Our ALS Community

The ALS Network Honors the Life and Legacy of John Krave

April 21, 2025 Comments Off on The ALS Network Honors the Life and Legacy of John Krave

A former ALS Network board chair, John Krave passed away on March 25, 2025, following a prolonged battle with pancreatic cancer. He was integral to the growth and evolution of…

Spotlight on… Sarah Marez

April 18, 2025 Comments Off on Spotlight on… Sarah Marez

Growing up in the small but mighty town of Strathmore, CA, Sarah was one of three children raised by loving parents who taught her resilience and strength. In August 2012,…

Spotlight on… Erin Taylor

March 18, 2025 Comments Off on Spotlight on… Erin Taylor

Erin Taylor was born in Whittier, California, in 1999. When she was 17, she moved to Salt Lake City, Utah, to attend college. Always creative and hard working, she juggled…

Aaron Lazar – a champion in the ALS community

December 30, 2024 Comments Off on Aaron Lazar – a champion in the ALS community

Award-winning actor, singer, speaker, and advocate Aaron Lazar has exemplified a resilience that reminds us of the power we have to make the impossible possible, encouraging us all to “dream…

ALS Network Holiday Card Features Artwork of Gayle Garner Roski

December 5, 2024 Comments Off on ALS Network Holiday Card Features Artwork of Gayle Garner Roski

Before her passing from ALS in 2020, Gayle Garner Roski described watercolor as a “medium of magic.”  Gayle once explained she loved “watercolors because they have a way of being…

Celebrating the Legacy of Lorene Lee

A Tribute to Lorene Lee

November 1, 2024 Comments Off on A Tribute to Lorene Lee

With a heavy heart, we share the sad news that Lorene Lee, a beloved mother, wife, friend, and passionate ALS advocate, died on October 16, 2024.  It was in November…

Spotlight on … Etzael Jimenez

October 15, 2024 Comments Off on Spotlight on … Etzael Jimenez

When Etzael Jimenez first arrived in the United States from Mexico at the age of 20, his initial plan was to stay for a year to learn English. Now 25…

Spotlight on … the Aguilera Family

October 15, 2024 Comments Off on Spotlight on … the Aguilera Family

For the Aguileras, their mother, Yolanda Aguilera, was the heart of their family. She had four children: Michelle, Julia, Jessica, and Eddie. They spent every holiday, birthday, and other family…

Spotlight On … Spero Koulouras

October 7, 2024 Comments Off on Spotlight On … Spero Koulouras

Spero Koulouras grew up in Detroit, Michigan, in a Greek family, surrounded by many cousins. With a passion for sports, especially baseball, he dreamed of becoming a professional player for…

ALS Network joins the celebration of Broadway actor and Essey award winner Aaron Lazar’s debut album ‘Impossible Dream’

September 30, 2024 Comments Off on ALS Network joins the celebration of Broadway actor and Essey award winner Aaron Lazar’s debut album ‘Impossible Dream’

The ALS Network joined in celebrating Impossible Dream, the debut album of Broadway actor and Essey award winner, Aaron Lazar in Hollywood on Sept. 29.  This festivities come a few…