, Calif., May 16, 2024  (GLOBE NEWSWIRE) —  Biogen Inc. and Ionis Pharmaceuticals, Inc. announced the decision to terminate development of BIIB105 (ION541) an investigational antisense oligonucleotide…

Fred Fisher – An Unparalleled Leader

December 8, 2023 Comments Off on Fred Fisher – An Unparalleled Leader

Following more than two decades of leadership, ALS Golden West’s president and CEO, Fred Fisher, MSW, LCSW, will become the organization’s first President Emeritus effective February 1, 2024. As part…

Mahalo to all who raised crucial funds and ALS awareness at the Hawaii Walk to Defeat ALS!

October 6, 2023 Comments Off on Mahalo to all who raised crucial funds and ALS awareness at the Hawaii Walk to Defeat ALS!

ALS Golden West held the 11th Annual Hawaii Walk to Defeat ALS® on Saturday, September 30, at Kapiolani Park in Honolulu. This annual event brought incredible energy and an outpouring…

Person holding DNA Sample

National guidelines for ALS genetic testing, counseling published

October 5, 2023 Comments Off on National guidelines for ALS genetic testing, counseling published

Researchers at The Ohio State University Wexner Medical Center and College of Medicine have developed and published guidelines for genetic testing and counseling for people living with ALS. These evidence-based,…

2023 MLK Day of Service

January 11, 2023 Comments Off on 2023 MLK Day of Service

Monday, January 16 is the 28th anniversary of the Martin Luther King, Jr. Day of Service. On this day, we celebrate the legacy of the Nobel prize-winning civil rights leader,…