News

ALS NETWORK ANNOUNCES RESEARCH FUNDS AWARDED TO LIVERMORE LAB FOUNDATION

May 16, 2025 Comments Off on ALS NETWORK ANNOUNCES RESEARCH FUNDS AWARDED TO LIVERMORE LAB FOUNDATION

Researchers to Analyze Medication Effects on Development and Progression of ALS and Parkinson’s Diseases LOS ANGELES – The ALS Network, formerly ALS Golden West, in partnership with the ALS CURE…

The ALS Network joins ALS United and partners across the nation to expedite solutions to advance the fight against ALS

May 3, 2025 Comments Off on The ALS Network joins ALS United and partners across the nation to expedite solutions to advance the fight against ALS

This week, several ALS organizations came together in Washington, D.C. to expedite solutions to advance the fight against ALS in the current policy environment. We have committed to leverage our…

Webinar: Building a Strong Support Network for Your Journey with ALS

March 14, 2025 Comments Off on Webinar: Building a Strong Support Network for Your Journey with ALS

Thursday, March 27 at 1 p.m. PT/ 10 a.m. HT – Hosted by our partner, Mitsubishi Tanabe Pharma America, this webinar highlights the importance of building a strong support system…

ALS News Today: 15 ALS Nonprofits Collaborate

March 7, 2025 Comments Off on ALS News Today: 15 ALS Nonprofits Collaborate

Fifteen nonprofit organizations across the U.S. formed a new ALS group, ALS United, to better address the needs of people living with amyotrophic lateral sclerosis (ALS) and drive advances in…

ALS News Today: Fat molecules may limit damage to nerve cells in ALS, study finds

March 4, 2025 Comments Off on ALS News Today: Fat molecules may limit damage to nerve cells in ALS, study finds

Fat molecules called polyunsaturated fatty acids, or PUFAs, can help lessen nerve damage in amyotrophic lateral sclerosis (ALS), according to a study of fruit flies and cell models. Previous studies…

AP News: Roberta Flack, Grammy-winning ‘Killing Me Softly’ singer with an intimate style, dies at 88

February 24, 2025 Comments Off on AP News: Roberta Flack, Grammy-winning ‘Killing Me Softly’ singer with an intimate style, dies at 88

Roberta Flack, the Grammy-winning singer and pianist whose intimate vocal and musical style made her one of the top recordings artists of the 1970s and an influential performer long after,…

The Hollywood Reporter: How a Director Living with a Fatal Disease Managed to Get Julianne Moore Her Oscar

February 14, 2025 Comments Off on The Hollywood Reporter: How a Director Living with a Fatal Disease Managed to Get Julianne Moore Her Oscar

Ten years after ‘Still Alice’ the film’s co-writer/director tells the story of his ailing partner’s own heartbreaking struggle to survive and see their longshot project through to its glorious end.

15 ALS Nonprofits Collaborate to Form ALS United: A New Era of Innovation and Impact

February 6, 2025 Comments Off on 15 ALS Nonprofits Collaborate to Form ALS United: A New Era of Innovation and Impact

February 6, 2025 Following a comprehensive planning process, 15 independent nonprofit organizations from around the country have formalized ALS United, an innovative partnership dedicated to serving the ALS community. This…

Reuters: Private Medicare required to cover Biogen’s ALS drug by US Agency

December 12, 2024 Comments Off on Reuters: Private Medicare required to cover Biogen’s ALS drug by US Agency

Private insurers are now required to cover Biogen’s ALS FDA approved drug, Qalsody, by the Centers for Medicare & Medicaid Services (CMS) following reports of coverage denials. Previously, Medicare Advantage…

FOX11: LA’s Hailey Winslow on the 2024 Los Angeles Walk & Roll to Cure ALS

December 8, 2024 Comments Off on FOX11: LA’s Hailey Winslow on the 2024 Los Angeles Walk & Roll to Cure ALS

Our deepest gratitude to Hailey Winslow, Susan Hirasuna, and FOX 11 news for your thoughtful segment about the 24th annual Los Angeles Walk & Roll to Cure ALS. We cannot…