Research

ALS News Today: Research Sheds New Light on ALS Gene Mutation

August 21, 2025 Comments Off on ALS News Today: Research Sheds New Light on ALS Gene Mutation

Researchers at Yale School of Medicine said they’ve solved a longstanding mystery of how mutations in the C9ORF72 gene, a common genetic cause of amyotrophic lateral sclerosis (ALS), may lead to toxic proteins. The findings…

ALS News Today: Wearable Robot Gives ALS Patients a Hand

August 21, 2025 Comments Off on ALS News Today: Wearable Robot Gives ALS Patients a Hand

A wearable robot that detects small arm motions and helps support the shoulder can make it easier for amyotrophic lateral sclerosis (ALS) patients to pick up and carry things, a study showed.…

Research Funding Freeze Impacts UCLA

August 12, 2025 Comments Off on Research Funding Freeze Impacts UCLA

The ALS Network is driven by passion — for people, for progress, and for a future without ALS. We partner with world-class researchers, clinicians, and institutions across California and Hawaii…

Columbia: Will Making Neurons Young Again Stop ALS?

August 12, 2025 Comments Off on Columbia: Will Making Neurons Young Again Stop ALS?

In the beginning, not even Hynek Wichterle’s postdoc thought his idea to slow the progression of ALS had a chance. “When Hynek proposed this, I thought it would never work…

The ALS Network joins 8 ALS organizations to renew a NIH-funded study exploring the genetic link between ALS and Frontotemporal Degeneration

July 17, 2025 Comments Off on The ALS Network joins 8 ALS organizations to renew a NIH-funded study exploring the genetic link between ALS and Frontotemporal Degeneration

Letter To: Richard Hodes, MD, Director of the National Institute on Aging Walter Koroshetz, MD, Director of the National Institute of Neurological Disorders and Stroke National Institutes of Health, 9000…

ALS Network Partners with Barrow Neurological Institute to Engage Next Generation of ALS Researchers

July 15, 2025 Comments Off on ALS Network Partners with Barrow Neurological Institute to Engage Next Generation of ALS Researchers

The ALS Network and the Barrow Neurological Institute have teamed up to provide hands-on experience to promising young researchers. Ria Moharil, an incoming second-year neuroscience student at Arizona State University,…

New 2025 Barber Award Winners Named

May 31, 2025 Comments Off on New 2025 Barber Award Winners Named

The ALS Network presented four researchers with the Barber Research Award during the UC ALS Reinvigorating Innovation in ALS Research workshop on May 15-16. From left to right: Julie Smeyers,…

2025 Sheila Essey Award for ALS Research Recipients

May 30, 2025 Comments Off on 2025 Sheila Essey Award for ALS Research Recipients

Left to Right: Sheri Strahl, MPH, MBA, President and CEO, ALS Network; Christopher J. McDermott, MBChB, FRCP, PhD, University of Sheffield; Neil A. Shneider, MD, PhD, Columbia University; Jim Essey,…

Neuroscience News: ALS Drug Shows Unprecedented Recovery in Patients With Rare Mutation

May 25, 2025 Comments Off on Neuroscience News: ALS Drug Shows Unprecedented Recovery in Patients With Rare Mutation

A groundbreaking experimental therapy for a rare, aggressive form of ALS caused by FUS gene mutations has produced surprising clinical improvements in some patients, including restored mobility and extended survival.…

ALS News Today: Bacteria Mix to Aid Gut Microbiome May Slow ALS Progression

May 20, 2025 Comments Off on ALS News Today: Bacteria Mix to Aid Gut Microbiome May Slow ALS Progression

MaaT033, an oral therapy aiming to restore balance to the collection of bacteria and other microbes in the gut, was safe and well tolerated after three months and showed signs…