Care

ALS Network – 2023 Care Services Survey Outcomes

January 4, 2024 Comments Off on ALS Network – 2023 Care Services Survey Outcomes

In September 2023, ALS Golden West distributed a survey to all clients we serve – people living with ALS, their loved ones and their professional caregivers. The goal was to…

Establishing Clinical Practice Parameters and Standards for Home Care in ALS

November 3, 2023 Comments Off on Establishing Clinical Practice Parameters and Standards for Home Care in ALS

Over the course of the last few years, ALS Golden West has collaborated with a group of neurologists and researchers from around the country, including people with ALS and their…

Monterey Peninsula Foundation

Monterey Peninsula Foundation Awards $20,000 Grant to ALS Golden West

November 3, 2023 Comments Off on Monterey Peninsula Foundation Awards $20,000 Grant to ALS Golden West

The Monterey Peninsula Foundation, host of the AT&T Pebble Beach Pro-Am and PURE Insurance Championship Impacting the First Tee, has awarded ALS Golden West a $20,000 grant to support ALS…

Important Update on Insurance Denials by Cigna and Others of Drugs Approved to Treat ALS

May 11, 2023 Comments Off on Important Update on Insurance Denials by Cigna and Others of Drugs Approved to Treat ALS

We continue to press Cigna to reverse course and make Relyvrio treatment available for people living with ALS on Cigna plans. While Cigna initially revised its policy, those changes were…

Regenerative Medicine: A New Path for ALS Treatment

May 1, 2023 Comments Off on Regenerative Medicine: A New Path for ALS Treatment

A first-of-its-kind stem cell therapy for ALS passes a critical safety benchmark, advancing the search to slow down, reverse and prevent the disease. In a parallel study, investigators are growing…

A Focus on Quality of Life: The Occupational Therapist Role in ALS Multidisciplinary Care

April 11, 2023 Comments Off on A Focus on Quality of Life: The Occupational Therapist Role in ALS Multidisciplinary Care

In broad terms, occupational therapy focuses on a person’s ability to perform activities of daily living—to live life to its fullest. For people with ALS, an occupational therapist (or OT)…

Feeding Tubes for People Living With ALS: Clearing up Some Misconceptions

February 7, 2023 Comments Off on Feeding Tubes for People Living With ALS: Clearing up Some Misconceptions

For many people living with ALS, the decision to have a feeding tube placed, if or when it’s needed, is an important one, and as with many decisions that must…

ALS Association Fights for Access to RELYRVIO

December 5, 2022 Comments Off on ALS Association Fights for Access to RELYRVIO

The ALS Association recently sent letters to 43 of the largest insurance companies and health care payers to make RELYVRIO, which was formerly developed as AMX0035 and approved by the…

Mari Fuentes and Trish Rice – ALS from the Caregiver’s Perspective

November 10, 2022 Comments Off on Mari Fuentes and Trish Rice – ALS from the Caregiver’s Perspective

We had NO idea what ALS was until our loved ones were diagnosed with it. ALS Golden West supported our families throughout their journey with ALS. Their free-of-charge care services,…

Medicare Open Enrollment Begins October 15—Understanding Your Options

October 11, 2022 Comments Off on Medicare Open Enrollment Begins October 15—Understanding Your Options

Medicare open enrollment begins this Saturday, the period when individuals may add, drop, or make changes to their health insurance coverage, with selections remaining in effect for the next full…