Research

New 2025 Barber Award Winners Named

May 31, 2025 Comments Off on New 2025 Barber Award Winners Named

The ALS Network presented four researchers with the Barber Research Award during the UC ALS Reinvigorating Innovation in ALS Research workshop on May 15-16. From left to right: Julie Smeyers,…

2025 Sheila Essey Award for ALS Research Recipients

May 30, 2025 Comments Off on 2025 Sheila Essey Award for ALS Research Recipients

Left to Right: Sheri Strahl, MPH, MBA, President and CEO, ALS Network; Christopher J. McDermott, MBChB, FRCP, PhD, University of Sheffield; Neil A. Shneider, MD, PhD, Columbia University; Jim Essey,…

Neuroscience News: ALS Drug Shows Unprecedented Recovery in Patients With Rare Mutation

May 25, 2025 Comments Off on Neuroscience News: ALS Drug Shows Unprecedented Recovery in Patients With Rare Mutation

A groundbreaking experimental therapy for a rare, aggressive form of ALS caused by FUS gene mutations has produced surprising clinical improvements in some patients, including restored mobility and extended survival.…

ALS News Today: Bacteria Mix to Aid Gut Microbiome May Slow ALS Progression

May 20, 2025 Comments Off on ALS News Today: Bacteria Mix to Aid Gut Microbiome May Slow ALS Progression

MaaT033, an oral therapy aiming to restore balance to the collection of bacteria and other microbes in the gut, was safe and well tolerated after three months and showed signs…

UCSF: Proactive, Personalized, Precise: AI and Collaborative Research is Revolutionizing ALS Care

May 1, 2025 Comments Off on UCSF: Proactive, Personalized, Precise: AI and Collaborative Research is Revolutionizing ALS Care

With no single known cause, no definitive diagnostic test and no cure, ALS remains a tragically confounding neurodegenerative disease. Its progression varies dramatically from patient to patient, leaving clinicians and…

ALS News Today: Brain-computer Interface to Restore Speech Named Award Winner

April 28, 2025 Comments Off on ALS News Today: Brain-computer Interface to Restore Speech Named Award Winner

A neurosurgeon and his team from the University of California (UC) Davis Health have won The Herbert Pardes Clinical Research Excellence Award — given by the nonprofit Clinical Research Forum — for…

ALS News Today: First Patient Dosed in a Phase 1 Study Testing AMX0114 in ALS

April 21, 2025 Comments Off on ALS News Today: First Patient Dosed in a Phase 1 Study Testing AMX0114 in ALS

The first patient has been dosed in a Phase 1 clinical study testing AMX0114, an experimental therapy being developed by Almylyx Pharmaceuticals for amyotrophic lateral sclerosis (ALS). The treatment targets calpain-2, a protein believed to…

ALS News Today: MDA 2025: INS1202 Gene Therapy Shows Promise In SOD1-ALS Mice

April 1, 2025 Comments Off on ALS News Today: MDA 2025: INS1202 Gene Therapy Shows Promise In SOD1-ALS Mice

A single dose of Insmed’s investigational gene therapy INS1202 preserved motor function and prolonged survival in a mouse model of amyotrophic lateral sclerosis (ALS) associated with SOD1 gene mutations. The therapy was also found to…

Letters of Intent for ALS Research Funding Accepted April 15 – May 15

March 31, 2025 Comments Off on Letters of Intent for ALS Research Funding Accepted April 15 – May 15

The ALS Network, in partnership with ALS United, proudly announces that letters of intent for ALS research funding will be accepted April 15 – May 15, 2025.  “We are honored…

Mitsubishi Tanabe Pharma America to Showcase New Research Findings in ALS at 2025 MDA Clinical and Scientific Conference

March 12, 2025 Comments Off on Mitsubishi Tanabe Pharma America to Showcase New Research Findings in ALS at 2025 MDA Clinical and Scientific Conference

JERSEY CITY, N.J. March 12, 2025 – Mitsubishi Tanabe Pharma America, Inc. (MTPA) today announced the presentation of eleven abstracts covering research in amyotrophic lateral sclerosis (ALS) at the 2025…