Research

2026 ALS Network Research Summit & Our Next ASK ME

February 16, 2026 Comments Off on 2026 ALS Network Research Summit & Our Next ASK ME

The 16th annual ALS Network Research Summit (formerly the California ALS Research Summit) brought together over 200 researchers, clinicians, biotech representatives, government officials, partner organizations, and advocates in ALS and…

ALS Network Research Summit 2026: Post‑Summit Highlights

February 12, 2026 Comments Off on ALS Network Research Summit 2026: Post‑Summit Highlights

Three Days of Science, Translation, and Momentum The ALS Network Research Summit convened global leaders across academia, industry, and clinical care to accelerate progress toward effective treatments and cures. Across…

ALS News Today: US clinical trials lack diverse representation of ALS patients

February 3, 2026 Comments Off on ALS News Today: US clinical trials lack diverse representation of ALS patients

In the U.S., clinical trials for amyotrophic lateral sclerosis (ALS) do not include enough non-white patients and women to fully represent the disease’s landscape in the real world, a study found.

Spotlight on… Mark Ma, ALS Researcher and Entrepreneur

December 19, 2025 Comments Off on Spotlight on… Mark Ma, ALS Researcher and Entrepreneur

Born and raised in Dalian, China, Mark Ma grew up in an environment where he often felt unable to speak freely. As a tall and physically different child, he was…

Muscular Dystrophy Association Announces nearly $2 Million in Collaborative Research Grants Advancing Treatments Across Multiple Neuromuscular Diseases

December 3, 2025 Comments Off on Muscular Dystrophy Association Announces nearly $2 Million in Collaborative Research Grants Advancing Treatments Across Multiple Neuromuscular Diseases

MDA’s partnership in research includes collaborative research grants with the ALS Network, Cure ADSSL1, Coalition to Cure Calpain 3, Cure CMD, Friedreich’s Ataxia Research Alliance, The Myositis Association, and United…

ALS Network and ALS United Announce New Research Grantees

November 19, 2025 Comments Off on ALS Network and ALS United Announce New Research Grantees

11/20/25 – FOR IMMEDIATE RELEASE LOS ANGELES – The ALS Network, in partnership with 12 ALS United member organizations, announces the selection of its 2025 Research Innovation Grantees—an accomplished group…

Businesswire: The Impossible Dream Machine Partners with Parkland Center for Clinical Innovation (PCCI) to Advance Hope and Innovation in Neurodegenerative Disease Research

November 5, 2025 Comments Off on Businesswire: The Impossible Dream Machine Partners with Parkland Center for Clinical Innovation (PCCI) to Advance Hope and Innovation in Neurodegenerative Disease Research

DALLAS–(BUSINESS WIRE)–The Impossible Dream Machine, an initiative founded by Broadway actor, Grammy-nominated singer, and ALS patient and advocate Aaron Lazar, has announced a groundbreaking collaboration with the Parkland Center for…

AI Accelerates ALS Research

November 4, 2025 Comments Off on AI Accelerates ALS Research

Dr. Steve Finkbeiner and his team at the Gladstone Institutes have developed an AI-powered “thinking microscope” that can independently run experiments, learn from what it observes, and rapidly analyze data — far beyond…

NIH: Protein-based blood test detects early signs of ALS

September 16, 2025 Comments Off on NIH: Protein-based blood test detects early signs of ALS

In amyotrophic lateral sclerosis, or ALS, misfolded proteins in motor neurons cause progressive muscle weakness and paralysis. People with ALS often die within 2 to 4 years after symptoms start.…

ALS Network Donor Appreciation and Impact Message

August 25, 2025 Comments Off on ALS Network Donor Appreciation and Impact Message

Dear Friends, I am grateful for your steadfast support of the ALS Network and invite you to read our new Impact Report. We are excited to share how your partnership powers our mission-critical…