News

UCSF: Proactive, Personalized, Precise: AI and Collaborative Research is Revolutionizing ALS Care

May 1, 2025 Comments Off on UCSF: Proactive, Personalized, Precise: AI and Collaborative Research is Revolutionizing ALS Care

With no single known cause, no definitive diagnostic test and no cure, ALS remains a tragically confounding neurodegenerative disease. Its progression varies dramatically from patient to patient, leaving clinicians and…

Webinar: Building a Strong Support Network for Your Journey with ALS

March 14, 2025 Comments Off on Webinar: Building a Strong Support Network for Your Journey with ALS

Thursday, March 27 at 1 p.m. PT/ 10 a.m. HT – Hosted by our partner, Mitsubishi Tanabe Pharma America, this webinar highlights the importance of building a strong support system…

ALS News Today: 15 ALS Nonprofits Collaborate

March 7, 2025 Comments Off on ALS News Today: 15 ALS Nonprofits Collaborate

Fifteen nonprofit organizations across the U.S. formed a new ALS group, ALS United, to better address the needs of people living with amyotrophic lateral sclerosis (ALS) and drive advances in…

ALS News Today: Fat molecules may limit damage to nerve cells in ALS, study finds

March 4, 2025 Comments Off on ALS News Today: Fat molecules may limit damage to nerve cells in ALS, study finds

Fat molecules called polyunsaturated fatty acids, or PUFAs, can help lessen nerve damage in amyotrophic lateral sclerosis (ALS), according to a study of fruit flies and cell models. Previous studies…

The Hollywood Reporter: How a Director Living with a Fatal Disease Managed to Get Julianne Moore Her Oscar

February 14, 2025 Comments Off on The Hollywood Reporter: How a Director Living with a Fatal Disease Managed to Get Julianne Moore Her Oscar

Ten years after ‘Still Alice’ the film’s co-writer/director tells the story of his ailing partner’s own heartbreaking struggle to survive and see their longshot project through to its glorious end.

15 ALS Nonprofits Collaborate to Form ALS United: A New Era of Innovation and Impact

February 6, 2025 Comments Off on 15 ALS Nonprofits Collaborate to Form ALS United: A New Era of Innovation and Impact

February 6, 2025 Following a comprehensive planning process, 15 independent nonprofit organizations from around the country have formalized ALS United, an innovative partnership dedicated to serving the ALS community. This…

Reuters: Private Medicare required to cover Biogen’s ALS drug by US Agency

December 12, 2024 Comments Off on Reuters: Private Medicare required to cover Biogen’s ALS drug by US Agency

Private insurers are now required to cover Biogen’s ALS FDA approved drug, Qalsody, by the Centers for Medicare & Medicaid Services (CMS) following reports of coverage denials. Previously, Medicare Advantage…

FOX11: LA’s Hailey Winslow on the 2024 Los Angeles Walk & Roll to Cure ALS

December 8, 2024 Comments Off on FOX11: LA’s Hailey Winslow on the 2024 Los Angeles Walk & Roll to Cure ALS

Our deepest gratitude to Hailey Winslow, Susan Hirasuna, and FOX 11 news for your thoughtful segment about the 24th annual Los Angeles Walk & Roll to Cure ALS. We cannot…

FOX 11: 24th annual Walk & Roll to Cure ALS happening in LA

December 5, 2024 Comments Off on FOX 11: 24th annual Walk & Roll to Cure ALS happening in LA

This weekend is the Walk & Roll to Cure ALS. ALS Network president and CEO Sheri Strahl joined FOX 11 to talk about the event and the work the nonprofit…

KHON2 joins for day-of festivities at the 12th Annual Hawaii Walk & Roll to Cure ALS

November 9, 2024 Comments Off on KHON2 joins for day-of festivities at the 12th Annual Hawaii Walk & Roll to Cure ALS

We would like to thank KHON2 News for joining us on Saturday, 11/9 for the ALS Network’s 12th annual Hawaii Walk & Roll to Cure ALS! The news feature included…