People

Meet Your New ALS Network Board Member and Advisory Trustees

April 8, 2026 Comments Off on Meet Your New ALS Network Board Member and Advisory Trustees

This year, we welcome four new individuals serving in volunteer leadership roles, including Scean Ellis, a new member of our Board of Directors and multiple Advisory Trustees including Hunter Doohan,…

Spotlight on… Carson Lee

April 2, 2026 Comments Off on Spotlight on… Carson Lee

Meet Carson Lee, a junior at De La Salle High School, Diablo, CA resident, and brother-in-law to Alyssa Jeswald-Lee, who lived with ALS for four years. When Alyssa was diagnosed…

Celebrating National Doctors’ Day and Women’s History Month

March 27, 2026 Comments Off on Celebrating National Doctors’ Day and Women’s History Month

Monday, March 30 is National Doctors’ Day. Women’s History month is a great opportunity to celebrate women ALS clinicians and scientists. These dedicated individuals work tirelessly for people living with…

Spotlight on… Patti Hancock

March 23, 2026 Comments Off on Spotlight on… Patti Hancock

Born in Sacramento, CA, Patti was raised by parents who valued education, and taught her perseverance and determination. At the age of 12, she sustained painful injuries and broken bones…

The Hollywood Reporter: One of Eric Dane’s Final Roles Was Boosting Visibility for ALS: “Used His Platform Not for Attention, But for Action”

February 28, 2026 Comments Off on The Hollywood Reporter: One of Eric Dane’s Final Roles Was Boosting Visibility for ALS: “Used His Platform Not for Attention, But for Action”

Eric Dane still has some posthumous performances to be released, but the role he took on in his final year will be remembered as the most impactful. After the Grey’s Anatomy and Euphoria actor publicly announced his…

ABC7: Actor Eric Dane’s unwavering advocacy for ALS was the most powerful role of his career

February 27, 2026 Comments Off on ABC7: Actor Eric Dane’s unwavering advocacy for ALS was the most powerful role of his career

LOS ANGELES (KABC) — Actor Eric Dane, best known for his roles on “Grey’s Anatomy” and “Euphoria,” lost his battle with ALS 10 months after publicly sharing his diagnosis. Dane, however, continued to…

Spotlight on… the Ellis Family

February 27, 2026 Comments Off on Spotlight on… the Ellis Family

The Ellis family lived a fond life as a family of three: Stephen (Steve), Scean, and their daughter, Kennedy. Based in Los Angeles, California, Steve and Scean found work in…

A Message From ALStogether Founder, Brooke Eby

February 23, 2026 Comments Off on A Message From ALStogether Founder, Brooke Eby

Hi my fellow ALStogetherers, First things first, a huge THANK YOU for being a part of this community. When my team and I thought of the concept of ALStogether, this…

Spotlight on… Mark Ma, ALS Researcher and Entrepreneur

December 19, 2025 Comments Off on Spotlight on… Mark Ma, ALS Researcher and Entrepreneur

Born and raised in Dalian, China, Mark Ma grew up in an environment where he often felt unable to speak freely. As a tall and physically different child, he was…

Spotlight on… Rodney Morrell, Veteran and Person Living with ALS

December 8, 2025 Comments Off on Spotlight on… Rodney Morrell, Veteran and Person Living with ALS

Born and raised in Seattle, Washington, Rodney Morrell lived a storied life with fond memories. After moving to Missoula, Montana, he joined the Navy in 1974 and was chosen to…