Our ALS Community

My ALS Story: Sam, ALS Caregiver

May 11, 2024 Comments Off on My ALS Story: Sam, ALS Caregiver

Since my wife, Sharalyn, was diagnosed with ALS in August of 2020, we have faced many challenges but found support through the ALS Network (formerly the ALS Association Golden West…

Celebrating Collaboration: the 2024 Death Valley Ride to Cure ALS

April 24, 2024 Comments Off on Celebrating Collaboration: the 2024 Death Valley Ride to Cure ALS

On April 9, Jaime Lafita, a native of Bilbao, Spain, who has been living with amyotrophic lateral sclerosis (ALS) since 2016, started his journey of the Death Valley Ride to…

A Tribute to John Repczynski

April 16, 2024 Comments Off on A Tribute to John Repczynski

It is with a heavy heart that we share the sad news that John Repczynski, ALS Network Advisory Trustee and dear friend to many, died March 20, 2024 after a…

Spotlight on Erin Merritt

March 30, 2024 Comments Off on Spotlight on Erin Merritt

At the age of four, Erin Merritt knew that she wanted to work in theatre. She began training at age 15 and made her professional debut as an actor at…

Celebrate women who are trailblazers in our ALS community!

March 15, 2024 Comments Off on Celebrate women who are trailblazers in our ALS community!

Women’s History Month began as a local celebration in Santa Rosa, California in 1978, in connection with International Women’s Day. The movement spread across the country, and, in 1987, Congress…

Welcoming Our New President & CEO

January 31, 2024 Comments Off on Welcoming Our New President & CEO

On February 1, 2024, the ALS Network, formerly The ALS Association Golden West Chapter, announced Sheri Strahl, MPH, MBA, as its new president and CEO. Sheri has served as the…

Highlights of the 14th Annual California ALS Research Summit

January 30, 2024 Comments Off on Highlights of the 14th Annual California ALS Research Summit

The 14th annual California ALS Research Summit was a seminal event in the world of ALS research and care, with over 200 researchers, investigators, clinicians, biotech companies, partner organizations, and…

My ALS Story – Dave Coker and Team Coker Stars

January 8, 2024 Comments Off on My ALS Story – Dave Coker and Team Coker Stars

Born and raised in Richmond, California, Dave Coker has always dedicated his life to helping others. He first started his career as a social worker at a psychiatric hospital during…

2023 Our ALS Community Stories

December 31, 2023 Comments Off on 2023 Our ALS Community Stories

Thank you for your strong support of the ALS community this year. You are the reason that ALS Golden West serves more people living with ALS than ever, raises greater awareness…

Spotlight on … Ryan Farnsworth

December 15, 2023 Comments Off on Spotlight on … Ryan Farnsworth

A California native, Ryan Farnsworth was diagnosed with ALS in 2015 at the age of 29. Before his diagnosis, Ryan lived with his dad amongst the majestic mountains in Telluride,…