People

Volunteer Leader David Buseck Pens Travel Book

May 3, 2024 Comments Off on Volunteer Leader David Buseck Pens Travel Book

Paris: City of Cultures is your guide to see Paris beyond the Eiffel Tower.  Authored by David Buseck, ALS Network board member and person living with ALS, the book features…

Studio City Life Magazine: Charity Spotlight

May 1, 2024 Comments Off on Studio City Life Magazine: Charity Spotlight

The May 2024 issue of Studio City Life Magazine featured ALS Network president and CEO Sheri Strahl, along with ALS Network Advisory Trustee Dr. Richard Smith. Readers received details on…

Celebrating Collaboration: the 2024 Death Valley Ride to Cure ALS

April 24, 2024 Comments Off on Celebrating Collaboration: the 2024 Death Valley Ride to Cure ALS

On April 9, Jaime Lafita, a native of Bilbao, Spain, who has been living with amyotrophic lateral sclerosis (ALS) since 2016, started his journey of the Death Valley Ride to…

Celebrating 10 years of impact

April 5, 2024 Comments Off on Celebrating 10 years of impact

“In my mind is, everyday, to get something done, because I don’t know where that finish line is but I’m moving towards it, slowly but surely.” – Jim Tracy  The…

Tiene ELA y atravesará el desierto del Valle de la Muerte en bicicleta: la inspiradora historia de Jaime Lafita

March 31, 2024 Comments Off on Tiene ELA y atravesará el desierto del Valle de la Muerte en bicicleta: la inspiradora historia de Jaime Lafita

Jaime Lafita fue diagnosticado con Esclerosis lateral amiotrófica (ELA), una enfermedad neurodegenerativa progresiva que afecta las células nerviosas y que termina por dejar a los pacientes totalmente paralizados. A pesar…

Celebrating National Doctors’ Day and Women’s History Month

March 1, 2024 Comments Off on Celebrating National Doctors’ Day and Women’s History Month

Tuesday, March 30 is National Doctors’ Day. As a part of Women’s History month, it is a great time to celebrate so many women ALS clinicians and scientists. These dedicated…

Our Tribute to Kenneth Mitchell

February 29, 2024 Comments Off on Our Tribute to Kenneth Mitchell

The ALS Network, formerly the ALS Association Golden West Chapter, mourns the loss of beloved husband, father, actor and ALS advocate, Kenneth “Kenny” Mitchell. As an actor, he was most…

This ALS patient has a brain implant that translates his thoughts to computer commands

February 28, 2024 Comments Off on This ALS patient has a brain implant that translates his thoughts to computer commands

CNN  — Staring at a computer screen, Mark focuses deeply, his arms resting by his side. His right index finger trembles ever so slightly on top of a pillow, and then an…

‘Nancy Drew’ Alum Kenneth Mitchell Dead at 49 After ALS Battle: He Made ‘You Feel So Loved’

February 25, 2024 Comments Off on ‘Nancy Drew’ Alum Kenneth Mitchell Dead at 49 After ALS Battle: He Made ‘You Feel So Loved’

Nancy Drew and Star Trek: Discovery actor Kenneth Mitchell died after a five-year battle with ALS. He was 49. “With heavy hearts we announce the passing of Kenneth Alexander Mitchell,…

Kenneth Mitchell, Star Trek: Discovery and Captain Marvel Star, Dead at 49 from ALS 

February 25, 2024 Comments Off on Kenneth Mitchell, Star Trek: Discovery and Captain Marvel Star, Dead at 49 from ALS 

Kenneth Mitchell has died, five years after being diagnosed with ALS. He was 49. Mitchell, who was best known for his roles in Star Trek: Discovery, died on Saturday, according…