Awareness

Spotlight on … Leila Sulentic, Team Captain and Former Event Chair, Jim Tracy 5k to Defeat ALS

April 3, 2021 Comments Off on Spotlight on … Leila Sulentic, Team Captain and Former Event Chair, Jim Tracy 5k to Defeat ALS

San Francisco University High School graduate Leila Sulentic and her family have been battling ALS for as long as she can remember. “My first experience was when I was around…

Spotlight on…. Stacy Title
Trailblazer in Hollywood and as an ALS Advocate

March 8, 2021 Comments Off on Spotlight on…. Stacy Title
Trailblazer in Hollywood and as an ALS Advocate

“I have always believed and always taught my kids they can do whatever they want. I’ve tried to live that life. Why should I stop doing what I love?” –…

Black Patients with ALS Face Significant Diagnostic Delays, Large Study Confirms

February 4, 2021 Comments Off on Black Patients with ALS Face Significant Diagnostic Delays, Large Study Confirms

A new study found that Black patients with amyotrophic lateral sclerosis (ALS) experienced longer delays to being diagnosed with ALS than White patients. Societal determinants of health, such as disparities…

A loving tribute to Nanci Ryder: Champion for ALS Awareness and Dear Friend

June 12, 2020 Comments Off on A loving tribute to Nanci Ryder: Champion for ALS Awareness and Dear Friend

“My mission in life is not merely to survive, but to thrive; and to do so with some passion, some compassion, some humor, and some style.” – Maya Angelou, American…

Sydney Caroll

May 12, 2020 Comments Off on Sydney Caroll

The $6 Challenge Example! Youth Action participant Sydney Carroll donated the few dollars she had in her piggy bank towards fighting ALS and asked that others do the same. Today,…

Our tribute to Mari Winsor: Fitness icon, powerful ALS advocate, and a dear friend

April 30, 2020 Comments Off on Our tribute to Mari Winsor: Fitness icon, powerful ALS advocate, and a dear friend

Mari Winsor, an internationally renowned fitness legend who was widely credited with popularizing Pilates and making this once obscure workout accessible to the public, died peacefully at her home surrounded…

Nanci Ryder, a renown Hollywood publicist and co-founder of BWR Public Relations, was diagnosed with ALS in 2014

February 20, 2019 Comments Off on Nanci Ryder, a renown Hollywood publicist and co-founder of BWR Public Relations, was diagnosed with ALS in 2014

Nanci Ryder, a renown Hollywood publicist and co-founder of BWR Public Relations, was diagnosed with ALS in 2014. From then on, she worked tirelessly to raise public awareness, and to…

A Sad Update About Our #VoiceYourLove Ambassador, Ryan Farnsworth

February 19, 2019 Comments Off on A Sad Update About Our #VoiceYourLove Ambassador, Ryan Farnsworth

It is with heavy hearts that we share the news that Ryan Farnsworth, whose story is featured as a part of our #VoiceYouLove campaign, died Tuesday evening surrounded by his…

The ALS Association Golden West Chapter to Honor Nanci Ryder with 2018 Walk Hero Award at the 16th Annual Los Angeles County Walk to Defeat ALS® on Sunday, November 4

September 1, 2018 Comments Off on The ALS Association Golden West Chapter to Honor Nanci Ryder with 2018 Walk Hero Award at the 16th Annual Los Angeles County Walk to Defeat ALS® on Sunday, November 4

The ALS Association Golden West Chapter is proud to announce that Nanci Ryder will be the recipient of the 2018 Walk Hero Award at the 16th annual Los Angeles County…

Spotlight on: Dwight Clark and the San Francisco 49ers

June 8, 2018 Comments Off on Spotlight on: Dwight Clark and the San Francisco 49ers

On June 4, 2018, the world lost the beloved NFL legend, San Francisco 49ers Dwight Clark, to ALS. On the day of his passing, his wife, Kelly, announced the sad…