Care

Wildfire Information

January 8, 2025 Comments Off on Wildfire Information

ALS Network care services and community outreach staff are actively connecting with our families impacted by wildfires to assess their safety and well-being.  Emergency support is being offered for our…

Servicios de Cuidado / Care Services

December 20, 2024 Comments Off on Servicios de Cuidado / Care Services

Cada persona con ELA que se registra con la ALS Network es conectada a servicios de atención personalizados. Vea este video para obtener mas información sobre nuestros programas y servicios.…

UCSF ALS Clinic and Cottage Health Santa Barbara launch ALS clinic in Santa Barbara

June 22, 2024 Comments Off on UCSF ALS Clinic and Cottage Health Santa Barbara launch ALS clinic in Santa Barbara

On June 20-21, the UCSF Medical Center’s Health Clinic and Cottage Health Santa Barbara launched a new satellite clinic. Supported with a grant from the UniHealth Foundation, the clinic is…

ALS Network – 2023 Care Services Survey Outcomes

January 4, 2024 Comments Off on ALS Network – 2023 Care Services Survey Outcomes

In September 2023, ALS Golden West distributed a survey to all clients we serve – people living with ALS, their loved ones and their professional caregivers. The goal was to…

Establishing Clinical Practice Parameters and Standards for Home Care in ALS

November 3, 2023 Comments Off on Establishing Clinical Practice Parameters and Standards for Home Care in ALS

Over the course of the last few years, ALS Golden West has collaborated with a group of neurologists and researchers from around the country, including people with ALS and their…

Monterey Peninsula Foundation

Monterey Peninsula Foundation Awards $20,000 Grant to ALS Golden West

November 3, 2023 Comments Off on Monterey Peninsula Foundation Awards $20,000 Grant to ALS Golden West

The Monterey Peninsula Foundation, host of the AT&T Pebble Beach Pro-Am and PURE Insurance Championship Impacting the First Tee, has awarded ALS Golden West a $20,000 grant to support ALS…

Important Update on Insurance Denials by Cigna and Others of Drugs Approved to Treat ALS

May 11, 2023 Comments Off on Important Update on Insurance Denials by Cigna and Others of Drugs Approved to Treat ALS

We continue to press Cigna to reverse course and make Relyvrio treatment available for people living with ALS on Cigna plans. While Cigna initially revised its policy, those changes were…

Regenerative Medicine: A New Path for ALS Treatment

May 1, 2023 Comments Off on Regenerative Medicine: A New Path for ALS Treatment

A first-of-its-kind stem cell therapy for ALS passes a critical safety benchmark, advancing the search to slow down, reverse and prevent the disease. In a parallel study, investigators are growing…

A Focus on Quality of Life: The Occupational Therapist Role in ALS Multidisciplinary Care

April 11, 2023 Comments Off on A Focus on Quality of Life: The Occupational Therapist Role in ALS Multidisciplinary Care

In broad terms, occupational therapy focuses on a person’s ability to perform activities of daily living—to live life to its fullest. For people with ALS, an occupational therapist (or OT)…

Feeding Tubes for People Living With ALS: Clearing up Some Misconceptions

February 7, 2023 Comments Off on Feeding Tubes for People Living With ALS: Clearing up Some Misconceptions

For many people living with ALS, the decision to have a feeding tube placed, if or when it’s needed, is an important one, and as with many decisions that must…