Media Partners

Letter by Letter, Steve Gleason Typed His Memoir With His Eyes

May 3, 2024 Comments Off on Letter by Letter, Steve Gleason Typed His Memoir With His Eyes

The former N.F.L. player has been living with A.L.S. for more than a decade. Sharing “the most lacerating and vulnerable times” in “A Life Impossible” was worth the physical and…

Denali Therapeutics Announces Completion of Enrollment for Regimen G Evaluating eIF2B Agonist DNL343 in the Phase 2/3 HEALEY ALS Platform Trial

May 1, 2024 Comments Off on Denali Therapeutics Announces Completion of Enrollment for Regimen G Evaluating eIF2B Agonist DNL343 in the Phase 2/3 HEALEY ALS Platform Trial

SOUTH SAN FRANCISCO, Calif., May 01, 2024 (GLOBE NEWSWIRE) — Denali Therapeutics Inc. (Nasdaq: DNLI), a biopharmaceutical company developing a broad portfolio of product candidates engineered to cross the blood-brain…

Studio City Life Magazine: Charity Spotlight

May 1, 2024 Comments Off on Studio City Life Magazine: Charity Spotlight

The May 2024 issue of Studio City Life Magazine featured ALS Network president and CEO Sheri Strahl, along with ALS Network Advisory Trustee Dr. Richard Smith. Readers received details on…

NBC Bay Area: 10th Annual Jim Tracy 5K in Golden Gate Park

April 28, 2024 Comments Off on NBC Bay Area: 10th Annual Jim Tracy 5K in Golden Gate Park

Watch this segment with Terry McSweeney from NBC Bay Area talk about the 10th Annual Jim Tracy 5K, Walk & Roll to Cure ALS in Golden Gate Park.

CBS Bay Area: Jim Tracy 5K, Walk & Roll to Cure ALS

April 28, 2024 Comments Off on CBS Bay Area: Jim Tracy 5K, Walk & Roll to Cure ALS

Watch this segment from KPIX CBS Bay Area about the 10th annual Jim Tracy 5K, Walk & Roll to Cure ALS.

Cyclists from Spain take on Death Valley Ride to Cure ALS

April 22, 2024 Comments Off on Cyclists from Spain take on Death Valley Ride to Cure ALS

A group of 20 cyclists from Spain took on the challenge of riding 400 miles in the Death Valley Ride to Cure ALS. One of the riders has lived with…

Recorrerá el valle de la Muerte para retar su diagnóstico de esclerosis lateral amiotrófica (ELA)

April 7, 2024 Comments Off on Recorrerá el valle de la Muerte para retar su diagnóstico de esclerosis lateral amiotrófica (ELA)

El 9 de abril, el español Jaime Lafita saldrá en bicicleta por esta región de California durante jornadas de seis horas. Antes el hombre de 61 años participó en otro…

El reto del español Jaime Lafita: desafiar a la ELA en bicicleta por el Valle de la Muerte | The Challenge of Spanish Jaime Lafita: Fighting ALS by Bicycle Through Death Valley

March 28, 2024 Comments Off on El reto del español Jaime Lafita: desafiar a la ELA en bicicleta por el Valle de la Muerte | The Challenge of Spanish Jaime Lafita: Fighting ALS by Bicycle Through Death Valley

Camina con dificultad, pero eso a él no le importa. El único objetivo de Jaime Lafita, de 61 años y original de Getxo, en el norte de España, es llegar…

Failure of ALS drug puts a spotlight on controversial FDA approvals

March 16, 2024 Comments Off on Failure of ALS drug puts a spotlight on controversial FDA approvals

Critics say the Food and Drug Administration has gone too far greenlighting drugs despite concerns about their effectiveness The FDA headquarters in Silver Spring, Md. The agency has used a…

Benioffs donate $150M to Hilo and Straub medical centers

March 5, 2024 Comments Off on Benioffs donate $150M to Hilo and Straub medical centers

Marc and Lynne Benioff are donating $150 million to two Hawaiʻi hospitals to help ensure continuous health care access in the state, according to a news release Tuesday. The gift…