People

Spotlight on… Sarah Marez

April 18, 2025 Comments Off on Spotlight on… Sarah Marez

Growing up in the small but mighty town of Strathmore, CA, Sarah was one of three children raised by loving parents who taught her resilience and strength. In August 2012,…

Celebrating National Doctors’ Day and Women’s History Month

March 25, 2025 Comments Off on Celebrating National Doctors’ Day and Women’s History Month

Tuesday, March 30 is National Doctors’ Day. Women’s History month is a great opportunity to celebrate women ALS clinicians and scientists. These dedicated individuals work tirelessly for people living with…

Spotlight on… Erin Taylor

March 18, 2025 Comments Off on Spotlight on… Erin Taylor

Erin Taylor was born in Whittier, California, in 1999. When she was 17, she moved to Salt Lake City, Utah, to attend college. Always creative and hard working, she juggled…

AP News: Roberta Flack, Grammy-winning ‘Killing Me Softly’ singer with an intimate style, dies at 88

February 24, 2025 Comments Off on AP News: Roberta Flack, Grammy-winning ‘Killing Me Softly’ singer with an intimate style, dies at 88

Roberta Flack, the Grammy-winning singer and pianist whose intimate vocal and musical style made her one of the top recordings artists of the 1970s and an influential performer long after,…

The Hollywood Reporter: How a Director Living with a Fatal Disease Managed to Get Julianne Moore Her Oscar

February 14, 2025 Comments Off on The Hollywood Reporter: How a Director Living with a Fatal Disease Managed to Get Julianne Moore Her Oscar

Ten years after ‘Still Alice’ the film’s co-writer/director tells the story of his ailing partner’s own heartbreaking struggle to survive and see their longshot project through to its glorious end.

Aaron Lazar – a champion in the ALS community

December 30, 2024 Comments Off on Aaron Lazar – a champion in the ALS community

Award-winning actor, singer, speaker, and advocate Aaron Lazar has exemplified a resilience that reminds us of the power we have to make the impossible possible, encouraging us all to “dream…

Honoring the Producers of the Impossible Dream Album

December 6, 2024 Comments Off on Honoring the Producers of the Impossible Dream Album

The ALS Network (formerly ALS Golden West) is proud to announce Kitt Wakeley, David Das, and the Producers of the Grammy Award-nominated album, Impossible Dream, as our 2025 Essey Spotlight…

ALS Network Holiday Card Features Artwork of Gayle Garner Roski

December 5, 2024 Comments Off on ALS Network Holiday Card Features Artwork of Gayle Garner Roski

Before her passing from ALS in 2020, Gayle Garner Roski described watercolor as a “medium of magic.”  Gayle once explained she loved “watercolors because they have a way of being…

Giving Tuesday: Stories from families helped by your support

December 2, 2024 Comments Off on Giving Tuesday: Stories from families helped by your support

On Giving Tuesday your support can create a lasting impact. Your gift will help provide care services, resources, and community connection; fuel groundbreaking research; and advance important public policy initiatives…

HI Now Daily Interview with Lucy Wedemeyer

November 7, 2024 Comments Off on HI Now Daily Interview with Lucy Wedemeyer

Mahalo to HI Now Daily’s Rachel Pacarro for featuring the ALS Network’s Lucy Wedemeyer! Lucy’s story as a wife and primary caregiver during her husband, beloved football coach Charlie Wedemeyer,…