People

Aaron Lazar – a champion in the ALS community

December 30, 2024 Comments Off on Aaron Lazar – a champion in the ALS community

Award-winning actor, singer, speaker, and advocate Aaron Lazar has exemplified a resilience that reminds us of the power we have to make the impossible possible, encouraging us all to “dream…

Honoring the Producers of the Impossible Dream Album

December 6, 2024 Comments Off on Honoring the Producers of the Impossible Dream Album

The ALS Network (formerly ALS Golden West) is proud to announce Kitt Wakeley, David Das, and the Producers of the Grammy Award-nominated album, Impossible Dream, as our 2025 Essey Spotlight…

ALS Network Holiday Card Features Artwork of Gayle Garner Roski

December 5, 2024 Comments Off on ALS Network Holiday Card Features Artwork of Gayle Garner Roski

Before her passing from ALS in 2020, Gayle Garner Roski described watercolor as a “medium of magic.”  Gayle once explained she loved “watercolors because they have a way of being…

Giving Tuesday: Stories from families helped by your support

December 2, 2024 Comments Off on Giving Tuesday: Stories from families helped by your support

On Giving Tuesday your support can create a lasting impact. Your gift will help provide care services, resources, and community connection; fuel groundbreaking research; and advance important public policy initiatives…

HI Now Daily Interview with Lucy Wedemeyer

November 7, 2024 Comments Off on HI Now Daily Interview with Lucy Wedemeyer

Mahalo to HI Now Daily’s Rachel Pacarro for featuring the ALS Network’s Lucy Wedemeyer! Lucy’s story as a wife and primary caregiver during her husband, beloved football coach Charlie Wedemeyer,…

Celebrating the Legacy of Lorene Lee

A Tribute to Lorene Lee

November 1, 2024 Comments Off on A Tribute to Lorene Lee

With a heavy heart, we share the sad news that Lorene Lee, a beloved mother, wife, friend, and passionate ALS advocate, died on October 16, 2024.  It was in November…

Spotlight on … Etzael Jimenez

October 15, 2024 Comments Off on Spotlight on … Etzael Jimenez

When Etzael Jimenez first arrived in the United States from Mexico at the age of 20, his initial plan was to stay for a year to learn English. Now 25…

Spotlight on … the Aguilera Family

October 15, 2024 Comments Off on Spotlight on … the Aguilera Family

For the Aguileras, their mother, Yolanda Aguilera, was the heart of their family. She had four children: Michelle, Julia, Jessica, and Eddie. They spent every holiday, birthday, and other family…

Spotlight On … Spero Koulouras

October 7, 2024 Comments Off on Spotlight On … Spero Koulouras

Spero Koulouras grew up in Detroit, Michigan, in a Greek family, surrounded by many cousins. With a passion for sports, especially baseball, he dreamed of becoming a professional player for…

Alameda Post: Denise Lum Dances and Walks for Parkinson’s Disease, ALS, and Alzheimer’s

October 7, 2024 Comments Off on Alameda Post: Denise Lum Dances and Walks for Parkinson’s Disease, ALS, and Alzheimer’s

My friend, Mehdi, will not be “dancing” with me any longer. As of this past week, he is no longer limited in his movements and will instead be dancing freely…